Black-owned hospice seeks to bring greater ease in dying to Black families

André Lee, administrator and co-founder of Heart and Soul Hospice, stands with Keisha Mason, director of nursing, in front of their office building last week in Nashville, Tenn.

By Blake Farmer

This time, it didn’t take much persuading for Mary Murphy to embrace home hospice. When her mother was dying from Alzheimer’s disease in 2020, she had been reluctant until she saw what a help it was. And so when her husband, Willie, neared the end of his life, she embraced hospice again.

The Murphys’ house in a leafy Nashville neighborhood is their happy place — full of their treasures.

“He’s good to me — buys me anything I want,” she says, as she pulls a milky glass vase out of a floor-to-ceiling cabinet with mirrored shelves.

Willie bought Mary the display case to help her to show off all the trinkets she picks up at estate sales.

Down the hall, Willie lies in their bed, now unable to speak. His heart is giving out.

“You gonna wake up for a minute?” she asks as she cradles his head. She pats his back while he clears his throat. “Cough it out.”

Mary has been the primary caregiver for her husband, but she gets help from a new hospice agency in Nashville that is focused on increasing the use of comfort care at the end of life by Black families. Heart and Soul Hospice is owned and operated by people who share the same cultural background as the patients they’re trying to serve.

In their application to obtain a certificate of need in Tennessee, the hospice owners made it clear that they are Black and that they intend to serve everyone but will focus on African Americans, who are currently underserved. Tennessee data show that in Nashville, just 19% of the hospice patients are Black though they make up 27% of the population.

Though the area already had numerous hospice agencies, regulators granted the permission, based primarily on the value of educating an underserved group.

Hospice care helped Mary and Willie Murphy with a few baths a week, medication in the mail, and any medical equipment they needed. And there was the emotional support from a caring nurse.

In Mary Murphy’s first experience with hospice, her mother had suffered from dementia for decades, yet still when transitioning to hospice came up with her mother, Murphy had many concerns. She felt like she was giving up on her mom.

“My first thought was death,” she says.

National data shows Black Medicare patients and their families are not making the move to comfort care as often as white patients are. Roughly 41% of Black Medicare beneficiaries who died in 2019 were enrolled in hospice, compared with white patients for whom the figure is 54%, according to data compiled annually by the National Hospice and Palliative Care Organization.

Murphy’s mother survived nearly three years on hospice. The benefit is meant for those in the last six months of life, but predicting when the end will come is difficult, especially with dementia. Hospice provides palliative care for the dying and support for caregivers for a long as the process lasts.

Murphy did most of the caregiving — which can be overwhelming — but hospice helped with a few baths a week, medication in the mail and any medical equipment they needed.

And most important to Murphy was the emotional support, which came mostly from her hospice nurse.

“Wasn’t no doctor going to come here, hold my hand, stay here until the funeral home came for her,” she says about the day her mother died.

This year, on the day after Thanksgiving, Willie Murphy died. And the same hospice nurse was at the Murphy home within minutes. She’d already stopped by that morning to check on him and returned as soon as Mary called and told her he wasn’t breathing.

“If you don’t feel like, ‘Oh my God, thank God I have hospice,’ if you can’t say that, then we’re doing something wrong,” says Keisha Mason, who is Heart and Soul’s director of nursing.

Mason, like Murphy, is Black and says that in her view, there’s nothing fundamental keeping Black patients from using hospice except learning what the service can offer and that it’s basically free to patients — paid for by Medicare, Medicaid and most private health plans.

“I say to them, ‘If you see a bill, then call us, because you should not,’ ” she says.

As Mason has helped launch this new hospice agency, she’s begun using new language, calling hospice more than a Medicare benefit. She describes it as an entitlement.

“Just as you are entitled to unemployment, as you are entitled to Social Security, you are entitled to a hospice benefit,” she says.

The investors in Heart and Soul include David Turner, owner of CNS Hospice in Detroit, Nashville pastor the Rev. Sandy McClain, and André Lee, who is a former hospital administrator on the campus of Nashville’s Meharry Medical College, a historically Black institution.

Lee and Turner also started a Black-focused hospice agency in Michigan and have plans to replicate the model in other states.

Lee says more families need to consider home hospice as an alternative for end-of-life care. Nursing homes are pricey. And even with Medicare, a hospital bill could be hefty.

“You’ll go in there and they’ll eat you alive,” he says. “I hate to say [something] bad about hospitals, but it’s true.”

Hospice research hasn’t come up with clear reasons why there’s a gap between white and Black families’ use of the benefit. Some speculate it’s related to spiritual beliefs and widespread mistrust in the medical system due to decades of discrimination.

The hospice industry’s national trade group, the NHCPO, released a diversity and inclusion toolkit and a guide for how to reach more Black patients this year. It recommends connecting with influential DJs and partnering with Black pastors. But also just hiring more Black nurses.

Lee says it’s not overly complicated.

“A lot of hospices don’t employ enough Black people,” he says. “We all feel comfortable when you see someone over there that looks like you.”

Well-established hospice agencies have been attempting to minimize any barriers with their own diversity initiatives. Michelle Drayton of Visiting Nurse Service of New York says her large agency has been meeting with ministers who counsel families dealing with failing health.

“Many of them did not fully understand what hospice was,” she says. “They had many of the same sort of misperceptions.”

Whether it’s an upstart hospice company or one of the oldest in the country, everyone still has a lot of end-of-life educating to do to bridge the racial gap, Drayton says. “We’re not just handing out a brochure,” she adds.

Complete Article HERE!

Joan Didion Wrote About Grief Like No One Else Could

On a patio deck overlooking the ocean, Quintana Roo Dunne leans on a railing with her parents, writers John Gregory Dunne and Joan Didion, in Malibu, Calif., 1976.

By Annabel Gutterman

Joan Didion made sense of the world through words. She was known for them: her cool, exacting prose; her sentences, smooth and spare. But in the aftermath of her husband’s fatal heart attack in 2003, her relationship with words changed. “This is a case in which I need more than words to find the meaning,” she wrote in her 2005 memoir, The Year of Magical Thinking. “This is a case in which I need whatever it is I think or believe to be penetrable, if only for myself.”

Didion, who died on Dec. 23 at 87, was the author of five novels, several works of nonfiction including Slouching Towards Bethlehem and The White Album, screenplays and more. She was a prolific storyteller who ushered in a new style of journalism, combining research and lyrical imagery with cutting moments of humor. In the foreword of the last book she published before her death, Let Me Tell You What I Mean, writer Hilton Als described Didion as “a carver of words in the granite of the specific.” She both dissected the ordinariness of the everyday for its complexities, and broke down the most foreign of situations into familiar, accessible parts. Crucially, Didion also explored the language we use to process loss, and the limitations of that language. Now, as the world mourns her death, we look to her own words for both guidance and solace.

“Grief has no distance. Grief comes in waves, paroxysms, sudden apprehensions that weaken the knees and blind the eyes and obliterate the dailiness of life,” Didion wrote in The Year of Magical Thinking. The book, a finalist for the Pulitzer Prize, chronicled the process of grieving the death of her husband and most trusted collaborator, the writer John Gregory Dunne, a little over a month before their 40th wedding anniversary. (Dunne was writing for TIME when they first met.) When Dunne died, the couple’s adopted daughter, Quintana, was unconscious in the ICU, suffering from pneumonia and septic shock. Didion’s experience with loss continued: A little over a year and a half after Dunne’s death, Quintana died at age 39. The writer examined that second excruciating loss in her 2011 memoir, Blue Nights, detailing a new kind of grief while crafting an aching examination of mortality and aging.

“This book is called ‘Blue Nights’ because at the time I began it I found my mind turning increasingly to illness, to the end of promise, the dwindling of the days, the inevitability of the fading, the dying of the brightness,” she wrote. “Blue nights are the opposite of the dying of the brightness, but they are also its warning.”

Joan Didion, circa 1977

Though both books were rooted in Didion’s agonizing personal tragedies, they were not ones of self-pity or despair. Instead, they sought to understand how memory informs grief and how death shapes life. The title of The Year of Magical Thinking comes from Didion’s experiences reckoning with the finality of death, and the disillusion that exists in its aftermath. In one poignant scene, Didion becomes fixated on her husband’s shoes while going through his clothes.

“I could not give away the rest of his shoes. I stood there for a moment, then realized why: he would need shoes if he was to return. The recognition of this thought by no means eradicated the thought. I have still not tried to determine (say, by giving away the shoes) if the thought has lost its power.”

Didion detailed how she would convince herself that she could bring her husband back, even though she was well aware he was gone. “Magical Thinking is an act of consummate literary bravery, a writer known for her clarity narrating the loss of that clarity, allowing us to watch her mind as it becomes clouded with grief,” the author Lev Grossman wrote in a review for TIME in 2005. “But the book also reproduces, in its formal progression from those first raw, frenzied impressions to a more composed account of mourning, Didion’s recovery. She literally wrote herself back to sanity.”

The Year of Magical Thinking was Didion’s 13th book. She finished it in 88 days during the year after Dunne’s death. It was the first time in 40 years that Didion did not receive feedback from Dunne on a writing project. Although she wrote the book quickly, she said it was difficult for her to finish because the book “maintained a connection with him.

Often described as a companion piece to that book, Blue Nights is another gutting look at a writer grasping for words to describe a loss—this time, of a beloved child. While just as candid as its predecessor, Blue Nights is a more raw exploration of grief, less polished in its structure, with Didion moving between fragmented memories. These range from the scenes of Quintana’s adoption and her reunion with her birth family to Quintana losing a tooth as a child. In Blue Nights, the magical thinking that once consumed Didion is gone, instead replaced with her reflections on memory and rumination on growing older and the ways her daughter’s death made her face her own mortality. “When I started writing, I thought it was going to be about attitudes to raising children,” Didion told The Guardian. “Then it became clear to me that, willy-nilly, it was going to be personal. I can’t imagine what I thought it was going to be, if it wasn’t personal.”

The raw emotional weight of both The Year of Magical Thinking and Blue Nights provided an unflinching look inside Didion’s otherwise steely, sophisticated exterior. In letting her guard down, she allowed readers into her grieving process—and provided a roadmap for others navigating their own pain. “I know why we try to keep the dead alive: we try to keep them alive in order to keep them with us,” Didion wrote in The Year of Magical Thinking. “I also know that if we are to live ourselves there comes a point at which we must relinquish the dead, let them go, keep them dead.”

Complete Article HERE!

An ice cream man died of cancer.

A funeral procession of ice cream trucks honored ‘the king.’

Hassan Dervish, above, was lauded by his brother as a “really honest and hard-working person” for his decades of work as an ice-cream vendor in England.

By Timothy Bella

Savash Turkel was among a small group of family and friends who showed up on a dreary Friday morning in southeast London to bury his brother, Hassan Dervish, an ice cream man for more than 40 years who recently died of cancer.

But something was different about this December funeral procession, Turkel told The Washington Post: The jingles from ice cream trucks, driven by colleagues who knew and admired Dervish, flooded the streets in memory of a 62-year-old man hailed by loved ones as the “king of the ice cream.”

“The first one came and then there was another and then there was another,” said Turkel, 57. “All of a sudden, there were probably 10 ice cream trucks that followed him all the way to the cemetery. There were so many ice cream trucks for my brother.”

The moment with the 10 ice cream trucks was captured in an emotional video posted to Twitter that’s been viewed more than 10 million times as of Saturday afternoon.

“Just witnessed an ice cream man’s funeral and all the ice cream vans came and followed in solidarity,” tweeted Louisa Davies, the woman who posted the viral video. “I AM SOBBING.”

As observers pointed out on social media, the procession for Dervish follows in the tradition of ice cream vendors honoring fallen colleagues at their funerals in the United Kingdom. In February, 10 trucks gathered to celebrate the life of Pasquale Marucci, a popular, Italian-born ice cream man in Hampshire, England, according to the BBC. A similar funeral procession unfolded in July for John Lennie, who served generations of customers in Wimborne Minster, England.

After growing up in Cyprus with a tailor for a father and stay-at-home mother, Dervish emigrated to the U.K. in his early 20s, Turkel said. The brother noted how Dervish, one of four siblings in the family, had always loved ice cream and was curious about what life would be like to bring smiles to so many people.

“He was in the ice cream trade for all of his life,” he said.

After arriving around 1980, Dervish made a good life for himself in southeast London, Turkel said, and later married and had two children. His ice cream dreams had also become a reality, setting up an ice cream factory in the Lewisham neighborhood in the early 2000s.

From the time he started serving ice cream in the area, Dervish wanted to not just be a friendly face with sweet treats but also someone who gave back to his family and friends, his brother told The Post.

“He was passionate about the work he was doing. He was always helping out all his friends. He helped them all out,” Turkel said. “That’s why so many people loved him. My brother was a really honest and hard-working person.”

His health, however, took a turn for the worse around 2019, after he was diagnosed with a cancer that weakened him tremendously, Turkel said.

“The last two years, he was suffering,” his brother recalled. “He was taking all the treatments and everything.”

Dervish died on Nov. 12, his brother said, after fighting Stage 4 cancer that had “spread all throughout his body.”

“He couldn’t survive it, unfortunately,” Turkel told The Post.

When the funeral was scheduled more than a month later, coronavirus safety restrictions limited the number of people who could come for the Friday ceremony, the brother said.

That’s when the jingles from the ice cream trucks — Mr. Softee, Akan’s Soft Ice Cream, Mister Creamy — became the soundtrack for Dervish’s funeral.

Even though not as many people were at the funeral because of safety precautions, the presence of the ice cream vendor community at the procession left Turkel speechless.

“What can I say?” he said. “All of his friends, they came to pay their last respects to him.”

Videos of the funeral procession have gotten a huge reaction on social media, with many people admiring the sadness and beauty of the tribute. Davies, whose video has reached millions, tweeted that any money made off the video would be donated to a charity of Dervish’s family’s choice.

Ismail Mehmet, who said he was at Dervish’s funeral, captured a video of the ice cream trucks as they pulled into the cemetery.

“I’m amazed how much of an impact it has had to the area,” Mehmet wrote.

Turkel said that while his brother’s family and friends are emotionally exhausted and overwhelmed by the millions who’ve responded to the sweet procession, they are grateful that many more can see how Dervish was “a friend to everyone.”

“He touched so many hearts in so many ways,” Turkel said. “It makes me so proud of him.”

Complete Article HERE!

Apple now lets you pick someone to inherit your data when you die

by

A feature included in Apple’s latest iPhone update is something you probably don’t want to think about: who gets access to your phone if (or should we say when?) you die.

The change to Apple’s “Digital Legacy” feature is included in iOS 15.2. Now, you can designate contacts who will have access to your accounts when you pass away.

Those loved ones will have access to your photos, text messages, notes, apps and more. Certain things like payment information and passwords won’t be accessible, says Apple.

You can designate up to five loved ones as legacy contacts. You’ll be given an access code that you should put with the rest of your estate planning information. Eventually, one of your legacy contacts can present that access code and a death certificate to Apple to obtain access to your accounts.

Legacy contacts verified by the company will have access to the account for three years. At that time, the account will be permanently deleted, Apple says.

Here’s how to designate a legacy contact:

  1. Go to Settings on your iPhone and click your name at the top.
  2. Tap “Password & Security,” then “Legacy Contact.”
  3. Designate up to five contacts as legacy contacts.
  4. Print and save the access code. Your contacts will need this and your death certificate to gain access.

Apple has more information about how to request access to a deceased loved one’s account here.

Complete Article HERE!

‘sarco’ the assisted suicide pod is cleared for use in switzerland

sarco: a modern sarcophagus

by kat barandy

in 2019, australian euthanasia activist philip nitschke, founder of exit international, first unveiled his ‘sarco’ assisted suicide pod in venice. upon its first presentation to the world, people were already lined up to use it. taking shape as a high tech coffin, the pod allows the user to administer their own death in just minutes. with the press of a button inside the pod, the small space is flooded with nitrogen, causing oxygen levels to drop rapidly. the user will shortly feel ‘slightly euphoric,’ before falling into unconsciousness and peacefully passing away in a matter of minutes.

since its debut in venice, the philip nitschke’s machine has passed legal review and may be operated in switzerland.

a new way to die peacefully, now legal in switzerland

after passing legal review, the philip nitschke-designed pod offers a new method for assisted suicide in switzerland. the country is one of the few that has legalized physician-assisted suicide. it has one of the most progressive stances, allowing physician-assisted suicide without a minimum age requirement, diagnosis, or symptom state. because of this, people have traveled internationally for it — 221 people have traveled to the swiss clinic dignitas in 2018 alone (see more here). in 2020, around 1,300 people overall had died by assisted suicide in switzerland.

dr. nitschke, founder of exit international (see more here), champions the pod as a more peaceful alternative for those wishing to die. he explains in an interview with swiss journal SWI: ‘death takes place through hypoxia and hypocapnia, oxygen and carbon dioxide deprivation, respectively. there is no panic, no choking feeling.’ (see more)

revolutionizing the dying process

with his assisted suicide pod ‘sarco,’ philip nitschke seeks to ‘de-medicalize’ the dying process. he notes that currently, a doctor need to be involved to prescribe the patient with sodium pentobarbital and to confirm their mental capacity. the exit international founder aims to remove any kind of psychiatric review from the process and allow the individual to control the method themselves.

in lieu of a psychiatric review, the company is developing an artificial intelligence screening system to determine the person’s mental capacity. acknowledging the natural skepticism, especially from psychiatrists, nitschke notes the original concept, which involves an online test and an access code for the sarco.

Complete Article HERE!

The Dead Get a Do-Over

In a flurry of streaming television shows, the departed get a second chance. And viewers find an outlet for sorrow and remorse.

As Cal in “Manifest,” Jack Messina returns from oblivion with supernatural gifts.

By Ruth La Ferla

In “Manifest,” a series streaming on Netflix, Michaela, one of the show’s more candidly troubled characters, turns up with her companions after a lengthy, unexplained absence to be reunited with their families.

She ought to be ecstatic. But her reactions more aptly reflect the Kübler-Ross model of grief, some of its stages — denial, depression and anger — mingling on her features, along with a slow-dawning acceptance. As she tells Jared, her former fiancé, “Part of me wishes we hadn’t come back at all.”

Her response seems relatable. Mourning her life as she knew it, Michaela is one of some 200 passengers on the Montego Air Flight 828, who have mysteriously vanished only to return five years later, not a day older and sound of body but freighted with all manner of weighty emotional baggage.

In “Glitch,” Maria (Daniela Farinacci) resurfaces still caked in the soil from her grave.

That tale is but one in a rash of streaming series finding new audiences in the midst of a lingering pandemic, luring viewers with the suggestion that the boundary between life and death may be porous indeed. The departed get a new purchase on life in “Glitch,” an Australian offering in which the long-expired denizens of Yoorana, a fictional community in the Australian outback, stagger back to their homes, bodies still caked with the soil from their graves.

“The 4400,” focused on the undead but with none of the zombie horror effects, shows the newly risen wielding oddly assorted superpowers. In “The OA,” a fable-like iteration of the resurrection theme, the heroine has perished many times over, blind in one incarnation but gifted in another with an extraordinary second sight. Death itself is illusory, she assures a young school friend. “I think you are always somewhere.”

There is “The Returned,” an American adaptation of “Les Revenants,” a decade-old series about the long-gone members of a French Alpine village intent on picking up the shards of their lives, unaware that their near and dear have long since moved on. And “Katla,” an Icelandic production in which the deceased resurface in the shadow of an active volcano, seeking to salve emotional wounds.

At a time when people are grieving not only their dead, but lost jobs, opportunities and daily routines, the appetite for such fare seems especially poignant. Reveries, sci-fi fantasies or meditations on life’s great mysteries, these shows offer viewers little in the way of resolution but hold out a promise of redemption, reunion and, not least, a chance to muse on their mortality.

“Death has been a more omnipresent force in our lives in the last 18 months than it has been in our lifetimes,” said Steve Leder, the senior rabbi of the Wilshire Boulevard Temple in Los Angeles and the author, most recently, of “The Beauty of What Remains,” about the nature of bereavement.

“Death is no longer something we can banish to the basement of our psyches,” Rabbi Leder said. “It is that broomstick pounding on that basement ceiling, demanding: ‘What about me? Pay attention. I must be reckoned with.’”

Dr. Andre (T.L. Thompson) and Claudette (Jaye Ladymore) of “The 4400” beam down with a mission.

Such shows offer, as well, a chance for viewers to confront, or at least contemplate, their most nagging anxieties. “These shows are our version of a roller coaster, a death-defying ride with the things you fear most.” said David Kessler, whose most recent book, “Finding Meaning, The Sixth Stage of Grief,” explores the reverberations of loss.

“When people are grieving, one of their greatest fears is that they’re going to forget about the person they have lost,” Mr. Kessler said. “We don’t want to move on because that feels like abandoning those we love.”

There is scant chance of that in the latest shows, many of them defunct network series revived for streaming at an eerily opportune time. “We live in the world’s first death-free generation, meaning that many people live into their 40s before experiencing the death of a parent, sometimes even a grandparent,” said Alan Wolfelt, a death educator and grief counselor.

“In a mourning-avoidant culture such as ours watching these shows is, in part, a rehearsal,” he said. “They permit audiences to mourn and to acknowledge the reality of their own death.”

Yet they raise more questions than they can or care to answer. What makes us special? Do we, as in the case of “Manifest,” return with a mission or calling? Are there others like us? Are we in danger, or are we among the chosen? Will we get the chance of a do-over?

Matters of faith are underscored in “Manifest,” as when a startled passer-by drops to her knees at the sight of Cal, the youngest and most insightful of the Flight 828 returnees, chanting, “He is risen.” For people eager to regain some semblance of certainty in a disordered time, these stories exert a powerful pull.

“We’re a very mastery-oriented culture, always wanting answers,” said Pauline Boss, an emeritus professor of family social science at the University of Minnesota and the author of “Ambiguous Loss in a Time of Pandemic and Change.”

“With the spread of the virus, those answers are not necessarily forthcoming,” Dr. Boss said. “We don’t know if we can trust the person at the grocery store, whether or not they have been vaccinated. People are dying apart from their families, and those families may be feeling no sense of closure.

“What we have now is this whole host of ambiguous losses: loss of life, loss of jobs and loss of faith that the world is a safe place.”

“Manifest” will return for a fourth and final season, though Netflix has not announced a date. Peter Friedlander, who heads Netflix scripted series in the United States and Canada, said the series resonates with viewers because of their insatiable craving for mystery.

“It scratches that itch, trying in some way to hypothesize about the great unknown, to explore the notion of revisiting unfinished business,” Mr. Friedlander said. Such fare is a balm as well for people dealing with regret, he suggested, those eager to extract a message of hope from apparently meaningless, ungovernable events.

Sean Cohen, 27, a digital artist in Chicago who posts “Manifest”-inspired illustrations on Instagram, finds solace in the series. “It creates this whole story of how everything that happens is connected,” he said in a direct message on Instagram. There is also the emotional uplift, he said, “of seeing the passengers come together to help one another as the mystery unfolds.”

The show also captivates Princess Louden, 25, a dancer and graduate student in social work in Los Angeles. “‘Manifest’ technically is about something that could never happen,” Ms. Louden said. “It’s not like aliens are invading the planet. But it leaves a little room for all kinds of possibility. That’s what draws me in.”

The show is pure escapism, said Audra Jones Dosunmu, 52, a talent manager in the fashion and entertainment industries. “But there is also the idea that ‘There but for the grace of God go I.’”

“In a way I think of these shows as crisis pornography,’” Ms. Dosunmu added. “People like to see others going through things that they could never manage. But if that makes them feel thankful and better about their own lives, it’s a good thing.”

Many of the shows offer the tantalizing possibility of rescue and redemption, reassuring fans that, as is repeated like a mantra on “Manifest,” “all things work together for good. …”

In “Katla,” the dead, rise naked and covered in ash, a volcano erupts.

On “Manifest,” the risen heed inner voices urging them to acts of heroism. Michaela responds to a “calling” to free two teenagers trapped in a killer’s lair. In “Glitch,” a young woman sets out to confront her rapist and murderer. In “Katla,” estranged sisters, one of them dead, work at mending their frayed relationship; and in “The Returned,” a serial killer in a former life learns to rue and curb his lethal impulses.

These shows explore the prospect of a second chance, of tackling unfinished business, revisiting relationships, and dealing with regret, Mr. Friedlander said. “They let you look at the choices you’ve made and reflect on your priorities and values.

“It’s that sliding-door scenario that asks, ‘What if I could say one more thing to that person I’ve lost?’”

Complete Article HERE!

Grieving For Papa, Grieving With Others: My Día De Muertos Diary

When the author’s father died suddenly two years ago in Colombia, the Catholic Church mourning rituals offered little comfort. Two weeks ago, by chance in Mexico City for the annual Día De Muertos (Day of the Dead) celebrations, she finally discovered how these ancient celebratory rituals for the departed can help face the pain, and find true peace.


Mexico’s Día de Muertos, a “magical celebration of death”

By Laura Valentina Cortés Sierra

In my native country of Colombia, when someone dies, the process of mourning is almost always turned over to the Catholic Church. It starts with the wake, set in aseptic shiny salons, surrounded by dozens of other identical rooms, each family has to welcome people who come to give their respects for days, amid religious symbols and white flower crowns. The lonely rituals are interrupted only by the occasional unrequested words of advice from friends or clergy about the right way to mourn.

For my first 22 years, I’d observed all of this with mild irritation from a distance at the few wakes and funerals I’d attended. Then, one Easter week, the family crying desperately in the center of the cold room was my own.


I lost my dad, who was a perfectly healthy recently retired physical education teacher, to a cardiorespiratory stroke while he was sleeping. He was just 65.

Overshadowed by religious rituals

My foggy memory from those horrid days included comments from supposed well-wishers like “Stop crying, God knows what he’s doing,” “It was God’s will” or “maybe God is trying to teach you something.” The misplaced advice made me feel isolated and lost. Since I was young, I had no longer considered myself a Catholic; but even more so I wanted desperately for my dad to be the center of his own funeral, and did what I could by placing photos over the cold brown coffin, playing his favorite songs while he was lowered in his grave, and sharing a song my brother and I wrote on his online memorial.

I never imagined grief could feel so lonely when you are a non-religious person in a Catholic country like Colombia. Even the flower crowns and visits from friends were overshadowed by the religious emphasis and obligations, such as praying nine nights in a row and repeatedly being encouraged to cross myself. They were demands of a religion I didn’t want to be part of, with the unspoken message that this was the only possible guidance on how to grieve for my dad.

Altars in Mexico City on Día de Muertos

A shot of memory, breaking grief taboo

Fast forward two and a half years to the final week of October 2021. I’d arrived in Mexico City for a Latin American journalism conference, and after landing realized my visit happened to coincide with Día de Muertos. These “Day of the Dead” festivities are celebrated between October 30 and November 2, in which Mexicans welcome with an altar their deceased loved ones whom they believe come to visit the living on these dates each year. In this festivity of Aztec origins, Catholic rituals of popular tradition intertwine, a smooth syncretizing of cultures and faiths.

Candles smoothly twinkled over a small table while yellow petals framed the photographs of loved ones.

I’d heard of Día de Muertos, and from a distance, it had seemed colorful and attractive, and the movie Coco had given a fascinating glimpse of how its fantastic visuals and music could create a magical celebration of death. Still, this was the first time I’d experienced it myself, and still facing the unresolved grieving for my father.

I arrived for the first Halloween parties, just a few days before Día de Muertos. Between Tamarindo Smirnoff’s sweetly-spicy burning flavor, young Mexicans started telling the stories of their deceased in front of the host’s altar. Candles smoothly twinkled over a small table while yellow petals framed the photographs of loved ones. A small cross above and a tequila bottle, of the favorite brand of the deceased, lay on the table. One by one, the friends each shared memories of a relative they’d lost including a high school friend that had died in a car accident.

The combination of joy and death had always seemed so alien to me, yet at that party I felt it for the very first time. Mexican journalist and friend Paul Antoine Matos gave me his first book, Embellecedores de Huesos (“Beautifiers of Bones”) in which he narrates the unique custom of Pomuch town citizens of cleaning their deceased bones year by year to somehow bring them back. One of the locals of Pomuch said to him “The environment during these days is festive and joyful, because you feel that your family is by your side.” I felt the warm and slightly overwhelming reality of being part of a huge group of people all grieving someone at the same time. It is an intense throat-tightening cocktail of emotions that I can only describe as a national hug.

It was so far from the awkward silences I knew back at home when someone asked about my parents, and I had to answer that my papa passed away. Far from the heavy religious judgment when people assumed I was angry at God because my dad had died. Here I was listening to people my age remembering and honoring the memory of those they lost while having some shots to definitively break the taboos I’d been surrounded by since losing my father.

A city of grief, joy, memory and resistance

The tall buildings and old houses of the busy metropolis of Mexico City during this time of the year are colored yellow and lilac. The orange-toned flower represents life and the sun, and the purple refers to loss and mourning. Both are Cempasúchil, the flower of the dead according to the Aztecs, as it’s thought that its petals are able to keep the heat of the sun and shelter the dead while their aroma guides their soul’s return.

The altars are everywhere, from museums to bars. One of the first ones I saw was in The Museum of Memory and Tolerance, where the message “phobias that kill, the colors of grief” was displayed by the Pride flag. Then I visited the massive altar in the center of Coyoacán in which, under the big bell of the central plaza, candles, skulls, flowers and photographs shared the space with messages for femicide victims “not even one more killed,” for migrants “for all those that died trying to cross our borders” and for journalists “for the journalists that have died reporting.”

My mind was transported to my homeland, 1,900 miles to the south. I cried, sheltered by the loud masses and the dim lights of the altar. Colombia, a country where defending human rights represents a mortal danger and more than 1,200 social activists have been killed after believing in a badly implemented peace treaty in 2016. Mexico has its own plagues, like currently being the country where more journalists are killed in the world. Though not for a direct loved one, my grief was irrepressible.

Catrinas” participate in a silent procession in memory of the victims of femicide, on the Día de Muertos in Saltillo, Mexico. 02 November 2021.

Mexico and Colombia, a shared history

Mexico and Colombia share a history of colonization, massacres and social mobilization. Two countries that lead the rates of environmental and human rights defenders killings. Two countries where gender-based violence is a pandemic. In Colombia, in 2019, every day 95 girls denounced sexual violence. In Mexico from January to May 2021, there have been 423 femicides. I cried for them, I cried from a deeply engrained grief I knew I had but never before came pouring out. A peacefulness and solemnity I didn’t know could come with grief.

I was transported to 2016 when I marched for peace in Colombia with my dad. We all had so much hope in the treaties that were being negotiated. We all deserved a different country. My dad taught me to doubt politicians, to truly care about the well-being of others, to give generously, and listen patiently, even if the world is not always kind in return. I remember the Club Colombia beer he drink with lunch and the way he silently cried sometimes when music invaded him, regardless of the genre. He was a sensitive and curious soul. In love with this world and always teaching me about it. I wish we had walked between the trees of Mexico City together. I wish I didn’t have to write this piece.

I dried my tears and kept exploring the packed streets of Frida Kahlo’s neighborhood, slightly terrified by the people with Pennywise and Chucky costumes. It was fascinating to see Mexicans and tourists of all ages impersonating superheroes, witches and catrinas. The omnipresent skeleton representation of a woman is the death that comes to visit. It is a symbol with origins in a reinterpretation of the Aztecs Goddess of death by José Guadalupe Posada, who wanted to communicate with the satirical attire that no matter how rich or poor you are, we will all end up as skeletons.

Gratitude and sharing

Ecuadorian, Guatemalan and Colombian journalists, as well as other Latinxs, we all felt so lucky to have experienced a conference in Mexico city on these particular dates. We even participated in the rituals that showcased the exceptional relationship that Mexicans have with death. On our last day together, one of the Mexican delegates at the conference offered to share his altar with those of us who had lost someone.

During the conference, we got the news a dear journalist for all of us had suddenly lost her boyfriend. She was not able to travel to Mexico, but we all felt her close to our hearts. Even if she was back in Venezuela, we put her boyfriend’s photo on the altar. It shared the place of honor with a picture of my dad, who died two-and-a-half years ago; with the photo of my Ecuadorian friend’s mama, who left nine years ago, with the drawings of my Colombian friend’s papa and best friend, each departed just a few months ago.

In the land of death and the Día de Muertos celebration, there is no place for hierarchies or differences in the right to grieve depending on how old or recent your loss is. In Colombia, the masses to commemorate my papa’s death become less frequent with time, and the only thing mentioned now is his name.

The possibility to return to the world of the living, to reunite with our people, to resurrect…

That 30th of October on a white Altar with a few candles, our missed ones shared a mezcal bottle and the Yucatan region Pibipollo, tamale-like chicken pastry, cooked in a hole under the earth, “a metaphor of burial” as my friend Matos described it. Mexico was hosting our Latin American ancestors for a feast on a celebration where the bridge stands between life and death, a bridge called remembrance, as the song in Coco successfully imprinted on us.

Hugging, and letting out tears of happy nostalgia, we remembered their favorite songs, their happiest moments, their favorite outfits and even their very human defects. We felt embraced both by them and by each other. Mexico was giving me a sense of collective grief and accompaniment I never imagined possible. Mexico was healing a part of my heart that was angry at the world for not listening to my desperate scream for community and empathy. Grief acquired a surprising new taste of gratitude.

“It is a beautiful gesture of gratitude that the Mexicans have towards those who have gone before us. From them, we inherit the land, culture, education and life” fellow Colombian Julián de Zubiría Samper wrote in a recent article in El Espectador about Día de Muertos. “What this millenary custom shows us is that we have to thank those who gave us life and speak again with those who left sooner than expected.”

Connection beyond religion

I remember one of my worst memories of grieving back at home when a priest gave a eulogy centered on my father’s duty to repent and accompany a God he didn’t really adore. Now, instead, this ancient Mexican rite was giving my dad a singular place of importance, not that of a priest’s pawn or a subject of God.

“The Day of the Dead is the possibility that we all have to return to the world of the living, to reunite with our people, to resurrect,” Matos wrote in his recent book. Despite being a Catholic country as well, the eclecticism of its beautiful syncretic traditions rooted in precolonial cosmovisions was allowing my dad to come back for something like a real-life chat with me as we shared a few Mezcales and a shot of tequila (though I know he’d prefer a beer!).

I don’t know if something inside has healed permanently or if it was more like a breath of fresh air before going back to feeling the same isolation when I return to Bogotà. What I do have now is a place where I can sit once a year and feel closer to the signs Papa keeps sending me. I’m not sure in which city, but from now on my dad will always have an altar he can come to visit. Who knows, we might get to share his favorite Colombian beer next time.

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