Nobody Likes Dealing with Death

— Until They Attend One of Amy Pickard’s Humorous ‘Good To Go!’ Parties

By Cheryl Maguire

When Amy Pickard’s mother died suddenly in 2012, she was understandably grief-stricken. But she also felt frustrated and overwhelmed, since her mother didn’t plan ahead for her death.

“I would have given anything to talk to my mom just one more time, but it wasn’t to hear her tell me she loved me; I needed her to tell me the friggin’ Wi-Fi password!” Pickard says.

Since her mother lived far away, Pickard didn’t know what bills needed to be paid or what to do with her mother’s now-deceased body.

“I just said, can you put her [body] on ice? Because I have no idea what is going on,” Pickard recalls. In an effort to normalize death and create a death-positive movement, Pickard teaches people how to throw a death party and add some humor to the inevitable and often daunting end-of-life duties.

Dealing with uncomfortable death duties

Pickard refers to all of the different decisions that need to be made and tasks that need to be completed after someone dies as “death duties.” She says these duties are “the hellscape of details forced upon a grieving loved one after their person dies.” This includes responsibilities such as cleaning their house and sorting their belongings, making funeral arrangements, settling their finances and closing their estate.

After her horrible experience with her mother’s death duties, Pickard wanted to help others avoid the same issues. “I was preaching the gospel of advanced planning to my friends,” she says. Surprised at how her friends took to the lessons, Pickard thought, “I have a message here. And it’s landing.”

In 2014, she created a long list of questions related to when someone dies. The list was a booklet called Departure File, which she still sells today. She included, “all the minute, everyday things that came up that I had no answer to, like ‘Do you have a storage space?’”

“Good To Go!” death parties are changing the narrative

Pickard realized most people think of death and dying as morbid and creepy, so they don’t like to talk about it. She also knew most people would probably not want to answer the questions in the Departure File, so she decided to create a party where everyone filled out the answers.

“I thought, ‘I’m a good communicator, I’m an extrovert and I have a sense of humor, so why not have a party?’” she says.

During the parties, Pickard tapped into her sense of humor by creating death-themed soundtracks with songs like “Another One Bites the Dust” and “Stairway to Heaven.” She also had everyone bring a potluck dish based on the recipe of a loved one.

She didn’t have a business plan when she started; instead, she learned as she went along and as her business evolved. Her parties are now referred to as “Good To Go!” parties, though guests have also described them as “Death Tupperware Parties” or “Fete du Mort” shindigs.

People who attended the initial parties “were blown away by it—all of us felt a beautiful kind of electricity in the room,” Pickard recalls, noting that no one else was hosting these types of events. “It is unbelievable how important this is, and how in denial our entire society is over the one absolute positive thing that we know with 100% certainty is going to happen,” she says.

Normalizing the death-positive movement

In a bid to overturn this cultural thinking, Pickard considers herself to be part of the death-positive movement—a way of thinking that encourages people to have end-of-life celebrations and speak openly about death, dying and corpses.

The modern-day concept of the death-positive movement dates back to the 1970s, but the death-positive movement was further popularized in 2011 by Caitlin Doughty, a mortician who believes people should change their perceptions about death. On her website, The Order of the Good Death, Doughty says death should be a part of your life. “Accepting that death itself is natural, but the death anxiety and terror of modern culture are not,” Doughty states on her website.

When Pickard’s father died, the experience was opposite that of her mother’s death. Pickard attributes that to the fact that he filled out the Departure File and talked openly with her about advanced planning. When she first created the Departure File, she wanted to help others and didn’t consider how it could one day help her. Like her mother, her father died suddenly. When he was intubated in the hospital, she gave a copy of his Departure File that included his advanced care directive to the staff. Their response was, “No one ever does this. This is amazing.”

Before Pickard’s father passed away, she said to him, “You know that everything is taken care of.” She says the look of peace on his face in response brought her comfort. It was at that moment she understood that advanced planning also brings peace to a person before they die.

“It was such a weird, ironic moment that the company that I created for others actually helped me and helped my grief,” she says. “With [my dad’s] instruction, I felt empowered. I felt I was honoring him.” The directions he provided also eliminated any uncertainty she may have faced making decisions about duties related to his death.

Planning for death is planning your life

Even though “Good To Go!” parties are humorous and lighthearted, there are still times, understandably, when people are grieving. Pickard handles these situations by offering a tissue and trying to help them understand that, “when you plan for your death, it’s actually planning your life.”

She explains that people prepare for natural disasters by stocking up on candles and getting a generator, but they don’t plan for their death. “We spend more time building a burrito than we do thinking about what we want to happen when we die,” she says. Advanced planning is a way of letting people know how you want to be remembered, she adds.

Pickard recently expanded her business to help people declutter their homes while simultaneously creating advanced planning regarding their material things. She refers to this task as legacy organizing.

“I am helping people organize their homes for their death,” she says. She explains that her services are similar to that of a “death concierge.” She says, “I encourage people to clean out their places with their families. And that way, you make new memories. It’s actually fun.”

This lighthearted approach to death and advanced planning underscores Pickard’s mission with “Good To Go!” parties. “I’m not a doctor; I’m not a lawyer. I am just literally a girl that’s lived through grief and wants to help other people get through it too.”

Complete Article HERE!

Death Cafes

— Where people talk mortality over tea and cake

Death Cafes can be held anywhere but one of the golden rules is there will be ‘refreshing drinks and nourishing food – and cake!’

The meet-ups are intended to offer a judgement-free and respectful space to discuss the end of life

By

Once a month, in countries from Afghanistan to Zimbabwe, people are gathering to eat cake and talk about the typically taboo topic of death.

At Death Cafes, said Emma Freud in The Times, people with a range of interests in the subject come together to discuss “the end of life experience in any of its forms”, in what is widely viewed as part of the “death positive” movement.

The background

Death Cafes were founded by Jon Underwood and his mother, Sue Barsky Reid, a psychotherapist. They were inspired by the work of Swiss sociologist Bernard Crettaz, who had developed a project called Café Mortel, where people would gather to talk about death.

The first Death Cafe in the UK was held at Underwood’s home in Hackney, east London, in September 2011. It was a “wonderful occasion”, said the Death Cafe website, and more were then held in places including “funky cafes, people’s houses, cemeteries, a yurt and the Royal Festival Hall”.

The four rules are that Death Cafes are offered on a not-for-profit basis; in an accessible, respectful and confidential space; with no intention of leading people to any conclusion, product or course of action; and that cake is offered. The gatherings are a “discussion group rather than a grief support or counselling session”, said the website.

Death Cafes spread nationally and internationally, with the first overseas version held in Columbus, Ohio, in 2012. There have now been more than 18,000 groups worldwide, but “they seem to be most prevalent in countries where people are uptight about the subject” and “hence we have more than 3,400 in the UK”, said Freud.

Underwood died suddenly in June 2017, at the age of 44, and Death Cafe is now run by his mother and his sister, Jools Barsky.

The latest

Visiting a Death Cafe in London, Freud found “there were no formal objectives” or “grief counselling”, but there was “tea and, naturally, cake – that great lubricant of awkwardness”. The discussion was “riveting” and free of “small talk”. A woman with terminal cancer spoke and “because we were strangers, her words had no consequences she would need to deal with, and that seemed to set her free”.

After joining a Death Cafe in Willesden, northwest London, Gaby Wine wrote in The Jewish Chronicle that it was “heart-warming” that “while not everyone agrees with one another, everyone shows great respect”. Despite the subject matter, she had a “surprisingly jolly chat”.

Attendees will “seamlessly switch” between “sombrely discussing subjects like the difference between suicide and medical aid-in-dying” to “joking about the sayings they’d want written on their tombstones”, said The Huntington News.

The reaction

A newcomer to her area, Freud “learnt more about the soul of my neighbourhood in those two hours than I had in the previous two months”. There was “joy” in the “deep connection with a hall full of strangers”, the “licence to show vulnerability without judgment” and “the privilege of being granted access to the most tender and unprotected place in the hearts of my neighbours”.

During the Victorian era people hired professional mourners to “weep” at burial sites and funerals and help attendees “feel safe enough to do the same”, said Anna Wolfe on Huck. And “in a way” Death Cafes provide “something similar”.

Meanwhile, if you want to find or even host one, check the organisation’s website. It’s easy to set one up, wrote Wolfe. “All you need is a set of Death Cafe guidelines, a venue and the ability to bake or buy a pack of Mr Kipling’s.”

Complete Article HERE!

Many Patients Don’t Survive End-Stage Poverty

By Lindsay Ryan

He has an easy smile, blue eyes and a life-threatening bone infection in one arm. Grateful for treatment, he jokes with the medical intern each morning. A friend, a fellow doctor, is supervising the man’s care. We both work as internists at a public hospital in the medical safety net, a loose term for institutions that disproportionately serve patients on Medicaid or without insurance. You could describe the safety net in another way, too, as a place that holds up a mirror to our nation.

What is reflected can be difficult to face. It’s this: After learning that antibiotics aren’t eradicating his infection and amputation is the only chance for cure, the man withdraws, says barely a word to the intern. When she asks what he’s thinking, his reply is so tentative that she has to prompt him to repeat himself. Now with a clear voice, he tells her that if his arm must be amputated, he doesn’t want to live. She doesn’t understand what it’s like to survive on the streets, he continues. With a disability, he’ll be a target — robbed, assaulted. He’d rather die, unless, he says later, someone can find him a permanent apartment. In that case, he’ll proceed with the amputation.

The psychiatrists evaluate him. He’s not suicidal. His reasoning is logical. The social workers search for rooms, but in San Francisco far more people need long-term rehousing than the available units can accommodate. That the medical care the patient is receiving exceeds the cost of a year’s rent makes no practical difference. Eventually, the palliative care doctors see him. He transitions to hospice and dies.

A death certificate would say he died of sepsis from a bone infection, but my friend and I have a term for the illness that killed him: end-stage poverty. We needed to coin a phrase because so many of our patients die of the same thing.

Safety-net hospitals and clinics care for a population heavily skewed toward the poor, recent immigrants and people of color. The budgets of these places are forever tight. And anyone who works in them could tell you that illness in our patients isn’t just a biological phenomenon. It’s the manifestation of social inequality in people’s bodies.

Neglecting this fact can make otherwise meticulous care fail. That’s why, on one busy night, a medical student on my team is scouring websites and LinkedIn. She’s not shirking her duties. In fact, she’s one of the best students I’ve ever taught.

This week she’s caring for a retired low-wage worker with strokes and likely early dementia who was found sleeping in the street. He abandoned his rent-controlled apartment when electrolyte and kidney problems triggered a period of severe confusion that has since been resolved. Now, with little savings, he has nowhere to go. A respite center can receive patients like him when it has vacancies. The alternative is a shelter bed. He’s nearly 90 years old.

Medical textbooks usually don’t discuss fixing your patient’s housing. They seldom include making sure your patient has enough food and some way to get to a clinic. But textbooks miss what my med students don’t: that people die for lack of these basics.

People struggle to keep wounds clean. Their medications get stolen. They sicken from poor diet, undervaccination and repeated psychological trauma. Forced to focus on short-term survival and often lacking cellphones, they miss appointments for everything from Pap smears to chemotherapy. They fall ill in myriad ways — and fall through the cracks in just as many.

Early in his hospitalization, our retired patient mentions a daughter, from whom he’s been estranged for years. He doesn’t know any contact details, just her name. It’s a long shot, but we wonder if she can take him in.

The med student has one mission: find her.

I love reading about medical advances. I’m blown away that with a brain implant, a person who’s paralyzed can move a robotic arm and that surgeons recently transplanted a genetically modified pig kidney into a man on dialysis. This is the best of American innovation and cause for celebration. But breakthroughs like these won’t fix the fact that despite spending the highest percentage of its G.D.P. on health care among O.E.C.D. nations, the United States has a life expectancy years lower than comparable nations—the U.K. and Canada— and a rate of preventable death far higher.

The solution to that problem is messy, incremental, protean and inglorious. It requires massive investment in housing, addiction treatment, free and low-barrier health care and social services. It calls for just as much innovation in the social realm as in the biomedical, for acknowledgment that inequities — based on race, class, primary language and other categories — mediate how disease becomes embodied. If health care is interpreted in the truest sense of caring for people’s health, it must be a practice that extends well beyond the boundaries of hospitals and clinics.

Meanwhile, on the ground, we make do. Though the social workers are excellent and try valiantly, there are too few of them, both in my hospital and throughout a country that devalues and underfunds their profession. And so the medical student spends hours helping the family of a newly arrived Filipino immigrant navigate the health insurance system. Without her efforts, he wouldn’t get treatment for acute hepatitis C. Another patient, who is in her 20s, can’t afford rent after losing her job because of repeated hospitalizations for pancreatitis — but she can’t get the pancreatic operation she needs without a home in which to recuperate. I phone an eviction defense lawyer friend; the young woman eventually gets surgery.

Sorting out housing and insurance isn’t the best use of my skill set or that of the medical students and residents, but our efforts can be rewarding. The internet turned up the work email of the daughter of the retired man. Her house was a little cramped with his grandchildren, she said, but she would make room. The medical student came in beaming.

In these cases we succeeded; in many others we don’t. Safety-net hospitals can feel like the rapids foreshadowing a waterfall, the final common destination to which people facing inequities are swept by forces beyond their control. We try our hardest to fish them out, but sometimes we can’t do much more than toss them a life jacket or maybe a barrel and hope for the best.

I used to teach residents about the principles of internal medicine — sodium disturbances, delirium management, antibiotics. I still do, but these days I also teach about other topics — tapping community resources, thinking creatively about barriers and troubleshooting how our patients can continue to get better after leaving the supports of the hospital.

When we debrief, residents tell me how much they struggle with the moral dissonance of working in a system in which the best medicine they can provide often falls short. They’re right about how much it hurts, so I don’t know exactly what to say to them. Perhaps I never will.

Complete Article HERE!

We’re all going to die someday.

— Toronto ‘death cafés’ offers a new way to get comfortable with that fact

Death-care practices vary according to culture and religion and many death doulas argue that in western cultures there’s still a lingering taboo around frank talk about death, something that makes it harder for many to deal with death, dying and grieving.

“We’ve heard the saying that it takes a village to raise a child. That village is equally important at the end of our life as it is in the beginning.”

BY Christine Sismondo

After more than a decade living side by side on a quiet street in Toronto’s east end, Fiona* and her partner Lorraine* had become close friends with their neighbour Tony.

“Lorraine and Tony talked all the time,” said Fiona. “When he started getting older and lived on his own, she helped him with errands and grocery runs. I mowed his lawn.”

When Tony was diagnosed with inoperable cancer in 2018, Fiona started cooking for him and filling in when support workers and nurses weren’t on duty.

When it came to preparing to die, though, the couple decided Tony needed more help than they could offer.

They enlisted the help of a death doula: someone who is trained to help with emotional and physical support as well as education about the end-of-life process.

In the last couple of days of Tony’s life, Fiona slept on the couch next to his bed. The doula and Lorraine sat with him until he died.

What struck Fiona as most remarkable, she said, was the “ceremony of it all.” Lorraine and the doula washed Tony’s body and sat with him for hours after he passed.

“I think, in a lot of western cultures, people don’t want to hang out with a person’s body after they’ve gone,” she said. “This felt like helping him to move on and there was a level of comfort in it that helped all of us.”

Death-care practices vary according to culture and religion, and many doulas argue that in western cultures there’s a lingering taboo around frank talk about death, something that makes it harder for many to deal with death, dying and grieving.

That started to change 20 years ago with the first “death café,” an initiative launched by a recently widowed Swiss sociologist named Bernard Crettaz. The concept — usually a scheduled group discussion about death among people from all walks of life (not to be mistaken for grief counselling) — has since spread and evolved.

“Now there are ‘death salons,’ ‘death dialogues’ and ‘death book clubs,’” said Kayla Moryoussef, who works with Toronto’s Home Hospice Association and has her own practice, the Good Death Doula. “There’s even a ‘death over drafts’ thing where people meet in bars to drink and talk about dying and death.”

Probably the biggest change to the death café model in Toronto has been that, pre-pandemic, the Home Hospice Association’s death cafés were held in bricks and mortar spaces. When the pandemic forced the cafés online and they no longer had to worry about venues and attendance, it allowed the association to offer more niche programming, such as cafés for parents, pet lovers caregivers and “spoonies” (people experiencing chronic pain).

“I came up with the idea for a spoonies death café because, as a person with chronic illness and disability, I know my relationship with dying and death is fundamentally different than my peers, — especially peers my age,” said Moryoussef, who is now in her late 30s.

The mission at the Home Hospice Association is to offer distinct programming for different communities in the name of accessibility and equitability.

“The reason we even got into this death doula training, development and mobilization was because we could see that our health-care system was not going to be able to keep up,” said Tracey Robertson, a doula and co-founder of Toronto’s Home Hospice Association.

Even if our health-care system could bounce back from its current state, most medical training is about finding cures, and many doctors receive little or no training when it comes to talking about death.

“We’ve all heard the saying that it takes a village to raise a child — we always say that village is equally important at the end of our life as it is in the beginning — some may even say more important,” said Robertson.

Death cafés are part of the foundation for that vision, she explained, because you can only build that village after death is normalized and communities are more comfortable talking about it.

“All it requires is for all of us to just get a little bit more comfortable with the fact that we all are going to be there one day,” said Robertson. “How can we help our neighbour who is faced with the reality of sitting in a doctor’s office and hearing words none of us ever want to hear?”

Complete Article HERE!

The Day Ram Dass Died

— He taught me to be more curious, present, and self-loving. His final lesson was more surprising.

By Christopher Fiorello

I woke up every thirty minutes the night before Ram Dass died. Stretching my perception through the big divider that separated his study—where I lay on a narrow couch—from his bedroom, I’d count the seconds between the short, ragged breaths churning through his sleep-apnea machine.

Four years later, I still have no idea why I was chosen to watch over him that night. I was at the bottom of the caregiver pecking order when it came to things directly related to Ram Dass’s body. I lacked the size and strength to transfer him from bed to wheelchair, or wheelchair to recliner, on my own; was too much of a novice to help organize his schedule or coördinate with his doctors; and was too unfamiliar to offer intellectual comfort in the rare moments that he wanted to talk. I’d met him ten months earlier, had his voice in my head for just three years. There were people in the house, on Maui, who had known him for more than three decades.

Before arriving, I had no formal medical training, but I had done three weeks of volunteering at a hospice facility in anticipation of coming to the island. Most of it involved moving Kleenex and changing the amount of light in empty rooms. Several times I sat with the dying. It was overwhelming to look at their closed eyes, feeling the heaviness in the room, the sense of something happening or about to happen. I scanned their faces for signs of pain, of fear or bliss, of transcendence. Through the palliative haze of opioids, they were impossible to read. No one was thrashing in pain; no one was smiling, either.

But it somehow buoyed me, being so close to death. The heaviness seemed critically important to my spiritual growth. I imagined myself giving peace to the dying through my presence, and in the process conquering my own fear of leaving life behind.

During my time with Ram Dass, I flitted constantly between self-righteousness and self-pity, one day indulging in grandiose fantasies that I was the heir to his legacy, charged with scattering his ashes, and the next imagining that everyone in the house hated me. The caregivers called it the classroom or the fire—a site of purifying work, a pathway to enlightenment.

My own work, purifying or otherwise, consisted mostly of handling various chores needed to keep a six-bedroom cliffside home with a pool, guesthouse, and two-acre yard going. For the bits that mattered—the scrubbing and the laundry and the cooking—there was a team of cleaners and a rotating cast of chefs. I ended up doing a lot of the rest: separating recycling, washing dishes, and replacing cat-scratched screens. There were three other caregivers in the house, and I was given a modest salary, plus my own room, meals, and shared access to a truck. I was an employee, but most days the house felt like a family, for better or worse.

Still, this was only the second time I’d been asked to spend the night in the study. It was generally perceived as an act of intense devotion: accepting a horrible night’s sleep, on a couch that reeked of cat pee, while facing the prospect of Ram Dass dying on your watch. I hated it, but I was there to care for the guy however it was decided that he needed care.

Most of the deciding was done by a woman affectionately dubbed Dassi Ma, a seventysomething lapsed-Catholic firecracker from Philadelphia. Dassi Ma was Ram Dass’s primary caretaker, and, though she no longer did the more strenuous physical tasks, she was still in command of what he got and when, often more so than Ram Dass himself. He was eighty-eight, and his health had been steadily deteriorating owing to a host of issues, including chronic infections. When I moved to Maui to be near him, in February, 2019, he had almost died the night I arrived. He bounced back, to everyone’s surprise but his own. “It wasn’t time,” I remember him saying in his stoic way, neither relieved nor disappointed. Now he had another spreading infection, and what appeared to be a cracked rib from being transferred to and from his wheelchair.

Ram Dass’s life is the subject of multiple documentaries, an autobiography, and a docuseries in development starring “High Maintenance” ’s Ben Sinclair. He was born Richard Alpert in 1931 to a wealthy Boston family. His pedigree was sterling: a Stanford psychology Ph.D., tenure track at Harvard, visiting professorship at Berkeley. In 1963, after five years at Harvard—much of it spent studying psychedelics with his fellow-psychologist Timothy Leary—he was fired for giving psilocybin mushrooms to an undergraduate.

He bopped around for a few years, often taking obscene amounts of mind-altering substances with Leary at the Hudson Valley estate of his friend Peggy Hitchcock. In 1967, like so many other Westerners of the time, he travelled to India in pursuit of exotic answers to life’s biggest questions. He’d grown disenchanted with the psychedelic world, which had come to seem rotely defined by highs and comedowns. In India, he met a Californian hippie named Kermit Riggs and followed him to a village called Kainchi, in the Himalayan foothills, to meet Riggs’s guru.

The guru was an old, squat man named Neem Karoli Baba. Before long, an enthralled Alpert was reborn as Ram Dass, or roughly “servant of God.” He returned to America later that year, arriving at the airport dressed in white robes and with a long, scraggly beard, and began his career as a spiritual teacher. Most of what he talked about, from 1967 to his death, were the experiences he had with Neem Karoli Baba, whom he called Maharaj-ji (“great king”), and the spiritual beliefs that emerged from those experiences.

One of his main ports of call became death and dying. In 1981, he co-founded the Dying Center, in Santa Fe, an organization that described itself as “the first place specifically created to support and guide its residents to a conscious death.” The center sought, in effect, dying people who wanted to use their death to become spiritually enlightened, and staff members who wanted to use other people’s deaths to achieve the same. Even before the Dying Center took shape, Ram Dass was lecturing on the spirituality of death, its place in the natural order, and the starkly contrasting way that he believed it was perceived in the East. His teachings were rooted in a specific vision of metaphysical reality, as informed by his guru and by the Bhagavad Gita, a sacred Hindu text. Roughly, he believed in nondualism, that there existed an unchanging and absolute entity—the Hindu Brahman, which Ram Dass more frequently called God, the divine, or oneness—from which all material reality came. Included in that reality were souls (something like the Hindu atman), which by their nature were caught in the illusion of their separateness from God, repeating a cycle of birth, suffering, death, and reincarnation until they remembered their true nature as part of the oneness—that is, until they became enlightened.

Death could be a crucial moment for remembering this nonduality, as it was when the “veil of separateness” was thinnest. In his 1971 book, “Be Here Now,” which has sold more than two million copies worldwide, Ram Dass summarizes his views: “You are eternal . . . There is no fear of death because / there is no death / it’s just a transformation / an illusion.”

He often spoke to crowds afraid of dying, repeating that he had “no fear of death.” He sat with people on their deathbeds and talked routinely about the power of “leaving the body,” his efforts to “quiet himself” so that the dying could see where they were in the reincarnation process and do what they could to escape it. His stories were sometimes graphic—people dying prematurely, or dying in tremendous pain—but always tinged with a lightness and humor.

Perhaps Ram Dass’s most memorable remarks about death came not from his own mind but from a woman named Pat Rodegast, who claimed she had channelled a spirit named Emmanuel from 1969 to her death, in 2012. Rodegast was working as a secretary, raising children, and practicing Transcendental Meditation when she began to see a light, which evolved into what she called telepathic auditory guidance. Some of that guidance was captured in three books published in the eighties and nineties, two of which came with forewords from Ram Dass. According to Ram Dass, when he asked Emmanuel what to tell people about death, Emmanuel replied that it was “absolutely safe,” “like taking off a tight shoe.”

I first encountered the voice of Ram Dass in 2016. I was twenty-seven and living in New York, in a Chinatown building that rattled every time an empty box truck drove down First Avenue. Each morning, I tumbled down five flights of sticky stairs and placed one of his talks deep into my ears, letting his distinct blend of scientific erudition and spiritual mysticism carry me across town.

He had a habit of segueing from psychological concepts, like attachment theory and childhood trauma, to cryptic ones, like Emmanuel’s messages and the astral plane, pausing briefly to ask listeners if they could really, truly “hear this.” He seemed to build on the insights of others who had revolutionized end-of-life care in America—thinkers such as the psychiatrist Elisabeth Kübler-Ross—but also spoke in the New Age argot of Alan Watts. I gobbled it all up, feeling my spiritual life deepen exponentially by the day. His lectures made me more prosocial, more anti-capitalist, more curious, and decidedly more self-loving.

This was my second rodeo with spirituality; growing up, a rigid strain of Protestantism had been foisted on me like a chore. In Kansas City, Missouri, I was enveloped by an atmosphere of creationism, tent revivals, and anti-abortion screeds. I still recall standing on a busy street as a six-year-old and holding a sign that read “Before I Formed You in the Womb I Knew You—God.”

The teachings of Ram Dass were nothing like that. They were straight out of the hippie movement, and seemed to license a more liberal, self-directed search for meaning. As the grind and filth of Manhattan wore me down, Ram Dass’s voice became a salve, a way to “wake up to the illusion of our separateness.” I turned to his work again and again—to ease my loneliness when, walking down the street, droves of people moved around me like I was a light post, or to arrogantly tell my ex-girlfriend that we would always be “together,” even though I’d already dumped her.

After a couple of years, I learned that I could actually meet Ram Dass, for free, by signing up for one of his “Heart-to-Hearts”—a one-on-one, hour-long Skype call he offered as a sort of public service. When my time came, and the man appeared onscreen, I was stunned into silence. I had thought of him as a spry, ethereal figure who existed only in decades-old recordings. This Ram Dass was very old and lived with fairly advanced aphasia, a side effect of a major stroke he’d had in 1997. His speech was slow—in our full hour, he said roughly sixty words—but not at all ponderous. I thought it gave him a mystical quality.

There was no format to the session; Ram Dass just smiled his winning smile and listened. At one point, after I’d nervously overshared, he told me, “You take yourself pretty seriously.” That struck me as profound, at least at the time, but what endured was more feeling than words. It seemed he had arrived at a place from which he could find genuine love for strangers like me. It didn’t strike me as brand positioning, or as a form of ego; I didn’t think he loved me in the sense that he wanted to be close, or even that he cared whether we got to know each other. I just believed he saw me as another soul, and that, in his view, made me worthy of kindness.

By then, I was walking around New York, trying desperately to feel connected to anything. I wanted what Ram Dass had. So I left the city, intending, among other things, to get him to show me how to have it.

The friend I’d discovered Ram Dass with had already moved to Neem Karoli Baba’s temple, in Taos, New Mexico. I visited him for a fortnight of cooking group meals, wandering through the snowy high desert, and hobnobbing with Maharaj-ji zealots, including one white teen-ager who insisted that he was the reincarnation of Krishna, one of Hinduism’s most revered avatars. Like the young Krishna of lore, he would steal away to the temple pantry to eat pure butter until caught.

Some of this evoked my childhood church, where kids compared how quickly they could transition into speaking in tongues, or flexed the depth of their personal relationship with Jesus while leading a collective prayer. But this was my first encounter with Neem Karoli Baba devotees; I figured followers would be a bit more mellow the farther I got from his temple. Toward the end of my stay, I met a longtime friend of Ram Dass. He saw that I was eager to do volunteer work—known as seva, Sanskrit for “service”—so, when he learned of my intent to find Ram Dass on Maui, he offered to put in a good word to Dassi Ma.

That recommendation made the seemingly impossible possible. People of all ages came to the island to be near Ram Dass. Some found their way into the group texts for arranging kirtan—living-room chanting sessions at Ram Dass’s house—or beach excursions. A few found opportunities to be useful around the house, or made friends with one of the live-in caregivers, enabling them to drop by every week or so. But to be offered to help care for Ram Dass, for pay, as a virtual nobody, was exceptionally rare.

Upon arriving at the house, I found it shot through with the same quasi-religious fervor I had seen at the temple. I was quickly intercepted by another caregiver and taken to a lean-to, in a nearby pasture, so that I could silently meditate with prayer beads. It was incredibly humid, and I got annihilated by mosquitoes. I returned to the house to find a living room packed with people chanting—mostly the Hanuman Chalisa, a devotional hymn that features verses like “With the lustre of your vast sway, you are propitiated all over the universe.” A collective effervescence filled the room, and I joined along, staring at hundreds of statuettes of religious figures while fighting back the sense that I was in church.

After more than an hour of chanting, we milled about, greeting one another over chai and snacks. Attendees swapped stories of Maharaj-ji’s miracles, told me that my presence must be part of his plan, sat smiling at Ram Dass’s feet, their hands over their hearts. During my year on Maui, Ram Dass’s foundation led retreats at a local resort, where hundreds of people would gather for spiritual talks and chanting. Inevitably, someone at these events would look at me with confusion or pity when I told them my name was Christopher. “He hasn’t given you a name yet?” the person would ask. Ram Dass often bestowed a Hindu name on people: Lakshman, Govinda, Hari, Devi. I was fine with Christopher.

But there were other moments, informal and fleeting, when I witnessed the mixture of play and profundity that first drew me to Ram Dass. One autumn morning, two other caregivers and I were helping him get through his daily routine—brushing teeth and hair, putting on clothes and hearing aids, making the bed—when I turned on Doja Cat’s “Go to Town,” a song I later learned was about cunnilingus. I cranked the volume, and the four of us started dancing with illicit glee. One caregiver jumped on the bed, another swung from the divider between the bedroom and the study, and Ram Dass waved his one mobile hand with bright eyes and a rascally smile.

Another day, I was alone with Ram Dass, helping him pick out a shirt. Though I spent nearly all my time in the house, I could count the hours we had been alone together on two hands, and most of them had involved food and drink, or foot massages, ostensibly to relieve the pain that he felt from diabetic neuropathy. On this day, the house was recovering from Ram Dass having been denied psilocybin owing to his health. I felt sorrow for him; the drug was, after all, the beginning of his spiritual journey more than five decades prior. I asked him if the house ever felt like a prison. A full minute of silence passed, with me standing over him in his walk-in closet. Eventually, he tapped his temple and said, “This is the prison.”

When morning broke on December 22, 2019, and Ram Dass was still alive, I allowed myself a moment of relief. Dassi Ma came up, looking short on sleep, and took his vitals. They were horrible. We snapped into action, trying to comfort Ram Dass until one of his doctors arrived.

The infection had pooled fluid in his lungs, which made every breath a burden. Wet, rattling half-breaths were punctuated by coughs of bloody mucus. He looked wrecked, but still managed a weak smile when his Chinese-medicine doctor told a joke at his bedside.

At some point, Dassi Ma and the doctor began talking in the study; other caregivers were on an oxygen-tank-and-essentials supply run. I was on one side of Ram Dass’s bed; on the other was his longtime co-author Rameshwar Das, a friend since Kainchi. Then Ram Dass started choking.

It wasn’t that different from any of the other horrible breaths he’d taken that morning, except that he just couldn’t breathe it. When he realized this, he turned to me with a look that haunts me even now: light eyes wide as quarters, mouth open, lips a bit rounded. I immediately panicked, calling for Dassi Ma and trying to get his adjustable bed as upright as possible so that he could clear his throat. Then, when that didn’t seem upright enough, I frantically tried to lug his torso up so that his head could hang over his waist; perhaps he could vomit his throat clear.

Thirty seconds had passed since he first lost his breath. Somewhere from near his feet, the doctor snapped at me: “You have to calm down!” It jolted me into an awareness that Ram Dass was dying, right there. Perhaps it did the same for Dassi Ma, because she sprang for the study, returned with a large framed photo of Neem Karoli Baba, and commanded him to focus. “Ram Dass! Maharaj-ji! Maharaj-ji!” she said, placing the photo at the foot of the bed. She told him that she loved him, that he could go. I told him that I loved him. And then Ram Dass stopped trying to breathe.

I was the only person to leave the room. Stumbling into the study, I picked up my phone, hands quivering, and sent word to the other caregivers: “RD’s dying imminently. Like within the next couple of minutes.”

The wind was screaming outside. On Maui’s North Shore, it wasn’t unusual for it to reach thirty, forty knots, rattling the windows and throwing palm fronds across the lawn. That day, it had blown from early in the morning, under a tightly woven blanket of gray clouds. Sitting in the study, I watched it bend the trees, felt the violence of it, indiscriminate.

Ram Dass believed that fear kept us from recognizing our interconnection to all things. “Change generates fear; fear generates contraction; contraction generates prejudice, bigotry, and ultimately violence,” he said. In his teachings, he often placed fear and love on opposing sides of the human experience. Fear was the by-product of the ego; love was the by-product of the soul that remained pure, in the moment, especially at the time of death. “When we are fully present,” Ram Dass wrote, “there is no anticipatory fear or anxiety because we are just here and now, not in the future.”

And yet this binary is precisely what made watching him die so disorienting. I’ve no idea what Ram Dass felt in those final moments, what he could see or hear. I don’t even really know if that was fear I saw in his eyes, though it certainly looked like it. Perhaps it was surprise or another sensation entirely, the rush of emptiness before a huge plunge into something tremendous.

Whatever it was, its existence seemed largely absent from his teachings. There were times when he acknowledged the pain and coarse brutality of death. In his book “Still Here” (2000), he writes:

Dying is often not easy. the stoppage of circulation and starving of the heart muscle. the inadequate transport of oxygen to tissues, the failure of organs. Where can we hope to stand in our own consciousness during such traumatic conditions, in order to die with clarity and grace?

Yet the emphasis he placed, over decades of lectures, on the importance of grace during death made so little space for terror—for how fear could coexist with presence, and even with love. In the minutes after his passing, the chasm between how he died and how I thought he was supposed to die reminded me of the betrayal I’d felt when, at sixteen, I flouted my mother’s and pastor’s admonitions and stopped asking God for protection, only to discover that a similar slew of terrible and wonderful things still happened to me.

In the house, too, marching through three days of death rituals before Ram Dass’s body was removed, I felt my spirituality slip its moorings. Late on the second night, his body lay on ice in his study—a rite he’d specifically requested, hoping that it would help those around him transcend their fear. I sat on the floor and peered up at his face through candlelight, his skin whitish blue and gaunt, his mouth slightly agape. I waited for grace, for him to speak reassuringly from some other plane of reality. Instead, I was taken back to our final moments together, where fear sutured me to each passing second. Not fear of the past or some uncertain future, but fear of the vast, strange intensity of what is.

Complete Article HERE!

I understand why people are wary about assisted dying

— But it gave my mother a dignified end

Protesters gather in London to call for a change in the law to support assisted dying.

The Dutch legalisation spared her further misery. We don’t take euthanasia lightly; we’re just grateful to have the option

By

My mother, Jannèt, was 90 years old when she ended her life by means of euthanasia. For years she had been suffering from numerous serious and painful conditions that made her life miserable. She always worried about her health and was terrified of what the future undeniably held in store for her: more pain, more dependence on others, more suffering, more desperation.

On 20 June 2022 at 2pm she was visited by a doctor and a nurse. They had a last conversation with her, during which the doctor asked her if euthanasia was still what she wanted. My mother said yes. She had already decided that she would take the drink herself instead of being injected. She didn’t want to mentally burden the doctor more than necessary.

I was impressed by my mother’s courage in the face of death. She was completely calm, almost cheerful. Before the procedure started, she spoke briefly to us, her three daughters. She told us how it was important to take care of the Earth wisely, to recycle as much as possible and to look after one another. She then drank the small cup in one gulp. She fell asleep very quickly and 15 minutes later the doctor told us her heart had stopped beating. A long and tormented life had come to an end.

The country in which I live, the Netherlands, was the first in the world to legalise euthanasia in specific cases. That was in 2001. Assisted dying has become generally accepted in our country. We talk about it openly and we consider the possibility when situations call for it. We are grateful that this option exists, because it prevents so much pointless suffering. But we never talk about it lightly. Assisted dying has always remained something huge, something you don’t resort to lightheartedly.

Renate van der Zee’s mother Jannèt
‘I was impressed by my mother’s courage in the face of death.’ Renate van der Zee’s mother Jannèt

As a matter of fact, you can’t. In the Netherlands it will always remain a criminal offence to end a life. Exceptions are made only when a whole range of requirements are met. First of all, the patient must ask for it themselves and must therefore be mentally capable of asking for it. In addition, there are all kinds of due care requirements. For example, the doctor must be convinced that the request for assisted dying is voluntary and that the patient has carefully thought it through. The doctor must also be convinced that the patient’s suffering is hopeless and unbearable. That they can no longer heal, that it is not possible to alleviate their suffering and that there is no reasonable other solution. At least one other independent doctor must be consulted. That independent doctor will discuss the situation with the patient and form his or her own opinion about the situation.

Assisted dying is allowed only if a person is suffering owing to a medical cause, not if someone is simply tired of life or feels that their life is complete. My mother didn’t feel that her life was complete. There were still things that made her happy. She loved flowers and plants; she loved politics; she followed the news. But because of her deafness, incontinence and many other conditions she became socially isolated. Visits from friends became too much for her, and at a certain point even phone calls became impossible.

Walking became very difficult, and she grew afraid to go outside. She always loved to wander through a neighbourhood park, especially in springtime, when the bluebells and lilies of the valley bloomed abundantly. But she was no longer able to go there, not even in a wheelchair. She always enjoyed reading and watching nature programmes, but those things too became increasingly difficult. Her numerous ailments and her lack of mental resilience to deal with them made a normal daily existence impossible. And there was no prospect of improvement.

My mother’s euthanasia was a long process. Five years before her death, she told her GP that assisted dying was what she wanted if her life became unbearable. Over the years, my older sister discussed this wish with her during long conversations. She also took charge of all the conversations that were necessary before permission was finally given.

My mother wanted to celebrate her 90th birthday before she took leave of life. Her last birthday fell on Easter, which she regarded as meaningful. But what kind of birthday gift can you give to someone who will soon be gone? My older sister came up with the idea of making a book in which all her loved ones wrote down what she meant to them, or reminisced. She was very happy with that.

We sat close to her when she died. My younger sister took my mother’s hand and she held it tightly. The older sibling said in a soft voice, “You can close your eyes now, Mum.” That’s what my mother did. I sat there and tried not to cry. It’s not easy to witness your mother drinking a deadly potion and dying after 15 minutes.

The next day was the first day of summer. The sun was shining, the weather was beautiful. I woke up with the pain that my mother was gone. But also with a feeling of relief and deep gratitude that, after such an incredibly difficult life, she had been granted a painless and dignified death. I knew we had given her a great gift.

Complete Article HERE!

Communing with spirits and coping with death

— Grief food in three cultures

In Mexico, sugar skulls are made to represent the soul of a departed loved one

Rituals around preparing and eating ‘grief food’ bring comfort to mourners – from Russia to Sri Lanka – and connect them to the dead.

By Annie Hariharan

In Mexico, pan de muerto (bread of the dead) is a special sweet bread made annually for the Day of the Dead in early November.

Shaped like a roll and topped with a cross and a nub – meant to symbolise bones and teardrops or hearts – the pan de muerto is both an offering to the deceased and a treat for everyone, explains Kati Hogarth. She grew up in Mexico but now calls Australia home and works in the creative industry. “It’s a bit sweet”, she adds, “to lure the spirits to come and share it with us.”

Pan de Muerte
Pan de Muerto is sweetened ‘to lure the spirits to come and share it with us’ says Kati Hogarth who grew up in Mexico

Food is closely connected to our rituals around death. Whether we are inviting spirits to commune with us or preparing feasts for the grieving, food provides solace, comfort and nourishment – often of the soul – at a time of mourning.

For example, in countries like the US and Australia, friends and neighbours will drop off casseroles or lasagnas, understanding that the bereaved often don’t have time or energy to make food.

Of course, many countries do not turn to a meat-and-cheese carbfest to mark a loved one’s passing. But those acts of cooking and eating – those heartfelt rituals around food – hold significant meaning when it comes to burials, mourning and even the remembrance of ancestors.

Altar
A Mexican altar to departed family members includes sugar skulls made to represent the souls of departed loved ones

Take koliva (also spelled kolyva, koljivo or coliva), a wheat-based dish that makes an appearance at Orthodox Christian funerals – from Greece to Russia – and is served in similar yet slightly different ways.

In Russia, the spelling is different – kutia – but Anastasia Kaissidis, a Russian mother of two who now calls Australia home, explains that it is essentially the same dish.

“It is like porridge but more sticky than watery. We make it with boiled wheat, barley and sometimes rice. Then, we add honey for the sweet taste and dried fruits like sultanas or berries and walnuts,” Kaissidis says. “It is really easy and quick to make. There’s no meat in it and most people would have ingredients like wheat at home.” A meatless dish makes it more affordable as well.

Kutia
‘It’s like porridge but more sticky than watery,’ says Anastasia Kaissidis, a Russian mother of two

In other places like Greece or Macedonia, sugar is sometimes added as a sweetener, as well as other dried fruits and nuts like pomegranate seeds or walnuts. The dried fruits and nuts not only provide textural and colour contrast but they can be used to decorate the top of the dish in the shape of a cross or initials of the deceased.

Kutia is steeped in the rituals of a Russian Christian Orthodox funeral. The family of the deceased – “usually the women”, Kaissidis says – are responsible for making it for the people who drop by to pay their respects. “After the burial, people will come to the family’s house, so they will prepare food. Traditionally, kutia is the first dish we eat before anything else,” Kaissidis explains. “It will be scooped into small bowls so that everyone can have some. You just need a little taste and after that, you can eat the rest of the food on the table.”

Koliva
Koliva is the Macedonian version of Kutia – both feature prominently following death in Christian Orthodox cultures

The dish also has a symbolic meaning. “In Christianity, we believe life is eternal and we celebrate resurrection,” Kaissidis explains. “The wheat symbolises new life because it must be buried before it can grow again, else it will just rot. The honey or sugar symbolises that life will be sweet in heaven.”

Georgi Velkovski, a Macedonian living in Belgium knows this communal dish as koliva. He describes it as a sticky, sweet paste that is a bit bland and not to his taste, “like eating a piece of bread if you squeeze it and chew on it”.

“The family of the deceased would serve it on a plate along with tasting spoons. They would go around and offer koliva to visitors. People would take a spoonful of the dish and place the dirty spoons in a separate cup or container. This way, everyone is sharing the koliva,” he explains.

Anastasia
Anastasia Kaissidis, a Russian mother of two, talks about grief food in Russian Orthodox communities

When people don’t have the space to accommodate mourners in their own

houses, they may go to a cafe or restaurant. “When my grandmother died, there were about 20 close family members attending the funeral and they came from everywhere. Instead of having the meal at home, we pre-ordered food from a cafe, including kutia, because it was easier,” Kaissidis shares.

Although koliva is simple, cheap and filling, neither Kaissidis nor Velkovski will make or eat it outside of funerals – although other people in the Russian or Macedonian community may serve it during religious celebrations or even Christmas.

For Kaissidis, this is a sacred dish that is associated with funerals and not something to make for a casual Saturday brunch. “Sometimes, I make my kids porridge with honey because it is kid-friendly. I suppose it is similar to kutia, just a bit waterier but I wouldn’t call it kutia,” she says with a laugh.

Communal cooking in Sri Lanka

While the Orthodox Christian community communes with one sacred dish after a funeral, in Sri Lankan Buddhist culture, everyone comes together to cook full meals in support of the bereaved family.

When there is a death in the community, particularly in villages with close-knit communities, someone will take charge and start by collecting funds. “People give based on their finances and this collection will be used for the rites,” explains Zinara Rathnayake, a journalist and social media manager from Sri Lanka. On the last day of the ceremony, Sri Lankan Buddhist families typically cremate the bodies of the deceased although some may also choose a burial. This is then followed by a feast or ceremony called Mala Batha which is a meal provided to people who came over to pay their respects to the deceased.

Zinara
Zinara Rathnayake says a Sri Lankan funeral feast is ‘a feast for the living’ but also, some believe, a ‘feast for the spirit who might still be lingering’

“If there’s enough space in the family’s house, they will cook the meal inside. If not, they will pick a house with a large garden to cook outside with a makeshift fire stove,” Rathnayake explains.

While this is a feast for the living, some people believe it is also a feast for the spirit who might still be lingering; this is a way to feed them before they head off to the other world.

The meal features food that people cook and eat daily – like dahl, dried fish curry, potato dishes, brinjal (aubergine) dishes, leafy green salads and papadums – rather than symbolic, funeral-specific dishes. These dishes are meatless. Meat is often considered “impure” so a vegetarian diet is de facto for periods of mourning.

This will vary from villages and communities, but people instinctively know the role they need to play; they may have done something similar for weddings or festivals. “The men might go off to buy the provisions and others will bring a large pot with utensils. Someone will cook rice, others will chop the vegetables. There is a mutual understanding,” says Ratnayake.

Sri Lanka vegetable curry
Vegetable curry is often served following a funeral in Sri Lanka

Following the Mala Batha, neighbours will continue to support the bereaved family by cooking for them. “The food part is taken care of by the community because the family is not in a state where they can cook,” says Ratnayake. “People will make potato curry or grated coconut sambol, buy large boxes of biscuits, make tea or coffee.” As Ratnayake explains, this is partly because traditionally, there is no concept of freezing and reheating food here; food is eaten on the same day it is cooked.

Offerings to the deceased in Malaysian-Chinese culture

Sometimes, the food that is prepared during funerals is not for the living. Instead, each element of the meal represents the deceased’s journey into the afterlife.

Chin (who asked not to use her real name to protect her family’s feelings) has a Chinese-Buddhist-Taoist background and lives in a country town in Australia. When her mother passed away in Malaysia, she became aware of the numerous rituals she had to fulfil and the symbolic food she had to place by her mother’s altar.

“We had her wake at a funeral centre,” Chin explains, “It was a three-day wake followed by a burial. There was someone at the centre to guide us on rituals and procedures, including what to wear. Most modern Chinese people don’t know what to do for these rituals!”

Malaysia-China funeral feast
Dishes at a funeral in Malaysian-Chinese communities include cooked meats, particularly a boiled chicken placed at the centre of the table and representing the spirit’s flight to the beyond

The standard dishes for Chinese funerals in Malaysia include cooked meats: a roasted pig symbolises eternity and good luck, a boiled chicken represents the spirit’s flight to the beyond and a roast duck symbolises protection for the spirit as it crosses the three rivers (Gold River, Silver River and the Life-Death River) that are synonymous in Chinese-Buddhist belief with giving and supporting life. Everything is served with rice, which represents family and respect.

Among the dishes that Chin prepared for her mother’s funeral was a stir-fry vegetarian dish called Buddha’s Delight, plus her mother’s favourite tea and fruit.

Buddha's delight
Buddha’s Delight, a stir-fried vegetarian dish

“There had to be five different colours of fruits, so we had green grapes, yellow pears, red apples, white peaches and black Chinese chestnuts,” Chin explains. The idea is to invite the deceased to eat along with the living.

One of the foods that is closely associated with Malaysian-Chinese funerals is pink and yellow steamed buns. These buns also make an appearance during the Hungry Ghost Festival; a month-long period when the Chinese community makes offerings to appease and honour spirits that roam the earth. Like koliva, these soft buns are also made with pantry staples – flour, yeast, sugar, baking powder, and shortening – and steamed, since most Southeast Asian kitchens do not have ovens.

Pink and yellow steamed buns
Pink and yellow steamed buns are frequently served at the feast following a Malaysian-Chinese funeral

Family members are also encouraged to offer food that the deceased used to enjoy. “On day seven, we laid out the dining table with my mother’s favourite food because symbolically, this is the last meal we are giving to her spirit,” Chin says. The idea is that after this feast, the spirit has to leave our world.

During this time, Chin and her family were expected to stay in their rooms from 10pm to 2am.

Afterwards, “we threw away the whole banquet because it is [considered] bad luck to eat it”, Chin says. “This is the part I did not like because it’s so wasteful.”

The “bad luck” is a mix of superstition – not wanting to eat something that a spirit has feasted on; and concern about food hygiene – not eating something that has been sitting at room temperature in the tropics.

Chin understands the purpose of rituals, but also finds some of them “ridiculous”.

“I rolled my eyes a lot but we had to ‘do the right thing for the deceased’. When my father passed away, my mother did the same thing for him and it was clear that this is what she wanted too.”

Complete Article HERE!