30 Astonishing Facts About Death

By Bess Lovejoy

Death is the start of a great adventure—never mind that you might not be around for it.

  1. You can be declared dead in some states but considered alive in others. That’s because New York and New Jersey allow families to reject the concept of brain death if it goes against their religious beliefs.
  1. One of the first visible signs of death is when the eyes cloud over, as fluid and oxygen stop flowing to the corneas. That can happen within 10 minutes after death if the eyes were open (and 24 hours if the eyes were closed).
  1. Today, there are about 300 bodies frozen in liquid nitrogen in America in the hope that science will one day be able to bring them back to life. (Contrary to popular belief, Walt Disney is not one of them.)
  1. It’s a myth that hair and nails grow after death. What really happens is that the body dries out, so the nail beds and skin on the head retract, making nails, stubble, and hair appear longer.
  1. Rigor mortis is only temporary. It’s a result of certain fibers in the muscle cells becoming linked by chemical bonds, but usually goes away in a day or two as those bonds break down. How long it lasts depends on the temperature in the environment, among other factors.
A corpse flower, or titan arum, known for smelling a lot like death.
  1. Two of the gases responsible for the distinctive smell of death are called putrescine and cadaverine. They’re produced when bacteria break down the amino acids ornithine and lysine, respectively.
  1. Bodies can become covered in what looks like soap after death. Technically known as adipocere (and sometimes also called grave wax), it’s a byproduct of decomposition that happens as the fat in a body decays under wet, anaerobic (lacking in oxygen) conditions. Philadelphia’s Mütter Museum and Washington, D.C.’s Smithsonian each have an adipocere-covered corpse on display.
  1. There are more than 200 corpses of failed climbers frozen on Mount Everest.
  1. The low-temperature, low-oxygen, highly acidic environmental conditions of European peat bogs can preserve bodies with remarkable detail for centuries, and even millennia. One of the most famous examples of these “bog bodies” is the Iron Age Tollund Man in Denmark. When his body was discovered in 1950, it looked so fresh his discoverers thought they’d found a recent murder victim.

  1. Scientists are currently studying the “necrobiome”—all the bacteria and fungi in a corpse—to figure out whether changes in the microbes alone can provide clues to the time of death. The concept is known as the “microbial clock.”
  1. People used to believe that the blood of the freshly executed was a health tonic, and would pay executioners a few coins to drink it warm from the gallows.
  1. “Hop the twig,” “yield the crow a pudding,” “snuff one’s glim,” and “climb the six-foot ladder,” were all once slang terms for death.
  1. Dead bodies generally aren’t dangerous just because they’re dead. But in the 19th century, there was widespread belief in “miasmatic theory,” which said that air coming from rotting corpses and other sources of decay lead to the spread of disease. This belief was more or less replaced by germ theory.

  1. Embalming is rarely required by law, except in certain situation where bodies leave state borders.
  1. The average human body produces between 3 and 9 pounds of cremated remains after being burned. The cremation chamber, known as a retort, can get as hot as 2000 degrees Fahrenheit.
  1. The Victorians often took photos of dead loved ones as part of their grieving process. These postmortem photographs became keepsakes that were displayed in homes, sent to friends and relatives, and worn inside lockets.
  1. In at least one version of telegraph code, LOL meant “loss of life.”
  1. In 897, Pope Stephen VI had the corpse of a previous pope, Formosus, exhumed, perched on a throne, and questioned about his “crimes” (which were mostly about being on the wrong side of a political struggle.) The event is known as the Cadaver Synod.
  1. The term mortician was invented as part of a PR campaign by the funeral industry, which felt it was more customer-friendly than undertaker. The term was chosen after a call for ideas in Embalmer’s Monthly.
A statue of Abraham Lincoln, whose embalming widely popularized the practice
  1. The embalming of Abraham Lincoln for the journey from Washington, D.C. to Springfield, Illinois, is widely credited with encouraging everyday acceptance of the practice.
  1. You’re more likely to be killed at a dance party than while skydiving.
  1. Between the 16th and the early 20th centuries, artists used ground-up mummies as paint pigment. (It was also thought to be a potent medicine.)
  1. The idea that graves need to be 6 feet deep comes from a 1665 plague outbreak in England, when the mayor of London decreed the burial depth to limit the spread of disease.
  1. No Mormon mourning is complete without Mormon funeral potatoes, a cheesy casserole that usually involves cornflakes. Other foods associated with death include pan de muerto (“bread of the dead”), traditionally eaten on Dia De Los Muertos in Mexico; ossa dei morti (“bones of the dead”) cookies in Italy, meant to represent the bones of dead saints; and Victorian funeral biscuits.
Mormon funeral potatoes
  1. Contrary to popular reports, it’s not illegal to die in Longyearbyen, Norway. But since the town has no nursing homes and only a small hospital, residents are required to move to the mainland once they become elderly. It is true that it’s so cold there bodies barely decompose.
  1. “Human composting,” in which bodies decompose into dirt in reusable “recomposition vessels,” is legal in Washington state. The results don’t smell, and are suitable for use in the garden.
  1. The Frozen Dead Guy Days festival in Nederland, Colorado, is held each year in honor of a 110-year-old corpse located in a local Tuff Shed and surrounded by dry ice (it’s a DIY cryonics set-up). The festival features coffin racing, frozen salmon tossing, costumed polar plunging, and frozen t-shirt contests.
Coffin racing at the Frozen Dead Guy Days festival in Nederland, Colorado in 2019
  1. In the 19th century, several inventors came up with “safety coffins” equipped with bells, flags, and air tubes and designed to help people avoid being buried alive.
  1. Although the etiquette guides for Victorian mourning varied widely, widows mourned for a total of two-and-a-half years, while widowers mourned for three months.
  1. In the 17th century and beyond, human skulls were soaked in alcohol to create a tincture called “the King’s drops” that was said to be good for gout, dropsy (edema), and “all fevers putrid or pestilential,” among other ailments. King Charles II of England allegedly paid £6000 for a personal recipe.

Complete Article HERE!

The Best Books to Help You Cope With Death and Dying

How the wisdom of Joan Didion, death doulas, and Big Bird have prepped me to dance into the void (and plan my estate).

by Mary Frances Knapp

The chillest people I know are the ones surrounded by death. I’ve spoken with a lot of them over the years: end-of-life doulas, hospice workers, embalmers; eco-coffin designers, grief counselors, and country homesteaders; all of whom look their inevitable demise square in the face. They’ve all taught me something different about death and dying, but they’ve also driven home a similar point: Death doesn’t have to be this freaky egg that gets cracked on your head out of the blue. Death—rather, dying—is a process, and that process is what you make of it.

One of my first writing gigs in college was all about death (which is why I’m on this coffin-shaped soap box in the first place). I freelanced for an end-of-life planning business in San Francisco, which was part practical, local resource for what to do after a loved one dies, and part death blog (that was my jam). We were always careful not to stew in topics related to death and dying in a macabre way—the landing page was baby blue, and blogging topics ranged from DIY crafts for memorializing loved ones to learning more about biodegradable urns. Why on Earth they let a 19-year-old with no knowledge of funeral homes write for them is beyond me, but I’m so glad they did. I learned that when you’re constantly surrounded by death, it doesn’t feel as foreign and unnavigable. Of course, those in the death and dying industry don’t become magically exempt from the emotional demands of death, and having the time and resources to live and die well is a privilege. But in the years I spent learning about estate planning, or talking to home health aides about what you can do literally moments after a loved one has died to find some peace, I learned that dying well is just like living well: You reap what you sow.

So where do you start? Books. Read what other people have been through in hospitals, at home, or with their own existential crises. While the titles below are hardly a definitive guide to death and end-of-life planning, they’re the ones that have helped me feel better prepared to dance into the void.

No one does death like le French

Simone de Beauvoir is a *chef’s kiss* great Frenchy to hold your hand through the topic of death. This is one of the author’s most beloved books from the 1960s, and it takes you through the experience of her mother’s death with an acute sensitivity to detail; it’s Beauvoir’s talent for focusing on the more “banal” moments of terminal illnesses and dying with philosophical panache that makes it so good.

A Very Easy Death by Simone de Beauvoir

Learn how physicians feel about patient care

This one reads like a diary, if diaries were super exacting tell-alls by medical professionals. Author and doctor Ira Byock is a palliative care physician, and getting insights into the strides and pitfalls of his end-of-life care experiences teaches you a lot about the kinds of questions you’ll want to ask when/if you ever end up navigating similar situations and medical institutions. It’s the kind of book that just makes you feel like you have someone on your side, even in the face of daunting health scares.

The Best Care Possible by Ira Byock

Yes, there are end of life doulas

We usually think of doulas as kindly granola folk who help bring wee babes into this world, but there are also doulas and death midwives who are trained to accompany those who are dying and usher them into whatever comes next. I’ve spoken with a lot of them over the years, but this book rec actually comes from a friend who just started pursuing a career in end-of-life care. “I picked up this book to learn more about reclaiming deathcare as a sacred, holistic, and intimate practice,” she told me, saying she’d absolutely suggest this book for those who could see themselves in a similar profession, or who just want to learn more about the above.


Anne-Marie Keppel

Death Nesting by Anne-Marie Keppel

There’s room for creativity

Overall, I think the United States has this knee-jerk reaction to sterilize the processes of death and dying. We exact our funerary ceremonies with a kind of uniformity and somberness—which is fair. Death is hard, and everyone grieves differently. But, dude. Have you ever seen the coffins in Ghana? They’re beautiful, and personal. A really celebratory labor of love.

The Buried Treasures Of The Ga: Coffin Art In Ghana by Regula Tschumi

Raise your hand if you’ve got daddy issues

A hard read, but a super cathartic memoir by Jesmyn Ward for anyone who has lost a loved one at a young age, or who tightrope-walks their relationship with their parents. The book follows the author’s relationships with five different people in that sense, and it’s also a powerful portrait of what it means to live and mourn as a Black person in the American South.

Men We Reaped: A Memoir by Jesmyn Ward

That’s one way to cope

We’ve all had it happen, or seen it happen to someone else: Rather than confront our grief, we pour ourselves into a new hobby or time-suck pursuit (cc: all those quarantine sourdough loaves). And that’s OK. There’s no etched-in-stone timeline for grief, and this memoir by Long Litt Woon, written about her late husband, is a great reminder of that; it’s about all the curious, dark, and beautiful places our grief can take us, such as mushroom hunting. “Long tells the story of finding hope after despair lightly and artfully,” writes the New York Times in a review that I think really hits the nail on the head. “[She writes with] self-effacement and so much gentle good nature that we forgot how sad she (and we) are.” Then, like the narrator, we remember. But guess what? We’re still in one piece. 

The Way Through the Woods by Long Litt Woon

If you’re not spiritual…

… Then read every essay and book by Joan Didion, honestly. Her writing will spoon feed you a tough yet deeply observant love, and feels like getting a sit-down chat from your most level-headed relative about hippies, the Pioneer West, and, in this case, the death of her husband and collaborator John Gregory Dunne. So many books on death and dying are deeply spiritual or religious, but for those of us who have only ever had faith in logic and, IDK, Pokémon, Didion is your gal. No one else writes quite like her about the surreal logic of grief-brain with as much honesty and accuracy. 

The Year of Magical Thinking by Joan Didion

One for the kids

Do you have Muppet Feels? (Of course you do.) You might remember the legendary Sesame Street episode where Big Bird deals with Mr. Hooper’s passing. Heavy shit, man. The children’s book adaptation of that episode brings the same nuanced tenderness of the show, and literally everything in life is better when Big Bird is by your side. Give this to a kid, or anyone going through it.

I’ll Miss You, Mr. Hooper by Sesame Street

See you in the next life.

Complete Article HERE!

What Is Thanatophobia?

Understanding prolonged, excessive fear of death

By

Thanatophobia is a persistent and irrational fear of death or dying. The fear may focus on your own death or the death of a loved one. In extreme cases, these thoughts may be so terrifying that you end up isolating yourself completely, avoiding leaving the house in case something terrible happens.

In the Greek language, the word “Thanatos” refers to death and “phobos” means fear. Thus, thanatophobia translates to the fear of death.

Many of us will feel scared of death and dying at some point in our lives. If you have a phobia of death or dying that is persistent and longstanding, causes you distress or anxiety, and is so extreme that it interferes with your daily life, you may be suffering from thanatophobia.

This article takes a close look at thanatophobia, or death anxiety, to explore the symptoms, causes, and treatments for this phobia.

While thanatophobia is not specifically listed in the Diagnostic and Statistical Manual of Mental Disorders, 5th Edition (DSM-5), there are symptoms of a specific phobia that could be applied in assessing whether someone has a typical fear of death or something more.

  • Unreasonable, excessive fear:The person exhibits excessive or unreasonable, persistent, and intense fear triggered by a specific object or situation.
  • Avoidance of situations in which thinking about death or dying may be necessary: In severe cases, this can lead to the person avoiding leaving home altogether.
  • Life-limiting:The phobia significantly impacts the individual’s work, school, or personal life.
  • Duration:The duration of symptoms must last for at least six months.

The panic you experience with thanatophobia is often attributed to general anxiety, which could produce the following physical symptoms:

  • Sweating
  • Shortness of breath
  • Racing heart
  • Nausea
  • Headache

Death Anxiety in Children

A child’s fear of death may be a healthy part of normal development. Children generally lack the defense mechanisms and understanding of death that help adults cope. Whether the fear qualifies as a phobia depends on its severity and the length of time it has been present.

Diagnosis

Thanatophobia isn’t a clinically recognized condition, so there is no specific test healthcare providers can use to diagnose this phobia. But a list of your symptoms, the length of time you’ve been experiencing the fears, and their severity will give healthcare providers a greater understanding of what’s going on.

It is important that thanatophobia is diagnosed by a trained mental health professional. They will try to determine whether the fear is part of a specific phobia, an anxiety condition, or a related mental health disorder

Thanatophobia may be linked to:

  • Specific phobias: Death anxiety is associated with a range of specific phobias. The most common objects of phobias are things that can cause harm or death, including flying, heights, animals, and blood.
  • Panic disorders: During a panic attack, people may feel a fear of dying or impending doom.
  • Illness anxiety disorders: Death anxiety may be linked to illness anxiety disorders, once known as hypochondriasis. Here, a person has intense fear associated with becoming ill and excessively worries about their health.

A 2019 study linked death anxiety to more severe symptoms across 12 different mental disorders.

Causes

The exact cause of thanatophobia is unclear. However, the condition is a specific phobia with a focus on previous experiences with death.

Some of the risk factors that expose people to a higher risk of thanatophobia include:

  • Age: Studies found death anxiety peaked in people during their 20s and declined significantly thereafter.
  • Sex: Although men and women both experience death anxiety, women experience a secondary spike of thanatophobia in their 50s.
  • Parents nearing the end of life: Children of elderly or sick parents are more likely to fear death. They’re also more likely to say their parents are afraid of dying because of their own feelings.
  • Personality and temperamental factors like being prone to anxiety may increase your risk of death anxiety.
  • Personal health: People with chronic illnesses are more at risk of developing an extreme fear of death.
  • Traumatic event: Those who have experienced death-related, traumatic events are more likely to develop death anxiety.

Prevention

Medical literature on death anxiety is limited and often conflicting, but one study found that fear of death is uncommon in people with:

  • High self-esteem
  • Religious beliefs
  • Good health
  • A sense of fulfillment in life
  • Intimacy with family and friends
  • A fighting spirit

Your healthcare provider may recommend that you receive treatment for an anxiety disorder, phobia, or for a specific underlying cause of your fear of death.

Therapy

Cognitive behavioral therapy (CBT) is an effective treatment for many anxiety conditions and for symptoms of thanatophobia. During a course of CBT, you and your therapist will work together to determine the cause of your anxiety and focus on creating practical solutions to problems.

The goal is to eventually change your pattern of thinking and put your mind at ease when you face talk of death or dying.

Medication

Your healthcare provider may prescribe medication to reduce anxiety and feelings of panic that are common with phobias. Medication is rarely a long-term solution, however. It may be used for a short period of time in combination with therapy.

Coping

Social networks and support groups may help you to deal with death anxiety. Some people may come to terms with feelings of death through religious beliefs, though for some, religion increases feelings of death anxiety.

Self-help techniques include activities that help you feel calmer and more relaxed, such as breathing exercises and guided meditations, as well as other activities that help you improve your overall mental health, such as eating a nutritious diet, getting enough sleep, and regular exercise.

They may not help you overcome your fears in the long term but can help you to reduce the physical symptoms of anxiety you are experiencing and feel better able to cope.

Frequently Asked Questions

How common is thanatophobia?

Everyone will experience a fear of dying at some point in their lives. If you find yourself worrying about death a lot, the first thing to do is to remind yourself that you’re not alone. But if this fear is persistent and is impacting your daily life, seek medical help.

Death anxiety peaks for people in their 20s and seems to get better with age.

Why can’t I stop thinking about death?

Anyone can experience obsessive thoughts about death or dying, and unfortunately they can worsen when a triggering situation arises or can even appear suddenly. While there are many strategies you can try on your own, if you continue to experience unwanted, intrusive thoughts about death, it’s best to reach out to a mental health professional for help.

How do I talk to someone about my fear of dying?

It can be daunting to seek help for death anxiety, but asking for help and learning how to handle these fears in a healthy way can help you manage your condition. It can also keep you from feeling overwhelmed.

A therapist will work with you to examine your thoughts and behaviors and improve how you feel. Your therapist will also give you the tools to help you open up to loved ones about your fears.

Is necrophobia the same as thanatophobia?

Necrophobia is different from thanatophobia. Necrophobia refers to an intense, often irrational, fear people exhibit when confronted with dead “things,” such as the remains of a deceased human being or an animal, or an object typically associated with death, such as a casket, cemetery, funeral home, or tombstone.

A Word From Verywell

Worrying about your own death, or the death of a loved one, is normal but can be distressing and concerning when the feelings linger. If the worry turns to panic or feels too extreme to handle on your own, seek help.

If your worries about death are related to a recent diagnosis or the illness of a friend or family member, talking with someone can be helpful.

Complete Article HERE!

Qualitative Study Shares Strategies for Successful End of Life Conversations for Patients With Cancer

By

End-of-life (EOL) discussions such as advanced care, palliative care, and discontinuation of treatment are consistently being missed, according to a study published in JAMA Network Open; however, investigators highlighted existing strategies that are being utilized to achieve successful EOL conversations.

Investigators found that out of 423 outpatients encounters with 141 patients with advanced cancer, only 21 encounters (5%) included EOL discussions. When investigators included a random sample of 93 encounters, 35 encounters (35%) included missed opportunities for EOL conversations. Three patient/oncologist dyads had more than 1 encounter with a conversation pertaining to EOL, which translated to 17 of 141 dyads (12%) having at least 1 event of EOL discourse. The dyads included 13 of 39 oncologists (33%).

“In this secondary analysis of outpatient oncology visits, EOL discussions were rare and missed opportunities for these discussions were common. When oncologists did discuss EOL, they framed it around trade-offs, anticipatory guidance, and acknowledging patients as experts,” investigators of the study said. 

Investigators identified 3 strategies that are being used to navigate opportunities for successful EOL conversations:

Those who take advantage of opportunities for EOL discussions are able to reevaluate treatment options based on patients’ concerns, outlining the risks and benefits between treatment continuation and discontinuation. When suggesting chemotherapy for treatment, it is imperative to be transparent in letting patients know it could prolong survival, but there would be discomfort from adverse effects, the investigators stated. This allows the patients to make decisions about their own future.

Another strategy that has been utilized when making EOL decisions is allowing patients to be experts on their treatment decisions in order to meet their goals. This was accomplished by positing questions such as “What would you like?” and “What was the goal you would like to attain?”. By exploring a patient’s goals and allowing them to lead the conversation, the patient can shape treatment recommendations. Patients are able to explore their thoughts and feelings with regard to treatment discontinuation in a manner that is approachable. This allows one to act as a facilitator who creates an environment of reflection, while the patient shifts their focus to decision making.

The use anticipatory guidance to frame conversations pertaining to treatment reevaluation is another useful strategy. Anticipatory guidance can be used to identify a potential timeframe in which patients will need to make decisions regarding quality of life over cancer-directed treatments. During this time, it is the oncologist’s responsibility to provide sign posts to convey when it may be time to consider quality of life over treatment. This helps patients set appropriates goals and limits as to when they might like to discontinue treatment.

There are a number of hurdles that lead to missed opportunities for or deflected EOL conversations, one of which including responding inadequately to patient concerns. Patients who are concerned about disease progression or dying are often met with partial, avoidant, or absent responses instead of opening the conversation about EOL, which limits the opportunity for patients’ conversations around goals, values, and preferences. Additionally, giving little to no response when a patient expresses fear at the idea of living for years with late stage disease could prevent the occurrence of conversations around disease burden, treatment decision making, and EOL care.

Although speaking about the future optimistically may seem helpful it does little to address patient concerns. Instead of using anecdotes about other patients who exceeded life expectancy, consider using that moment to realistically discuss the patient’s prognosis.

Additionally, expressing concern over patient’s decision to discontinue treatment could be another opportunity for a missed discussion. Although one might be able to justify their treatment decisions by stating that they are in line with the patient’s goal, it is a missed chance for discourse pertaining to quality of life and treatment goals. Moreover, declaring a patient’s next steps for treatment without holding a proper conversation is yet another missed opportunity wherein a conversation about the patient’s options could have taken place.

“Although we recognize that not every patient or appointment may necessitate an EOL discussion, all patients in this study had stage IV malignant neoplasm and their oncologists had previously acknowledged that they ‘would not be surprised if they were admitted to an intensive care unit or died within one year.’ Despite the urgent necessity of EOL discussions within this population, we found far more missed opportunities than actual discussions in this analysis,” the investigators concluded.

Reference

Knutzen KE, Sacks OA, Brody-Bizar OC, et al. Actual and missed opportunities for end-of-life care discussions with oncology patients: A qualitative study. JAMA Netw Open. 2021;4(6):e2113193. doi:10.1001/jamanetworkopen.2021.13193

Complete Article HERE!

The Dignified Exit

The Inevitable: Dispatches on the Right to Die

By Elena Saavedra Buckley

AS MEDICAL AND technological advances have made our world safer, it’s become much harder to kill oneself painlessly, even if one intends to. Asphyxiation by carbon monoxide, usually done by inhaling car exhaust in an enclosed garage, has gotten harder as the automobile industry’s emissions levels lower over time. Ovens have followed a similar trend, with natural gas models outplacing those that run on coal. The shift is especially true when it comes to medications. Use of Nembutal, the barbiturate that killed Marilyn Monroe, declined in the second half of the 20th century and was eventually discontinued in the United States, leaving available fewer substances that can cause a nonviolent overdose. (Other lethal medications have multiplied in price, sometimes threefold or more.) For those who desire “rational” suicide — done after consideration rather than, as is more typical, spontaneous despair — options are limited outside uncertain and gory methods. We live more protected lives than we once did, but, in exchange, the ability to end our lives peacefully is kept out of reach, like a bottle of recalled pills.

The subjects in Katie Engelhart’s essential, vulnerable book, The Inevitable: Dispatches on the Right to Die, question these barriers. Since the mid-20th century, conversations on assisted suicide have grown, as laws allowing it have passed around the world. In popular conversation, Engelhart writes, people who use assisted death usually fit an archetype: elderly, secular, white people, with terminal diseases and supportive families, take advantage of rare right-to-die laws soon before their likely natural death. They throw back a lethal cocktail of liquid drugs under the watch of a doctor and their loved ones. They fall asleep, and, within a few hours, their heart stops. “While most reporting about the so-called right to die ends at the margins of the law, there are other stories playing out beyond them,” Engelhart writes. “Didn’t I know that whenever the law falls short, people find a way?”

Engelhart, a former reporter for VICE and NBC News, profiles two rogue doctors and four subjects who seek assisted death in a variety of illicit shades: an elderly British woman who feels she has lived the life she wants; an American woman in her 30s with worsening multiple sclerosis; an American woman sinking into dementia’s abyss; and a 25-year-old Canadian man with complicated, severe depression. Engelhart profiles them as they either seek help with suicide, through mail-order chemicals or services overseas, or challenge the limits of their country’s laws. Engelhart is ever thoughtful; the approach can fall flat during meetings with secondary doctors or interviews with philosophers (summoning more than one description of office shelving), but Engelhart’s main portraits, and her careful relationships with her subjects, powerfully animate her central questions: what is dignity, and what does it mean to die with it?

As she chases dignity’s meaning, Engelhart meets early dead ends. Some of her interviewees brush off the question, saying that dignity amounts to feeling respected, making their own choices, and, mostly, being able to wipe their own asses. (“When someone has to change my diaper, I don’t want to live.”) But if dignity can be understood at an individual level, it is twisted by the systemic factors Engelhart describes that lead to death wishes: the specter of melancholic senior living facilities, unsuccessful mental health treatments, and impossibly expensive health care. The Inevitable is international in scope, but these pressures loom largest in the American medical system. When visiting Brussels, Belgium, Engelhart speaks to Wim Distelmans, an oncologist and euthanasia proponent, about whether assisted death should be offered to more people in the United States. “It’s a developing country,” he tells her. “You shouldn’t try to implement a law of euthanasia in countries where there is no basic healthcare.” A reader wonders, then, what it means to assert dignity within circumstances that do not do the same.

¤

Voluntary euthanasia may appear in Thomas More’s vision of Utopia, but doctors have long struggled to write it into their job descriptions. In 1995, the American Medical Association stated that “[p]hysician-assisted suicide is fundamentally incompatible with the physician’s role as healer,” and the National Hospice and Palliative Care Organization opposes the practice. The membrane between palliative care and assisted suicide is thin, though — in some cases, tending to fading life with pain-relieving drugs functions as a kind of assisted death, albeit a slow one. Engelhart roots this dissonance in the 20th century’s effort “to conceptually transform old age from a natural phase of life into a stage of disease,” she writes, “and, by extension, something to be defeated, rather than embodied or endured.”

Assisted suicide has been legal in Switzerland since 1940, and some other European countries, like Belgium, have allowed it since the 1990s. (Parts of Australia and Canada allow it, too.) Its American history is piecemeal. As health-care prices climbed sharply in the 1970s and ’80s, a string of high-profile cases of young white women on life support drummed up public conversation. Then, in 1994, Oregon became the first state to legalize assisted death. Other states followed Oregon’s strict parameters: a patient must be terminally ill and have six months or less to live, and they must have the mental capacity to make the decision, as determined by a doctor. On their chosen deathbed, a doctor will give them the lethal barbiturate, but they must lift it to their own mouth in a final, performative gesture of agency.

Opponents of assisted death have long argued that the practice will fall down a slippery slope of exploitation. Poor patients and the elderly, critics say, will feel pressured to die rather than rack up medical costs for their families. People with depression will choose it over trying more treatments. Historically, voluntary euthanasia and eugenics attract similar supporters, and today, some disability rights groups warn that the practices are “fatally tangled.” (One doctor Engelhart speaks with wants to create machines that can provide assisted death more easily than drugs; he sheepishly describes one of his coffin-like prototypes as “a little Auschwitzy.”) So far, though, there is no evidence from Oregon or other states that the laws have caused disproportionate deaths in any demographics. In fact, the opposite might be true. Engelhart spoke to doctors who knew of patients who qualified under the laws, and who wanted to die, but who could not afford the drugs. “Poor patients sometimes had to live,” she writes, “while richer patients got to die.”

¤

Like much great narrative journalism, The Inevitable powerfully justifies its form when mapping how people relate to each other outside dominant systems — in this case, how end-of-life care can exist away from, or in opposition to, big medicine. Beyond trickster doctors like Jack Kevorkian — the American pathologist, dubbed “Doctor Death,” who in the 1990s turned assisting suicides into a kind of civil disobedience — barely underground networks have offered assisted death to people who don’t meet the law’s eligibility. One of Engelhart’s subjects, Debra, is a widow in Oregon who does not want to fully succumb to her dementia. She ends her life before that happens with the help of the Final Exit Network, a group of volunteers who instruct the elderly on how to commit suicide and accompany them through it. When she is ready, two volunteers arrive at her house, hug her, and kneel next to her wheelchair while she uses a plastic bag and gas canister to stop her own breathing. Even with its analog methods, this moment feels dignified, closer to what care should look like — especially when put into relief by the police who show up to her door some hours later.

Other narratives are murkier. A woman named Maia, the only main subject from the book who is still alive, speaks with Engelhart while working through the decision to schedule her death at a clinic in Basel, Switzerland, seeking relief from multiple sclerosis. Maia is slowly and painfully approaching paralysis. “I believe the soul travels on and wants to be free from this prison that has become my body,” she wrote in her application to the clinic. Maia felt early, undiagnosed symptoms of her MS in her 20s, but, following the advice of her father, she hoped for the best and declined treatment. Once the debilitation became obvious, she wondered whether those early treatments would have prevented the disease’s severe progression. The future she is left with will require constant assistance and treatments. In the United States, it will send her into poverty. (She unsuccessfully attempts the most American of options: a GoFundMe for medical expenses.) Maia is sure of her plan, but she seems consumed by wondering whether she could have lived a different life or whether she has suffered enough to end the one she has. Even with her Swiss appointment, she closely follows right-to-die bills in the United States. “On an idealistic level,” she tells Engelhart, “I’m obsessed with dying in my own country.”

For Maia, it seems, dying in the United States would be a kind of acknowledgment, an agreement that her country shares responsibility for her distress. The Inevitable is interested in dignity and how people define it, but it does not ask so explicitly whether the state, and the laws it creates, can recognize people’s dignity in the first place. If our systems of governance fail to care for so many — and kill others on death row and in the streets — can they be trusted to control the choice to die? If a “developing country” without universal health care did offer wide access to assisted death, one wonders whether its use could make that country’s ills more obvious, more urgent, less ignorable. When The Inevitable snaps back to the perspectives of its individual subjects, the implications of these political threads can get lost; the perspectives of nonwhite patients, or people who harbor more doubt in the medical system from the get-go, are also mostly absent from the narrative. Still, the book’s brilliance is in how much fertile ground it lays for these questions.

Near the end of The Inevitable, Engelhart profiles Philip Nitschke, an Australian doctor who has become one of the most vocal supporters of the unrestricted right to die. Nitschke founded Exit International, another organization like Final Exit Network. His is far more boundless than others; they sell The Peaceful Pill Handbook (2006) to almost anyone with instructions for safe suicide methods, and Nitschke gives public “DIY death seminars” with his wife’s help. He is at the radical end of the book’s spectrum, yet after the rigid patterns of death barely evaded by Engelhart’s subjects, his beliefs appear risky but benevolently imaginative.

When Nitschke started his career, he only accepted assisted death on a limited scale. But as he met the kind of people who could be in The Inevitable: Dispatches on the Right to Die — a taxi driver with stomach cancer, for one, who died painfully without the legal right to die — these limits dissolved rapidly. What did age have to do with it, really? And, more than that, if physical pain was an acceptable reason to end one’s life, shouldn’t mental pain be, too? Doctors and lawmakers, he came to believe, couldn’t pick and choose. There was simply too much gray area. “Philip came to think that efforts to suppress rational suicide were ‘a sign of an increasingly sick society,’” Katie Engelhart writes. “They were a sign that, maybe, society wasn’t so confident in its reasons for insisting on life.”

Complete Article HERE!

What happens when someone is dying?

Dying is unpredictable. It is not always possible to know for sure that a person is in the last days of life, predict exactly when a person will die, or know exactly what changes the person you are caring for will experience when they are dying.

However, there are certain bodily changes that show a person is likely to be close to death. It is normal for these signs to come and go over a period of days, and if they do go, this does not usually mean that the person is recovering.

Some of these changes may be distressing, but it can be reassuring to know what to expect and how to help. Signs that a person may be dying can include:

By clicking on the links above you can find out more about these changes and whether there is anything you can do to help.

The links below give more information and practical advice relating to other concerns or questions that might arise:

More information about support available and what to do after a death is available at the links below:

Thanks to the National Council for Palliative Care, Sue Ryder and Hospice UK for their kind permission to reproduce content from their publication What to expect when someone important to you is dying, which can be downloaded or purchased from the Hospice UK website.

Complete Article HERE!

Scientists Monitored 631 People As They Died.

This Is What They Found

The largest international study of the physiology of death to date shows that death is “more of a continuum than the flipping of a switch.”

By Eleanor Cummins

The living have always worried about the dead coming back to life. It’s the plot of the New Testament, the reason 19th century families installed bells in their loved one’s coffins, and a source of tension in end-of-life care today.

While doctors work to reassure families holding vigil in intensive care units and hospice facilities that the end has indeed come, death remains something of a mystery—even among medical researchers. 

These unresolved questions around things like brain death, cardiac death, and more have led to the proliferation of “myths and misinformation,” said Sonny Dhanani, chief of pediatric intensive care at the Children’s Hospital of Eastern Ontario. 

“We felt [stories about the dead coming back to life] might have been impacting people’s motivation to consent for their loved one to be a donor, and for the medical community to offer, donations,” he said. “We wanted to provide scientific evidence to inform the medical understanding of dying.”

In a new study, published Thursday in the New England Journal of Medicine, Dhanani and his team report the results of the largest international study into the physiology of dying to date. It suggests the living can rest easy, kind of.

Between 2014 and 2018, the researchers observed the heart function of 631 patients in 20 adult intensive care units in Canada, the Czech Republic, and the Netherlands after they were taken off life support. The scientists found that 14 percent of the dead showed some flicker of cardiac activity—measured by the electrical activity of the heart and blood pressure—after a period of pulselessness.

But the doctors at the patient’s bedside never got a determination of death wrong. “No one lived. Everyone died. No one actually came back to life,” Dhanani said.

The sputtering was short-lived—the furthest cardiac activity came just 4 minutes and 20 seconds after their heart initially stopped beating—and not strong enough to support other organs, like the brain. 

The data “help us understand how to medically define death, which is more of a continuum than the flipping of a switch,” according to Joanna Lee Hart, a pulmonary and critical care physician and assistant professor at the University of Pennsylvania’s Perelman School of Medicine.

“Our bodies are physiologically designed to stay alive… As our bodies try to keep us alive, they will pump out natural chemicals to sustain life as long as possible,” Hart wrote in an email to Motherboard. But, she added, “Once the dying process starts, it is very hard to return a person’s body back to a condition where the person can survive.”

This should be comforting to families and medical providers. Among other things, the research affirms that current practices, which typically tell doctors to wait 5 minutes after the pulse stops to name a time of death, are working. At that point, things like organ retrieval are safe to start.

While there are still plenty of questions about death, dying, and the afterlife, this study—which is unlikely ever to be repeated, given its scope—is something close to the definitive word on the question of the post-mortem cardiac activity.

“Determining death is so emotional to everyone,” Dhanani said. “We hope that rigorously studying death and dying, not being afraid of that conversation, will help.”

Complete Article HERE!