Category: Cultural Expressions

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We are all going to die

— During my first several hours administering ashes as a hospital chaplain, I kept cringing.

Chaplain Angela Song, right, places ashes on the forehead of surgeon Michele Carpenter at Providence St. Joseph Hospital in Orange, California, in February 2023.

By Rachel Rim

Inside the vast, dimly lit chapel, I stand beside a stool that holds Q-tips, a number ticker, and a small jar of ash. The chapel is musty and dark, its stained-glass windows allowing little light to permeate the pews. It lacks a cross, bimah, or any other particular faith marker. This chapel is not a gathering place for a specific community but a refuge for the thousands of patients, family members, and staff who enter the Columbia University Irving Medical Center each day.

Nurses in navy scrubs begin to queue outside the entrance, and I ready a Q-tip in one hand and the jar of ash in the other. Then, as each person squats before my five-foot frame, I check their badge, make a black cross on their forehead, address them by name, and say, “Remember that you are dust, and to dust you shall return.”

Most of them murmur a thank-you and leave; a few walk past me to sit silently in the pews. One or two enthusiastically tell me how glad they are that the hospital offers ashes on Ash Wednesday. The mood, however, is mainly somber, and I wonder as I administer the ashes what these colleagues of mine—nurses and doctors and social workers—are thinking as they receive a sign of death on their bodies before making their way to the dying bodies they are caring for.

Ash Wednesday is the busiest day of the year for our spiritual care department. It’s a whole-team affair: the Catholic priest attends to specific sacramental needs, the chaplains who are comfortable with the imposition of ashes each cover an assigned part of the hospital, and those who are not handle the litany of calls and referrals that make up a day at the hospital. Like a symphony, it takes everyone doing their part to play the piece.

Last year, the day after Ash Wednesday I was sitting with my chaplain cohort when I saw a New York Times article about a man who was being investigated for hate crimes after multiple incidents in which he punched Asian Americans on the subway. I found myself suddenly in tears, unable to breathe—an intensely physiological response that was unusual for me. When my supervisor, a rabbi, realized what state I was in, she promptly invited me to accompany her and another chaplain friend to visit a colleague who’d gone into labor the day before. We made our way over to the maternity ward and held the beautiful baby. At the new mother’s request, we each spoke a blessing over the infant—one Jewish blessing, one Christian blessing, and one Indigenous blessing, representing each of our traditions. As we stood in the quiet, clean room blessing this new life that had entered the world on Ash Wednesday, my body calmed and I relaxed into the safety of my friends.

The mother, also a rabbi, now says that Ash Wednesday is her favorite non-Jewish holiday. She loves the personal resonance she feels with it as her daughter’s birthday, as well as the memory of the sacred moment of mutual blessing and respect that we shared the following day.

I, too, have come to love Ash Wednesday differently after two years of working in the hospital on this day. For me, the memory of being invited to provide a blessing in my own tradition to this daughter of a rabbi feels like the embodiment of interfaith chaplaincy. It baptizes this day with a kind of hospitality, marking it not merely as a day of somber repentance and meditation on mortality but also one of generosity and grace, a day that all can participate in regardless of their faith tradition.

The first time I administered ashes at the hospital, I was shocked both by how many people—patients, staff, visitors—wanted ashes and by the genuine gratitude and peace they seemed to feel upon receiving them. It felt incongruent to me, to feel peace at a symbol of one’s mortality: Why were they so grateful to have a stranger remind them that they will one day die? I felt as though I were saying, “Hello, good doctor—receive this sign that one day you will die just as inevitably as all your patients will.” I cringed for the first several hours that I administered ashes.

Then something shifted. I went to the pediatric ward and administered ashes to my patients, the children of parents desperate for hope and healing. I saw how this ritual gave them that hope and healing, the way their eyes closed, their heads bowed in gratitude, and their shoulders relaxed ever so slightly. I remember going into the room of a patient I’d been following for months, a five-year-old girl with leukemia, and feeling both a kind of dread and a strange, unexplainable grace as I marked her and her parents’ foreheads. It meant something—it meant everything, perhaps—that I, too, wore a cross of ash on my forehead as I marked theirs. I was not pronouncing their deaths like some kind of prophet or angel of death; I was joining them, and inviting them to join me, in the knowledge of our universal mortality. In a sense, I was saying, “We are all patients here. We are all going to die. We are all called to join Christ in his death and his resurrection.” Perhaps providing ashes on this holiday was the deepest embodiment of solidarity with sick and dying people that I possessed.

After that experience, I came to see administering ashes to staff differently as well. Rather than feeling like I was dooming the work of the doctors and nurses who came to me with their heads bowed—essentially telling them that no matter how hard they tried or how advanced medical science became, they would ultimately fail—I was relieving them of a burden too great to carry, one that medical providers are too often asked to hold. They are not, in fact, in the business of saving lives—not in the sense of endlessly deferring death, curing people of the disease of mortality.

Human beings cannot be cured of our mortal diagnosis; death will come for each of us at one time or another, no matter how healthy our lifestyles and how frequent our scans and checkups. Perhaps by administering ashes to these doctors and nurses, I was helping remind them of that truth, freeing them even a little from the enormous pressure that they carry. Their jobs are not to cure but to care, not to fix but to heal, until the inevitable and universal healing of our bodies comes in the form of the death we will all one day face.

According to the United States Centers for Medicare and Medicaid Services, physician and clinical services expenditures in 2021 totaled $864.6 billion. An estimated $4.3 trillion was spent on health care that year in the US, $1.3 trillion of it on hospital care. In 2017, a team of Australian health-care researchers reported that so-called futility disputes in that country—wherein patients with an extremely low or zero chance of recovery, such as those who are legally brain-dead, are kept on life-sustaining interventions in the hospital—cost $153.1 million per year.

The story behind these numbers is a complex one, and no single narrative can be extrapolated from it. Nevertheless, it seems clear that Western culture is too often a death-denying culture, one where the inevitable fact of our mortality stands in stark contrast to the billions of dollars spent each year not only on medically futile treatment but also on the many products aimed at denying death, halting the aging process, and alleviating the sting of acknowledging that we are mortal creatures. We know that we will die, but like children who cover their ears to ignore their parents’ commands, we block out the noise of our impending death with any device or entertainment we can find.

Distracting ourselves from death is not necessarily a bad thing. Human beings weren’t designed to dwell endlessly on our mortality, to read constant stories of violence and death on the news and ruminate over the inevitability that our loved ones will one day leave us. Jesus himself, even as he set his face toward Jerusalem and the violent death he knew would come, broke bread with his disciples, debated with his neighbors, and spent hours reclining after supper with friends and strangers.

Nevertheless, there is a difference between appropriate distraction and endless denial, and research has shown that such denial has enormous costs, from medical expenditures to the quality and length of one’s life (Atul Gawande makes this argument powerfully in Being Mortal). For my part, I have come to see Ash Wednesday, with its blunt liturgy and embodied rituals, as a profound antithesis, perhaps even a kind of antidote, to the particularly American denial of death. I now see the hospital setting as a uniquely appropriate stage for the drama of ashes, and its actors—the patients, families, and staff—as the people who have the most to teach us about how to live well as mortal beings, which is above all a question of how to die well.

The dramatization of death in the hospital that happens every year at the start of Lent leaves no room for escape, whether one wears a cross of ashes or shares a room with one who does, whether one is receiving a diagnosis or delivering one. We all bear witness with our bodies to the truth of our finitude, and for one day every year, perhaps we can help heal one another of our tendency to forget. There can be a grace to remembrance, after all. We remember that we are dust and that we will return to dust, and by remembering, we invite ourselves and one another to learn how to live in this fatal time between.

Complete Article ↪HERE↩!

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My dad’s assisted death was a parting gift.

— I wish I’d said so in his obituary

Kelley Korbin wished she’d included the fact that her father had a medically assisted death in his obituary.

In writing about death, we use euphemisms that sometimes obscure how we actually feel

By Kelley Korbin

My father’s death was something I’d worried about for decades — probably since I learned that smoking kills. But years of pre-emptive angst didn’t prepare me for the crushing heartache that landed like a rock on my chest when he finally died from lung cancer at 82 last year.

I couldn’t have known how the deliberate way he chose to die would become part of his legacy. Or that Mom’s reticence would prevent me from sharing with the world that he had medical assistance in dying. I had hoped to honour my father with an obituary that inspired readers to live harder and love bigger. And, I wanted to package his life with all its complexities and idiosyncrasies into an honest tribute that — if you read between 20 column inches — revealed his authentic nature.

For example, I wrote he regaled us with tales that we never tired of hearing, that he was never one for small talk and that he was his most relaxed self when he travelled. I’ll decipher: Dad always prefaced his (albeit entertaining) stories with, “Stop me if you’ve heard this,” and then launched right in with nary a nanosecond pause for interjections; he did not suffer fools and, without a margarita in hand on a tropical beach, he could be pretty set in his ways.

The one thing I didn’t want to couch was how he died.

I’m reticent to use a hackneyed term like transformational but it’s the only one I have to describe what we experienced. Medical assistance in dying spared Dad many indignities and, for the family he left behind, knowing in advance the exact day and time of his death provided us with a chance to say everything we needed to say and send him off steeped in the love he deserved.

As I watched Dad take his last peaceful breath (not a euphemism, it really was), I was flooded with gratitude for living in a country where my father had the option to forgo a long, slow death. I wanted to share it with the world.

The federal government wants another pause in allowing medical assistance in dying (MAID) requests from those suffering solely from mental illnesses. CBC’s Christine Birak breaks down the division among doctors and what it means for patients who have waited years for a decision.

So, I asked Mom.

“Can I write that Dad had MAID in the obituary?”

“I’d rather you didn’t.”

I’m not usually one to demur. But this was my mother — just a day after her husband of 60 years had died. Plus, obituaries cost a bundle, and she was paying.

“OK, no problem,” I said and went on the hunt for a breadcrumb to drop in the obit. Dad’s death was neither “sudden” nor “unexpected” or “tragic,” leaving me unsure of what coded language to use for assisted dying.

In the end, I settled for the truth: Dad died surrounded by his family as the sun set.

Two women and a man pose for a selfie on a rooftop with palm trees in the distance. They’re all smiling.
Korbin’s parents, David and Judi, were married for 60 years.

For the next year, I regretted what felt like a lie of omission. Then, on the first anniversary of his death, Mom said to me, “It’s taken me a while, but now I see that your dad traded a few months of his life to give us a beautiful death.

She was right.

Dad had always been generous with material things, but his deliberate death was perhaps his greatest gift. Watching him make his difficult decision with grace and equanimity was the bravest thing I’ve experienced. We have always been a close family, but I don’t think any of us, even Dad, could have predicted the way sharing this rite of passage would bring us closer. Even a year after our patriarch’s death, I can feel a deeper intimacy between those of us he left behind.

Beautiful indeed.

I took my mom’s opening to probe further.

“Why didn’t you want me to put MAID in the obituary? Were you worried about the stigma?”

“Me? Stigma? Not at all,” she said, “I just didn’t think it was relevant.”

And then she added, “But I do now. So you go and tell the world about your father’s big, beautiful, assisted death.”

Complete Article ↪HERE↩!

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I Love the Beautiful Chaos of a Jewish Funeral

— There is something quite moving about all this grief amongst all this routine.

By

It was only relatively recently that I learned that holding funerals within 24 hours was a Jewish custom, and not the general norm. I’ve been extremely lucky in having gone to quite few funerals, and almost all of these have been those of Jewish family members, so it simply didn’t occur to me that we might be doing anything unusual in having them so quickly. Without the understanding that this wasn’t standard practice, I didn’t consider it exceptional — but the impact it has on the process of mourning can be, in my opinion, a significant and unifying one.

In the Torah, we are told that “You shall bury him the same day. His body should not remain all night.” And traditionally, the urgency of the funeral is linked to the importance of returning the body to the earth and allowing the soul to return to God. As a culturally-not-religiously Jewish person, I was unaware of both the scriptural and spiritual reasoning until very recently. I would have placed the emphasis on the emotional reasoning, which argues that the immediate experience of loss, mourning and proximity to death is a deep pain to feel, and one which should not be undergone any longer than absolutely necessary. Now it seems clear to me that it’s more about custom than anything else. Either way, I have come to hold it as an immensely important, beautiful aspect of the Jewish culture around death.

In December, my great-great auntie Marjorie became quite ill and we as a family braced ourselves for an upcoming funeral. She, along with much of my family, lived in Manchester, so in the lead-up to her passing, the London sect of us were on slight tenterhooks in anticipation of journeying up on little notice. In these moments, the banal and the profound are forced to find some kind of harmony. When contemplating loss is simply too vast, logistics take on a special importance.

In some ways, the knowledge that you’re just waiting for a death to occur so that the chain of events can start to unfold can be quite tiring. Maintaining a state of urgency over an extended period of time is logistically and emotionally tricky, and having to be pragmatic in the face of something so sad can feel like an unnecessary added encumbrance. But ultimately, there is no actively good time for a funeral. No one is looking at their diary and finding the perfect date to dedicate to doing something none of us want to do. In some ways, recognizing that the funeral will be hard no matter what, and then allowing it to take precedence over all other commitments, is the best way to allow a loss the appropriate space it deserves in our lives.

When the day arrived, a large portion of it for me was taken up by travel. We woke up to cancelled trains — standard — and then huddled alongside however many other disgruntled passengers at Euston. My mum’s cousin Caroline and I ran at absolute breakneck pace through crowds of people to get seats as soon as the platform was announced. On the drive from the station to the cemetery, we passed innumerable family monuments: the prison to which my uncle was told his parents had been sent in a prank by his cousin, the sandhills where Caroline reported “practically torturing” my mum when they were little, the shop to which it was a very grown up privilege to be allowed to walk to alone. Despite most of my visits to Manchester now being for funerals, the city will always feel full of life. Our memories and our history are part of the fabric of the place, and so many of those who we’ve lost are kept alive in the stories we can’t help but keep telling.

The funeral itself was brief and beautiful. My great-great aunt was a truly incredible person whose innate kindness and protectiveness distinguished her as remarkable to everyone around her. With it all having to come together so quickly, the words people choose take on a special significance: they are candid, and emotional, and cut straight to the core.

And yet, alongside mourning and meaning exists the mundane. People keep being people, and we continue to have to get ourselves from A to B. On the journey back to the station after the funeral, I sat squashed between my uncle and my grandfather in the backseat of my great uncle’s car, and we sat for a short eternity in a gridlock outside my grandma’s primary school, entertained by stories about that time of her life. When we finally got to the station, we caught a train by the skin of our teeth. By holding funerals so quickly, we force our lives to fit into the space around them, and require them to find a way to enmesh themselves into the day to day. There is something quite moving about all this grief amongst all this routine.

Sitting on trains gives you the wonderful gift of time to think. I reflected on my privileged position, experiencing the funeral of someone so beloved as a peripheral mourner, and how this offered another insight into the magic of having a funeral within 24 hours of a death. With this custom, in the direct aftermath of losing someone the people closest to the deceased are immediately wrapped in love. Their family and friends flock to them and make sure they aren’t alone with their grief. The initial experience of living without someone involves being in a room full of people who are there to remember and celebrate them. A funeral within 24 hours catches you just as you fall into the abyss.

And whilst there are undeniable impracticalities, the system manages to account for most. For those who are unable to make it, attending a shiva in the coming days offers them another chance to support and commemorate and mourn for themselves, as well as to contribute to the elongation of the period in which those closest to the deceased are surrounded by care. Whilst the funeral comes quickly, this does not mark the end of the grieving process — rather, it’s the beginning of the talking, processing and feeling. I am grateful that, thanks to Jewish custom, that beginning starts within 24 hours of a death. It’s exactly what we need.

Complete Article ↪HERE↩!

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Preparing to Meet Your Maker, Plus Cake

— The Life of a Death Cafe

Can the “death positive” movement help fix our dysfunctional relationship with the inevitability of human demise?

by Steffie Nelson

An early and pivotal scene in Greta Gerwig’s “Barbie” finds a rager underway at the Dreamhouse. Dressed in sequins and spangles, Margot Robbie leads the Barbies in a choreographed routine to Dua Lipa’s “Dance the Night.” After they throw their synchronized hands in the air, certain that tomorrow will be “the best day ever,” Robbie pauses, an ecstatic perma-grin on her face, and blurts out, “Do you guys ever think about dying?” Screeeech. The dancing stops; Barbie’s grin falls away. “I don’t know why I just said that,” she stammers. “I’m just dying…to dance!” Everyone cheers, the music resumes and all is right once again in Barbieland.

Minus the disco dancing, the scene is a fairly accurate depiction of how conversations around death tend to go in our society. But there are signs that this may be changing, thanks to a growing “death positive” movement that seeks to normalize the recognition and embrace of the ultimate elephant in the room. The movement’s advance can be measured by the growing popularity of Death Cafes such as the one I joined on a recent Thursday afternoon in the L.A. neighborhood of Los Feliz.

Around 20 of us had gathered for the monthly meeting inside a sanctuary hung with silk Buddha tapestries on the second floor of the Philosophical Research Society. Ranging in age from mid-20s to mid-70s, we knew little about each other beyond our common interest in talking about death and dying. As per Death Café tradition, tea, coffee and cake were served. First-timers quickly learned that the meetups were not grief or bereavement groups by another name.

It was during the pandemic that Lui began to explore how Western culture related — and failed to relate — to death.

“It is really just giving people the opportunity to talk about death from whatever perspective they feel is important to them at the moment,” said the event’s founder and facilitator, a 72-year-old artist, transformational psychologist and scholar of comparative religions named Elizabeth Gill Lui.

It was during the pandemic that Lui began to explore how Western culture related — and failed to relate — to death. “You’d think we would find common ground,” she recalled. “Instead, it’s politicized. Because I’m closer to my own death, I felt that I should have been more informed about the issues surrounding death and dying.” Lui took a course on Zoom to become certified as a death doula, or an end-of-life caretaker who provides non-medical assistance and guidance to the dying and those close to them. In September of 2022, she organized her first Death Café at the Philosophical Research Society, a spiritual and cultural center she considers her “intellectual home.” It has met on the third Thursday of the month ever since.

The first-ever Death Café was hosted by Jon Underwood in his London basement in 2011. According to his original guidelines, the meetings must always be not-for-profit and remain fundamentally unstructured. Inviting a guest speaker, selecting a book to discuss, choosing a theme — any such activity disqualifies the event from using the Death Cafe name. The host is obliged only to serve tea, coffee and cake, and open up a conversation.

Because death is not an easy subject to broach, the freeform meetings are designed to help participants find their own way. “If you get people talking about it, they start to find the language,” said Lui. “Everyone has something they can think about and share that needs to be heard.” In this moment in history, when overdoses, suicides, school shootings, climate crises and war are part of the daily discourse, a death discussion might also address societal and environmental devastation.

Caitlin Doughty founded The Order of the Good Death in 2011.

Every meeting brings together newbies and regulars, many of whom are relieved to discover a meaningful social outing devoid of small talk. “From the moment we start talking, it’s authentic,” said Lui. “It gives people the opportunity to touch something that’s at the core of who they are. It’s not about the weather or traffic, or ‘What did you do today?’ I think people are hungry for that.”

On the afternoon I attended, Lui opened the conversation by asking what brought us here. The responses varied from the loss and illness of friends or family members, to the dawning awareness of death by people in their 70s, some of whom were beginning to educate themselves about the right-to-die movement and eco-friendly burial alternatives. Several were end-of-life or grief counselors. A few people admitted they were simply afraid of dying. Whatever our motivations, Lui encouraged us to “befriend death.” When a companion is as constant as death, it is preferable that it be a friend rather than an enemy.

When my turn came, I explained that the death of my beloved dog earlier that year had been part of a personal reckoning around mortality — my own and that of everyone I loved. I admitted that I found the subject difficult to discuss even with close friends. And yet here I was, opening up with a group of strangers. Over the course of two hours, the conversation touched upon the effects of the hallucinogen DMT, Anderson Cooper’s grief podcast, an episode of “Black Mirror” that explored the digital afterlife, and a Getty Villa exhibition about the “Egyptian Book of the Dead.”

Lui’s is just one of a number of Death Cafés that meet in and around Los Angeles. Through the organization’s website you can find information for similar gatherings in San Diego, Santa Barbara and Palm Springs. To date, Death Cafes have been held in 87 countries, from Afghanistan to Zimbabwe, but Lui’s is the only one where you might be served her legendary carrot cake.

Death Cafes are part of what has come to be known as the “death positive” movement. The term can be traced to the work of an L.A. mortician named Caitlin Doughty, who in 2011 founded The Order of the Good Death, an organization that advocates for funeral industry reform and a more openness around death and dying. The pandemic acted as an accelerant for “death positivity,” as millions of people found themselves forced to confront illness and mortality in previously unimaginable ways. Since 2019, membership in the U.S.’s National End of Life Doula Alliance has more than quadrupled, with new training programs being offered across the country to meet demand.

The growing field of end-of-life care is increasingly reflected in popular culture. The title character of Mikki Brammer’s 2023 novel, “The Collected Regrets of Clover,” for example, is a death doula in New York City who attends Death Cafes at the public library and drinks cocktails on the Lower East Side. “The secret to a beautiful death is to live a beautiful life,” Clover’s 87-year-old neighbor Leo tells her as he breathes his last, and more and more resources are consciously intertwining the two. The Brooklyn-based Morbid Anatomy has grown from a blog into an online platform, library and brick-and-mortar space where one can take classes, participate in a “Death Meditation,” and pick up objects like Victorian memento mori and Dia de Los Muertos-related folk art. There’s even a #DeathTok hashtag on TikTok featuring posts with billions of views.

This November, dozens of speakers on subjects such as psychedelic therapy and assisted suicide addressed 600 attendees from the death-and-dying field at the the sixth End Well Symposium in Los Angeles. Professional hospice care has been available for over 50 years — Elizabeth Kübler-Ross’s 1969 book “On Death and Dying,” which introduced the idea of the five stages of death, is a venerated classic — but with the death-positive movement, death is being embraced as a vital part of life, not just the end of it.

The site is a wealth of practical resources and information on death preparedness, end-of-life care, funerals and grief.

Things were different as recently as 2018, when Departing Dearly founder Wendy Mullin found herself researching end-of-life services for her mother. “I realized during the process that there were a lot of things that didn’t make sense,” recalled Mullin, a designer of clothing and interiors. “Why are we putting these lacquered boxes in the ground and embalming people?” she wondered. For the creator of the fashion brand Built by Wendy, known for its rock ‘n’ roll tailoring and coveted guitar straps, the presentation of information was its own form of stylistic hell. “Everything was either religious or ugly. I felt like I was looking at the Zales Jewelers of death information.”

Finding no website that spoke to her aesthetically, Mullin began thinking about the need for something new. “Goop — but for death. Instead of lifestyle, what about deathstyle?” she said with a chuckle. In 2019, Mullin started developing a deck and talking to people about the project. When COVID hit, the idea of monetizing a site lost its appeal, and she turned down a couple of potential investors before deciding to build the site as a public offering in her own “punk rock” style.

The main image on the Departing Dearly homepage is a person stage diving into a crowd. It’s an analogy for “the process of dying,” said Mullin. “It’s like jumping into the unknown. You’re hoping someone is gonna catch you. You’re trusting other people to help you.”

The site is a wealth of practical resources and information on death preparedness, end-of-life care, funerals and grief. It also explores how death shows up in art and pop culture, from a classic film like 1965’s “The Loved One” to a virtual reality near-death experience called Virtual Awakening. Recent posts on the Departing Dearly Instagram account feature the show “Succession,” the climate activist group Extinction Rebellion, and the 97-year-old artist Betye Saar, whose large-scale commissioned work “Drifting Toward Twilight” recently opened at The Huntington in Pasadena.

Like Lui, Mullin became certified as a death doula during the pandemic as a way to deepen her relationship with death and dying. The training helped her initiate meaningful conversations with older relatives and allowed her to get more comfortable with her own mortality. Fundamental to her understanding was Ernest Becker’s 1973 book, “Denial of Death,” which posits that our society’s competitive drives toward status and success are elaborate distractions, as Mullin described it, “so we don’t have to stop and look at the fact that we’re gonna die.” (She also links our phone addictions to “death anxiety.”)

“I think it’s literally being ‘woke,’” she said of the decision to face death. “We’re waking up to our own lives.”

Last month, I found myself at the Philosophical Research Society again, this time for a Living Funeral Ceremony. Essentially a guided mortality meditation, this ritual was created and led by Emily Cross, a musician and death doula who runs the Steady Waves Center for Contemplation, an end-of-life space in Dorset, England. Cross had traveled to the U.S. to host several ceremonies on the West Coast; this one was organized with the group Floating, which facilitates events related to music and healing.Although ceremonies at Cross’s center can involve lying in a woven willow coffin, for this one we sat and lay on yoga mats.

I found unexpected solace in the idea that my spirit could exist as a ray of light or the sound of a bell, struck just once but reverberating through eternity.

Cross created the Living Funeral Ceremony after hearing about the South Korean tradition of mock funerals, which were developed to curb the country’s high suicide rates. “The purpose of this ceremony,” she said, while moving softly through the room as we contemplated our own image, “is to enrich your life by bringing death into immediate and clear view.” There were some tears shed as we were guided to say goodbye to everything we knew and loved. Before each mat was placed a clipboard with a single sheet of paper, on which we were to write our last words. Then, Cross began a deep, guided visualization of letting go of our physical bodies as we covered ourselves with a funereal shroud. After some time inhabiting this fugue-like state, we were guided back by her voice.

I will admit that my own “final” words included regrets and unresolved emotions. I am not one of those people who could die happily tomorrow, satisfied that my purpose has been fulfilled. Yet I was surprised to discover that, when contemplating what I might “leave behind” after death, the idea of worldly accomplishments barely registered. My mind wasn’t trained on legacy or immortality, but on love and energy. I found unexpected solace in the idea that my spirit could exist as a ray of light or the sound of a bell, struck just once but reverberating through eternity.

After we came back to “life” and shared our experiences, I felt grateful and glad to get to live another day — and to have time to work on those regrets. When the time does arrive, I hope to have cultivated Lui’s fearlessness. “I want to experience death,” she told us with a smile. “I’m convinced it’s going to be interesting.”

Complete Article ↪HERE↩!

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My dad’s funeral in the Philippines showed me it’s OK to party the pain away

— When my father died suddenly of a heart attack, I was thrust into an unfamiliar world of grieving

Jim Agapito, left, and his father, Simeon Agapito, being mall rats in 2017.

by Jim Agapito

After his father’s sudden death while on vacation in the Philippines, Jim Agapito rushed to his funeral. But when he arrived from Canada, he was thrown into an unfamiliar world where his sombre understanding of mourning was replaced by superstition and festivities.

It took three days to get to my dad’s funeral in the Philippines because of a chaotic string of flights and cancellations: Winnipeg to Vancouver, Vancouver to Tokyo and Tokyo to Manila. When I landed, it took another four-hour drive to my mom’s home in a small, rural area called Jaen, Nueva Ecija.

I was tired and devastated. When I saw the coffin, all I wanted to do was burst into tears. But I couldn’t.

Crying on the coffin is bad luck, I heard in my mind. It’s what I had been told again and again by my Filipino family, who were all intent on observing Filipino customs and superstitions for my dad’s journey from the living to the afterlife

Imagine that. You rush halfway around the world to grieve your father’s death but don’t cry on the coffin because it could curse both of you.

I thought, Rest his soul, Dad is already dead. Who would be getting the bad luck?

I felt torn standing before his coffin, surrounded by family and friends who seemed to be keeping it together. On the inside, I was a wreck, and I just wanted to grieve for my father the only way I knew how. I wanted to cry. I wanted to be sad. I wanted to be alone with my mom and my brother.

But in the Philippines, there’s an unwritten but important rule: No one grieves alone, and it’s the family’s duty to create a happy atmosphere for grieving loved ones. Even if that means karaoke.

A smiling man with shoulder-length hair puts his arms around a smiling woman and a smiling bald man. They’re all standing in a mall.
Agapito, centre, with his mom Yolanda Agapito, left, and dad Simeon Agapito, right, grabbing coffee in 2018 in Winnipeg.

Fulfilling my father’s dream

This push and pull of how to grieve was a shock because it had been 34 years since I’d been to the Philippines. I was born in Canada and visited my parents’ homeland only once when I was nine.

After they retired, my parents split their time each year between the Philippines and Winnipeg. Dad was in the Philippines for Christmas when he suddenly died of a heart attack.

It was my dad’s wish that my older brother and I would explore this country he loved so much. And there I was, fulfilling his dream under the worst circumstances imaginable.

I’ve been exploring my Filipino culture through a podcast I host called Recovering Filipino. I delve into everything from why we as a community love basketball so much to what’s the obsession with sweet spaghetti.

But all of that exploration and learning didn’t quite prepare me for this deep dive into Filipino customs surrounding death.

A different way of grieving

Funeral parlours are expensive in the Philippines and there is no refrigeration for the body.

Instead, my dad’s coffin was placed in the living room of my family’s home. A home that consisted of my entire extended family — Lola (grandma,) three aunts, three uncles, five cousins and their children.

The house is big, but it’s also in a rural environment and a farm. As a city-slicker living in Winnipeg, It wasn’t like any of the Manitoban farms I went to on school trips in grade school. Our family home in the Philippines was an open door. It felt like every cat and dog in the neighbourhood roamed in the house, and goats and chickens roamed the yard. My family had to rearrange their living space based on burial tradition and superstition to accommodate the funeral. People argued about the proper procedures for mourning and how the donation box should be presented (one aunt said it has to be covered in a certain way or it’s bad luck).

Two men dressed in formal wear stand next to a woman. An older woman in a wheelchair is next to the trio. The group is standing next to an open coffin surrounded by white flowers.
Agapito, centre back, with his mother Yolanda, Lola (Epifania Bulaong) and brother Mark Agapito grieving by Simeon’s casket at Yolanda’s home in Jaen, Nueva Ecija, Philippines.

When my extended family gave their condolences and tried to talk to me, it would go in one ear and out the other. It felt like there were too many people surrounding me, and there was an expectation to entertain the guests who came for the funeral. It was a nightmare.

Dad’s funeral also coincided with Christmas. Christmas to Filipinos is like the Super Bowl of holidays. It’s the absolute biggest event of the year. Everyone is celebrating.

I was unprepared for this highly superstitious, party-the-pain-away take on mourning.

After the funeral service, we had a party to celebrate my dad’s life. Filipinos don’t believe the family should be alone and sad; it’s the job of the guests to make sure the family will be OK.

The party atmosphere was hard for me to stomach. I felt guilty for having fun after my dad died. I thought about locking myself in a room and just crying. In fact, I did try doing that at first but it’s something my family wouldn’t let me do.

Instead, they took me to shopping malls, public markets and to eat all the sugar and fried chicken my body could inhale. There was dancing, there was karaoke singing, and they even took me to ride ATVs and hold snakes at an agriculture and off-road park.

Initially, it was uncomfortable and strange to mourn like this, but I soon realized that being surrounded by family in this way actually made the initial grieving process easier.

A man holds a large brown snake around his shoulders and in his arms.
Agapito holds a Burmese python while visiting the Philippines for his dad’s funeral in December 2023.

Even the dead aren’t left alone.

Filipinos believe the body must have company so that the person can go to heaven peacefully. They believe mourners must stay with the body for at least three days so the person’s soul knows they’re dead but they have family to support them on their journey to the afterlife. It’s called the Lamay or wake.

Although many people I met in the Philippines for the funeral were strangers to me, they showed me that my dad always made people feel like they were not alone.

“You’re probably unaware, but your dad was why I could attend college,” one of my cousins told me. He helped pay for that cousin’s tuition for several years.

I heard so many stories like this.

Dad’s body wasn’t cremated with the casket. Initially, this made me angry. It felt like he was being cheated somehow. But then my mom told me, “We didn’t burn the coffin so it could be donated to a family. People here are poor. It’s something your dad would have wanted.”

Several adults and children pose for a group photo in a park. One of the women in the group is holding balloons that say “70.”
Once called a ‘bad Filipino’ by his lola (grandma), Agapito, second from left with the rest of his family, has been on a cultural recovery mission to learn more about his roots.

A different type of loss

I see now that my dad was a guy who loved living life. He liked to have a good time, so celebrating his life with laughter, singing and dancing made sense.

But how do I reconcile that with my understanding of mourning?

Back home in Canada, I often think about the time with my family in the Philippines. They helped me get through a lot of difficult times when the crushing weight of my dad’s death left me paralyzed and speechless. They taught me it’s OK to let loose and have fun.

It’s been hard being back in Canada. I feel so alone. I don’t have the warm and fuzzy security blanket of the family to grab me when I feel sad. But my mom reminds me that all of them, including her, are just a video message away.

Complete Article ↪HERE↩!

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Tips for caring for loved ones at the end of their life

— Palliative-care experts on how to comfort a dying person and prepare yourself for the supportive role

By Caitlin Stall-Paquet

Though it’s a natural part of life, death is a tough topic for many of us — even in a country where palliative care is becoming the norm. According to a recent survey, 54.5 per cent of Canadians are dying at home or in community settings, such as hospices, rather than in hospitals. Given the country’s aging population, that number will increase dramatically in the coming years.

It can be overwhelming to care for a loved one who’s dying, to say the least, so we spoke to three experts — who deal with death every day — to get their advice.

Being honest about what’s ahead

Palliative care co-ordinator Shelley Tysick said it’s important for both the dying person and the caregiver to understand what’s ahead. “Preparing somebody, it alleviates a lot of stress,” said Tysick, a palliative-care co-ordinator at Victoria-based Island Health. “And any new experience, if we don’t really know what to expect, it’s hard to know what’s normal.”

Naturally, it can be hard to broach discussions about intimate caregiving, but it can help to do it at the right time. Tysick said creating a care plan early, when there may be less stress or overwhelm, is wise. “Part of that dying process does mean depending more … on others to care for you,” she said. “That includes your personal care, your toileting, your mouth care, your eating, all of that is part of that process. And so having a plan in place and how that could be supported early on, I think is really helpful.”

Anne-Sophie Schlader, executive director of Nova Home Care in Montreal, knows just how challenging this time can be and, on top of that, what it takes to do this type of work. She emphasized that caregivers need to bring a lot of themselves to this work. “Being respectful and compassionate, not passing judgment, being sensitive and dedicated — I would say those are all very important qualities,” she said. Schlader recommended that anyone thinking of being a caregiver assess their capacity honestly and respect their personal limits to avoid causing themselves undue emotional distress or trauma.

And don’t view it as a failure if you can’t be a caregiver. “If you’re not able to do this work, it’s not because you don’t love the person,” Schlader said. “It’s a question of personal boundaries. You will show your love for them in other ways. It’s important that you don’t define this role as either ‘I love you’ or ‘I don’t love you.'”

Deferring to the medical team — and the patient

As a caregiver, it can be useful to consider yourself an extension of the medical team (while, of course, never performing tasks reserved for professionals). Your proximity to the dying person can be a huge asset — changes you see in the patient could inform their treatment.

For instance, if you notice your loved one isn’t eating as much, it can be a sign of advanced illness or a gastrointestinal issue, the experts said. But caregivers might have a hard time letting the dying person take control of their diet, and try to push them to eat even if they don’t want to. This response is common, according to Tysick and Schlader, since keeping someone nourished can feel key to caring for them. However, rather than force the dying person to eat, the advice is to share this change in appetite with the palliative-care team as soon as possible.

Also, Tysick said it can be hard for people to take a step back and make space for our loved one’s wants. “I think we often sort of want to move in to fix things,” she said. “We … identify what looks to be the problem and/or what we think would be best … with a good intention to help — but not recognizing that that’s what we would want for ourselves, but not necessarily what that person may want for themselves, or what might be most meaningful.”

What someone wants at the end of their life is influenced by their social, spiritual and emotional needs and is an individual experience, Tysick said. “There is no one way [to die],” she said. “There’s no best way — there’s no right way.”

Offering comfort

This doesn’t mean there aren’t plenty of things you can do to care for your loved one and make them more comfortable, while keeping the stakes low. “Dying people need to be touched — gently, because sometimes they’re in pain,” Schlader said. “But even if it’s just placing a hand on them, they feel it, and it’s very comforting.” She said it can also help to play calm music, wash their hair, rub moisturizer on their back, change their pillow for a fresh one, and if appropriate, place a warm compress on any sore spots.

Meeting the needs of the dying person can get expensive, however, if you need to buy equipment, like a hospital bed. Kayla Moryoussef, a death doula based in Toronto, suggested shopping for these items second-hand in stores or online marketplaces, then reselling them or giving them away when you no longer need them.

Also remember that grieving together with your loved one can be healthy and a way to show you care. “The dying person has the right to grieve their own death, and that’s often overlooked,” Moryoussef said.

In fact, the experts we talked to said it’s essential that end-of-life caregivers make space for what their loved ones need to say. “With the dying person, it’s mostly about listening,” Moryoussef said. “It’s not about what I have to say — it’s mostly about what they need to talk about.” Part of her job includes helping her clients think through what’s important for them to do before they die, like writing goodbye letters and figuring out their last wishes.

Taking care of yourself as well

Devoting a considerable amount of time and energy to someone who’s nearing the end of their life is no small feat, and Schlader said caregivers should acknowledge the intense emotions that come with the effort. “Guilt is normal, and most caregivers are going to feel guilty if they take a break,” she said.

But, she added, you have to take care of yourself if you want to be helpful to your loved one. “You’re not failing that person,” she said. “You are recharging your battery.”

Complete Article ↪HERE↩!

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How To Die Well

– Meet The Death Positive (Or Accepting) Practitioners

Have we lost the ability to die ‘well’?

By Tessa Dunthorne

Dead Uncertain: Why We’re Disconnected From Death

‘I was lucky, in a way,’ considers Dr Emma Clare. ‘I was brought up by my grandparents, so I always had that awareness that they were closer to the end of life than most people’s parental figures. We were also very immersed in nature, my grandad always outdoors in the Peak District, and bringing home dead wildlife to look at and appreciate. We especially liked birdwatching, and sometimes he’d find [dead] birds, like hawks, that you don’t often get to see up close – he’d call me outside, we’d have a look, and we’d be like, “wow, isn’t life amazing”.’

Emma is an end of life doula and has a PhD in death competency from the University of Derby. Not dissimilar to the doulas who stand alongside midwives for new mothers, she is one of the palliative and post-life care workers who step up in difficult times to hear the wishes of the dying, facilitate conversations for newly bereaved families, and provide a strand of support that the medical system cannot give. In short, she – and her peers – are the people who make death a bit more human – because, essentially, we’ve lost the ability to die well. And it’s come in no small part from our increasing disconnection from nature. 

In a recent episode of environmental journalist Rachel Donald’s podcast Planet: Critical, agroecologist Nikki Yoxall bemoans how we’ve begun to think of death in nature as a waste – as something we should try to fix. She argues that we’re increasingly ‘cleansed from decay’, a cycle within which all living things exist; that the invention of plastic itself can be credited with this alienation, as a material that defies that natural cycle with its foreverness.

dead tree
We’re experiencing a nature deficit, and this is impacting our ability to connect with natural cycles

We’re also experiencing a wholesale nature deficit. Rewilding Britain suggests that 90 percent of our time is now spent indoors; we’re less food and nature literate, too The biggest indicator of this is how we’re living beyond the limits of nature, having transgressed six of the nine planetary boundaries set out by climate scientists. But it’s also cropped up in an unexpected way: how we interact with and experience the inevitability of death. 

Like plastic, we’re now approaching a technological crux in history where we can (to an extent) deny the natural cycle of life and death (just look at the tech bros in Silicon Valley dropping millions in the search for everlasting life). Human beings have also, of course, made strides in medicine that have almost doubled our lifespans. But by doing so, argues Emma, we have also medicalised our experience of death.

‘Medical advancement is obviously a good thing,’ says Emma, ‘but it makes us feel like we’re aside from nature – that we can conquer death. And we think we know how to avoid it, when actually we don’t – we only know how to prolong the dying process.’

Dr Kathryn Mannix, the palliative care doctor behind With The End In Mind (William Collins, £9.99), argues that medicalisation has radically altered our experience of death. Or, rather, ended our experience of death. ‘Instead of dying in a dear and familiar room with people we love around us,’ she states, ‘we now die in ambulances and emergency rooms and intensive care units, our loved ones separated from us by the machinery of life preservation.’

Emma agrees. ‘One of the reasons that this discomfort starts in society is that a lot of our deaths are now behind closed doors, whereas even a hundred years ago, most people died at home with kids around.’

University of Exeter’s Dr Laura Sangha, a specialist in early modern death cultures, points out that frequent observance of dying in the past didn’t affect the gravitas of loss. ‘Seeing death more, particularly among young children, didn’t mean you grieved less,’ she says, ‘evidence points to parents and children having strong bonds, and parents experiencing heartbreaking suffering when they lost their offspring. But the fact that it was more likely to happen would have meant that you developed strategies to emotionally prepare.’

Other cultures still retain this emotional preparedness, suggests mortician-cum-YouTuber Caitlin Doughty in her book From Here To Eternity (Orion, £8.99). It sees her go around the world following different practises of mourning and burial. She found that Westernised society has shed holding space for the bereaved to grieve openly and without judgement.

In contrast, she found that the Toraja people, from South Sulawesi, Indonesia, embalm the bodies of loved ones and maintain them for years after a person dies, until their burial (after which they are often exhumed on special occasions). In Belize, families bring bodies home from the hospital for a full-day wake and pre-burial preparation, rubbing loved ones in rum to help release rigour mortis-seized limbs more quickly. Closer to home, in Ireland, wakes are held to display the body and queues of people come to pay their respects. In these examples, seeing is believing or at minimum the rituals enhance our understand of our place in the cycle; and it encourages a sense of purpose to help us grieve in meaningful ways.

‘Doulas want to bring death back into the community,’ says Emma, ‘we want to get to a point where people have basic knowledge around death.’

Community seems ultimately the key to unlocking our peace with the end. There is a hunger for open spaces for process and grief – you need only to look at the success of Death Café, which, since starting in an East London basement in 2011, has seen 10,000 events take place in 85 countries. 

‘My late son, John, had the idea of Death Café because of his spiritual beliefs,’ says Susan Barsky Reid, his mother and co-founder. ‘He was a devout Buddhist, and so examined death and dying daily. I think he thought it would be helpful for people because there is so much death denial around.’

Indeed, From Here To Eternity concludes that the key to a calmer approach to the end comes as a collective. ‘Death avoidance,’ Caitlin explains, ‘is not an individual failing, but rather a cultural one. Facing death is not for the faint-hearted; it is far too challenging to expect that each citizen will do so on his or her own.’ And Susan points to joy in this shared challenge. ‘My first experience of a death café was life affirming; people laughed a lot and it was very fun. There was such a feeling of intimacy that one got from being with a group of strangers for an hour and a half.’

And then there’s that final link: nature. ‘One of the reasons I’ve been set up to be comfortable with death is because of nature,’ says Emma, ‘because all of nature is constant life and death, and in fact the things we think are most beautiful in nature ultimately tend to be death – like the autumn leaves falling from trees. All of the things we appreciate in nature are only possible because of that cycle from life to death, and I think the more time you spend being really present in nature, the more you feel like part of it, and that normalises being part of the cycle.’

What To Do Next

  • Read… Dr Kathryn Mannix’s palliative care memoir, With the End In Mind.
  • Attend… A local death café – they take place all over the country (deathcafe.com).
  • Consider…  How you might like to be buried – and talk about it with loved ones – even if you think it’s a while off!

Complete Article ↪HERE↩!