Category: Talking about death

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On reckoning with the fact of one’s death

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A friend is sending me documents needed to make me the executor of his will. He does not expect to die from this pandemic but he has enough weaknesses in his body to be fairly sure he would not survive the virus if it gets to him. He is not as old as I am but he is not young either. He is clear-sighted enough to know what he must do now: stay at home. He is also clear-sighted enough to admit into his thinking the common fact of death.

And common fact it is — about 160,000 Australians die in the course of each year —though every death is a particular death and no single death can be quite like another. From a certain distance, it looks as if we must all enter this darkness or this blinding light by the same gate when we die, and from that point of view our common destination is undeniable.

But from another point of view, the one taken in Kafka’s famous parable, Before the Law, each of us stands at a particular gate made for us, a gate no other person can go through. Making a similar point, “Death is a black camel that kneels at every person’s gate”, goes a Turkish proverb.

I am a little shocked by my friend’s matter-of-fact approach to the idea of his death; and I am comforted by his attitude as well. At least he is not leaving matters to bureaucrats or stolid workers who might think his death is much the same as all other deaths.

As a friend, I have always valued him for the no-nonsense realism he brings to bear on our lives, and for the creativity with which he has approached every experience of his life. I tell him I will be happy to sign the documents and, if needed, to act as his executor. He says it will be simple. He has everything in labelled boxes and files.

When I talk to another friend who is a doctor at a Melbourne hospital, she speaks of the bruise on her nose from wearing a tight mask all day every day, of the sweating inside her protective plastic garments, of washing and disinfecting her hands after taking off each item of protective clothing at the end of a shift.

She says she thinks it is only a matter of time before she will be infected with the virus. She is young and her chances of survival are high, she says. I am shocked all over again by the way she thinks — or must think if she is to continue to do this work.

This fearful companion

Another day and there are nearly 2,000 people from aged care homes sick with the virus, and a record number of deaths reported for two days running. Grieving families are interviewed on television and on the radio.

I am living at home now with my death a definite shadow in my mind. I am 70, which makes me vulnerable. Many of us, I know, are in our homes with this fearful companion so full of its own patience and fierce focus.

One mercy is that I don’t have to be worrying about my parents, who both died three years ago after reaching their nineties. Their deaths followed the familiar pattern: a series of falls, an illness that brings pneumonia with it, a descent into morphine assisted sleep, then days of dragging in those last breaths as though they are being counted down.

But their deaths were particular too. My father was exhausted, I believe, and my mother was not ready to go. She fought through to those last breaths with all the fight she had in her.

In 1944 Carl Jung suffered a heart attack after breaking his foot, and was in a coma for three weeks. In a brief memoir of this experience, he describes floating out into near space where he could look down on the planet, then entering a light-filled rock that seemed to be a temple with a room inside where he was sure he would meet all the people who had been important to him, and where he would finally understand what kind of life he had lived.

At the entrance to this room, his doctor called him back to earth where there seemed to be a continuing need for his presence. He had to forego the experience of death, he wrote. He was 69 and he would live for another 17 years. For those who were caring for him, he might have looked like any patient in a coma and near death, but for him this was a particular moment of reckoning and even joyous anticipation.

Watching my parents die was its own shock after witnessing the deterioration in their bodies and minds as they aged, the reduction of their lives to a hospital bed, closed eyes, machines attached, the days-long struggle to breathe. It was almost unbearable to be near this and almost impossible to keep away as the time left became shorter.

Now in the time of this virus a painful new imposition bears down upon the families of the dying for they cannot even stand by the bed of a dying parent or grandparent or partner. The sadness of this immeasurable.

In an essay about death, called On Practice, Michel Montaigne mentioned that “practice is no help in the greatest task we have to perform: dying.”

In this matter we are all apprentices. But is there some way of breaking ourselves in for death, or must we always work and work to keep both death and the thought of death at bay?

When my sister died of cancer at 49, I remember her patting our young daughter’s hand the day before she died, saying to her, “Don’t cry, I’ll be all right. I promise you I will be all right.”

At the time I thought she was in denial, or that perhaps she thought that she needed to protect us from the heavy presence of death.

But now I think she might have been looking past us and even past herself: we do die and it is all right — and every living thing that moves only moves under the condition of its coming death. She might have been seeing this well enough to embrace its truth. I don’t know.

‘A second, a minute, longer’

Today the sun was out, a low winter sun sparkling through the twisted branches of our back yard ornamental pear trees, and I could not resist going out into the sunshine to weed around the carrots and beetroot, and take up the last of the autumn leaves from under the parsley bushes. I felt lucky to have these few minutes with the warmth of the sun on the back of my neck.

I have been reading Svetlana Alexievich’s Chernobyl Prayer, and somewhere near the end she records the words of a physicist dying of cancer from the Chernobyl fallout. He said,

I thought I only had days, a very few days, left to live, and I desperately wanted not to die. I was suddenly seeing every leaf, bright colours, a bright sky, the vivid grey of tarmac, the cracks in it with ants clambering about in them. ‘No,’ I thought to myself, ‘I need to walk round them.’ I pitied them. I did not want them to die. The aroma of the forest made me feel dizzy. I perceived smell more vividly than colour. Light birch trees, ponderous firs. Was I never to see this anymore? I wanted to live a second, a minute longer!

This reaction is deeply understandable, and each of us shares this feeling, even if only faintly, every morning that we find we have the world in our world again — for perhaps a whole day. Each time I read that paragraph I misread “I desperately wanted not to die” as “I desperately wanted to die”.

This urge to stay at home is almost matched by the urge to be out in the world rubbing shoulders with crowds. The desire to save my own life is mixed somehow with a desire to have it over with. My misreading troubles me, but it keeps happening.

A woman I know who is 30 years old answers, when I ask her how she feels about the growing numbers of aged victims to this pandemic, that there need to be more public “death-positive” campaigns in order to make death a more natural part of life in our culture — to make of it something we need not fear so much or become so angry over.

Though she speaks as if death belongs to other kinds of being than her, she makes some good sense because this is the other side of our attitude to death. Sometimes I lie in bed and count the likely number of days I might have left to me, and it always seems both a lot and not enough. And then I forget what the number was because after all, how can there even be a world without me in it?

Some years ago our dear neighbour Anna said she had decided it was time for her to die. There was nothing else she wanted. We had watched her nurse her husband through dementia for a decade, we had many afternoon teas with her as she fussed over our children and showed us the latest thousand-piece jigsaw puzzle she was completing. She talked about the books she was reading. And then one day she was ready to go.

Not long after that I visited her, more or less unconscious in a hospital bed. My amazement at her decision to go. But now, as I inch closer to old age, I imagine I might be able to understand how her decision was as much a matter of the mind as the body.

An American news service has reported that across 24 hours one person every minute died in the United States from Covid-19. I am not sure how to understand this kind of counting. It conjures images of queues of bodies, of frantic funeral directors and grieving families. It speeds up the mind and produces in me a feeling of panic.

Every minute across each day of the year about seven babies are born in the USA. A lot happens in a minute across a whole nation. Numbers tell a certain kind of story, the heart tells another, but sometimes the numbers are aimed at the heart.

If not death-positive, then perhaps we could be death-realistic. Svetlana Alexievich talked to children in cancer wards. A dying child named Oxana spoke of what she desired: “When I die, don’t bury me in a graveyard. I’m afraid of cemeteries. There are only dead people there, and crows. Bury me in open countryside.”

It is possible to know we are afraid, and know at the same time that this fear is a fear up to the brink of death, and beyond that we can go with our imaginations into an open countryside.

I am afraid, as we all are. When my daughter asks what she should do with my ashes after I am gone, the fiction we play at is that I will care what happens to “my” ashes, that it will make a difference to me, and that “I” will still be somewhere when she makes that decision.

I can never compose a clear set of instructions for her, though I know that putting those ashes somewhere in nature, perhaps out on water or under a tree, would fit with an idea I have of how the journey is best completed.

Intense light

With a state of disaster formally declared and a curfew at night for all the citizens of our city, the word, “disaster”, might seem to mark an endpoint. But it has become the sign for a new beginning and a new campaign.

With these new plans in place, drastic though they are, the possibility opens for believing, perhaps naively, that there will be a time when death does not dominate our thinking, that the virus will be a memory of a time we negotiated, a dark passage of intense narrowness before coming out of it into an open countryside. Perhaps as faltering human beings we must live this way: repeatedly imagining in hope of further scenes of rebirth.

When we know as fully as it can be known that we are each on a sure way to our own particular death, perhaps then we are already in that open countryside. My partner Andrea and I walked in the sunshine today to a park where we met, briefly, with our son, who stood well away from us, all of us in masks.

We talked about everything that is small, inconsequential, funny and ordinary in our lives. Two of us will have birthdays under this extended lockdown. We did not mention death, but everything we said was bathed in its intense light.

Our duties

I receive emails offering support and good wishes from friends interstate and around the world for the six weeks of lockdown. There is a shift in attitude and mood away from blame and towards support. We have a difficult time ahead of us. The street falls still and silent at night. I have a list of books to read, old papers to go through and throw out, but before that I find I wake up ill.

When I ring a doctor friend for advice he tells me he is COVID-19 positive himself, contracted in one of Melbourne’s aged care homes, and is in quarantine at home for two weeks. So far, into day six, he is feeling not too bad. In anticipation of this he says he has been keeping fit, eating well, and taking zinc tablets. My friend advises me to go to an emergency ward at a nearby hospital, and I do, though with much nervousness.

I am the only person in the emergency waiting area when I arrive, and am soon inside with a nurse in a cubicle, having urine and blood tests. Everyone is in plastic, masked, and across the aisle from me there are three police officers guarding a prisoner with shackles at his ankles and one arm pinned by a padlock to a wide leather belt. All three police are masked and one wears bright orange ocean swimming goggles as well.

In the emergency centre, I feel that I am both in the midst of an unfolding crisis and present at a theatre-in-the-round performance. A woman in a wheelchair asks loudly what everyone’s name is and what their job is. When one man says he is the director of the emergency centre she laughs loud and long, as though she has somehow caught the biggest fish in the river and doesn’t believe it.

Someone asks her if she wants some lunch, and she announces that she is starving and could they make up a bacon and fried egg sandwich for her followed by a crunchy peanut butter sandwich.

I am released from the emergency ward with blood and urine samples left for analysis, but without being tested for COVID-19 because I showed no specific symptoms.

My time in the hospital is a reminder to me of how far I am from the world now. A workplace, I realise afresh, can be dizzyingly busy, chaotic, packed with humanity and with unpredictable moments of basic care for fellow humans, of suffering, and those bizarre sights worthy of a circus or an opera. I have become so used to moving between two or three rooms at home and going outside only to go into the garden, that I am in a panic here in the hospital over doorknobs, sheets, chairs or curtains that I’m touching — and at the same time I feel that this closeness to others is what being alive is really about.

Returning home I have to keep reminding myself that it is in this quiet, almost passive way of living that I am doing something needed. It might be that this social isolation, one from another, is a plague response from the middle ages, but without it, we are told, modern hospitals, ventilators and ICUs will be overwhelmed. There is an intimate, human response needed to this virus. It forces an honesty upon us.

If this social isolation is now one of life’s duties, it goes along beside all the other duties, and among them is the fact that dying is one of our duties. This is an old thought, and perhaps a pagan thought.

Seneca the Younger wrote of this duty in the first century of the Christian era. Would it be too heartless to say that in the presence of so much death and illness we might now be capable of being driven into a new and eerie awareness of what it is like to be alive?

I can envy the vivid, raw consciousness of the man Alexievich quoted, the man who “desperately wanted not to die”, while feeling something desperately hopeless for him too. Perhaps a part of this being alive to dying is being able to hold and carry more than one feeling at once, and especially the contradictory feelings.

This morning Andrea called me to come and look at our second yellow poppy bursting out from her planter box in the back yard. It stands slender on its hairy stalk, its papery petals a shocking splash of colour against its perfect background, a winter sky.

Complete Article ↪HERE↩!

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The surprising benefits of contemplating your death

Now is the perfect time to face your fear of mortality. Here’s how.

By Sigal Samuel

Nikki Mirghafori has a fantastically unusual career. After getting a PhD in computer science, she’s spent three decades as an artificial intelligence researcher and scientific advisor to tech startups in Silicon Valley. She’s also spent a bunch of time in Myanmar, training with a Buddhist meditation master in the Theravada tradition. Now she teaches Buddhist meditation internationally, alongside her work as a scientist.

One of Mirghafori’s specialties is maranasati, which means mindfulness of death. Mortality might seem like a scary thing to contemplate — in fact, maybe you’re tempted to stop reading this right now — but that’s exactly why I’d say you should keep reading. Death is something we really don’t like to think or talk about, especially in the West. Yet our fear of mortality is what’s driving so much of our anxiety, especially during this pandemic.

Maybe it’s the prospect of your own mortality that scares you. Or maybe you’re like me, and thinking about the mortality of the people you love is really what’s hard to wrestle with.

Either way, I think now is actually a great time to face that fear, to get on intimate terms with it, so that we can learn how to reduce the suffering it brings into our lives.

I recently spoke with Mirghafori for Future Perfect’s limited-series podcast The Way Through, which is all about mining the world’s rich philosophical and spiritual traditions for guidance that can help us through these challenging times.

In our conversation, Mirghafori outlined the benefits of contemplating our mortality. She then walked me through some specific practices for developing mindfulness of death and working through the fear that can come up around that. Some of them are simple, like reciting a few key sentences each morning, and some of them are more … shall we say… intense.

I think they’re all fascinating ways that Buddhists have generated over the centuries to come to terms with the prospect of death rather than trying to escape it.

You can hear our full conversation in the podcast here. A partial transcript, edited for length and clarity, follows.

Sigal Samuel

You’ve worked in Silicon Valley and you still live near there, so I’m sure you’ve encountered the desire in certain tech circles to live forever. There are biohackers who are taking dozens of supplements every day. Some are getting young blood transfusions, trying to put young people’s blood in their veins to live longer. Some are having their bodies or brains preserved in liquid nitrogen, doing cryopreservation so they can be brought back to life one day. What is your feeling about all these efforts?

Nikki Mirghafori

It’s the quest for immortality and the denial of death. Part of it is natural. Human beings have done this for as long as we have been conscious of the fact that we are mortal.

A person who really put this well was Ernest Becker, the author of the seminal book The Denial of Death. I’d like to offer this quote from him:

This is the paradox. A human is out of nature and hopelessly in it. We are dual. Up in the stars and yet housed in a heart-pumping, breath-gasping body that once belonged to a fish and still carries the gill marks to prove it. A human is literally split in two. We have an awareness of our own splendid uniqueness in that we stick out of nature with a towering majesty, and yet we go back into the ground a few feet in order to blindly and dumbly rot and disappear forever. It is a terrifying dilemma to be in and to have to live with.

There is a whole field of research in psychology called terror management theory, which started from the work of Ernest Becker. This theory says that there’s a basic psychological conflict that arises from having, on the one hand, a self-preservation instinct, and on the other hand, that realization that death is inevitable.

This psychological conflict produces terror. And how human beings manage this terror is either by embracing cultural beliefs or symbolic systems as ways to counter this biological reality, or doing these various things — cryogenics, trying to find elixirs of life, taking lots of supplements or whatnot.

It’s nothing new. The ancient Egyptians almost 4,000 years ago, and ancient Chinese almost 2,000 years ago, both believed that death-defying technology was right around the corner. The zeitgeist is not so different. We think we are more advanced, but it comes from the same fear, same denial of death.

Sigal Samuel

It seems like in the West, we really have a bad case of that denial. I think we rarely talk about death or are willing to face up to the reality that we’re going to die. We seem to be wanting to always distract ourselves from it.

You are a Buddhist practitioner and you have a practice that is very much the opposite of that, which is mindfulness of death, or maranasati. You’ve done trainings and led retreats around this subject. But some people might say this is too morbid and depressing to think about. So before we actually delve into the mindfulness of death practices, could you entice us by telling us a few of the benefits of doing them?

Nikki Mirghafori

First and foremost, what I found for many people, myself included, is that facing the fact that I am not going to live forever really aligns my life with my values.

Most people suffer what’s called the misalignment problem, which is that we don’t quite live according to our values. There was a study that really highlighted this, by a team of scientists, including Nobel Prize winner Daniel Kahneman. They surveyed a group of women and compared how much satisfaction they derived from their daily activities. Among voluntary activities, you’d probably expect that people’s choices would roughly correlate to their satisfaction. You’re choosing to do it, so you’d think that you actually enjoy it.

Guess what? That wasn’t the case. The women reported deriving more satisfaction from prayer, worship, and meditation than from watching television. But the average respondent spent more than five times as long watching television than engaging in spiritual activities that they actually said they enjoyed more.

This is a misalignment problem. There’s a way we want to spend our time, but we don’t do that because we don’t have the sense that time is short, time is precious. And the way to systematically raise the sense of urgency — Buddhism calls it samvega, spiritual urgency — is to bring the scarcity of time front and center in one’s consciousness: I am going to die. This show is not going to go on forever. This is a party on death row.

Sigal Samuel

So the approach here is to bring to the forefront of our consciousness how precious our time is, by impressing upon our minds how scarce it is. And that helps align our life with our values.

Are there other benefits to practicing mindfulness of death?

Nikki Mirghafori

The second benefit is to live without fear of death for our own sake. That way, we don’t engage in typical escape activities. And it frees up a lot of psychic energy. We have more peace, more ease in our lives.

The third benefit is to live without fear of death for the sake of our loved ones. We can support others in their dying process. Usually the challenge of supporting a loved one is that we have a sense of grief for losing them, but a lot of that grief is actually that it’s bringing up fear of our own mortality. So if we have made peace with our own mortality, we can be fully present and support them in their process, which can be a huge gift.

My mom passed away two years ago. And for me, having done all of these practices, I could be with her by her deathbed, holding her hand and supporting her so that she could have a peaceful transition. She didn’t have to take care of me so much and console me. She could be at peace and take delight in this mysterious process that we just don’t know what it’s like. It might be beautiful, might be graceful. We don’t know — there might be nothing; there might be something.

Sigal Samuel

Now I feel sufficiently enticed to learn about the actual practices of mindfulness of death. Let’s start with one that seems simple: the Five Daily Reflections, sometimes called the Five Remembrances, that are often recited in Buddhist circles. Would you mind reciting those?

Nikki Mirghafori

Happy to. These are the Five Daily Reflections that the Buddha suggested people recite every day.

Just like everyone, I am of the nature to age. I have not gone beyond aging.

Just like everyone, I am of the nature to sicken. I have not gone beyond sickness.

Just like everyone, I am subjected to the results of my own actions. I am not free from these karmic effects.

Just like everyone, I am of the nature to die. I have not gone beyond dying.

Just like everyone, all that is mine, beloved and pleasing, will change, will become otherwise, will become separated from me.

Allow whatever arises to come up. It’s okay. These contemplations can bring a lot up. So just be with them as much as possible.

Sigal Samuel

I’ve done these reflections before, but every time I do them, I notice that some are much harder for me to absorb than others. The fourth one — I’m of the nature to die — does not terrify me. Maybe that’s weird, but that’s not the one that really scares me. The one that I find impossibly hard is the fifth one. Everyone that I love and everything that I love is of the nature to change and be separated from me.

It’s really the death or the separation from the people I love that I find much harder to face than the death of myself. Because if I’m going to die, you know, then I’ll be gone. There won’t be any me to miss things.

Nikki Mirghafori

Yes. So appreciate and make space for the one that really touches you.

Also I would say that with the fourth one, making peace with our own death, I’ve done the practice and sometimes I’m like yeah, sure, whatever. And then I’ve really stayed with it, and thought, “This could be my last breath.” When the practice really takes hold and becomes alight with fire, it’s like, “Oh, my God, I am going to die!” It really hits home.

Sigal Samuel

Just to clarify, this is a separate mindfulness of death practice, where you contemplate with every breath, “This could be my last inhale. This could be my last exhale.”

Nikki Mirghafori

Yes. And to bring the historical context into it: This particular teaching is what’s called maranasati. Marana is death in Pali, the language of the Buddha. Sati is mindfulness. The mindfulness of death sutra, that’s where the Buddha taught it, and it’s actually quite a lovely teaching.

The Buddha comes and asks the monks, “How are you practicing mindfulness of death?” And one of them says, “Well, I think I could die in a fortnight, in a couple weeks.” Another one of them says, “Well, I think I could die in 24 hours.” Or “Well, I could die at the end of this meal.” Or “Well, I could die at the end of this bite of food I’m eating.” And another one says, “Well, I could die at the end of this very breath.”

And the Buddha says, “Those of you who said, two weeks, 24 hours, whatever — you are practicing heedlessly. Those who said right at this breath, you are practicing heedfully, correctly. That is the practice.”

There are ways to really bring the sense of immediacy and urgency to all this. It’s not out of the question that there could be an aneurysm or that a meteor could just hit the Earth in this moment. Use visualizations; be creative.

Sigal Samuel

Another thing I find really helpful is remembering the idea of impermanence. Which, of course, is the theme of our whole conversation — that our whole life is impermanent — and that’s a very central Buddhist teaching. But also any emotion that I’m feeling is impermanent. So if I’m feeling an intense surge of fear as I do a practice, that’s impermanent, too.

Nikki Mirghafori

Yeah, I love that. When I teach impermanence, there are little impermanences that come and go, and then there is the big impermanence, which is your life! I’m chuckling because this is a case where impermanence is on your side. Impermanence is just a rule of how things run in this world. It’s impersonal. It’s just the way things are. But in our perspective, it’s either working for us or against us.

Sigal Samuel

Can you tell me about another kind of contemplation — the “corpse contemplation” or “charnel ground contemplation”? Charnel grounds are these places where, after people have died, their bodies are left to decay above ground, to rot in the open air. And Buddhist monks would go and observe them up close, right?

Nikki Mirghafori

Many monks do that, especially in Asia. In order to become more intimate with a sense of mortality, the practice is to go to the charnel ground and to actually see a corpse. And the contemplation is: My body, this alive body, is just like this body that is decaying. It’s in different stages of being a body, of decomposing.

A specific practice in the Buddhist canon is to contemplate a corpse in different stages of decay. This particular practice requires a sense of stability of mind. Do the other ones first. I only teach it on a retreat when there’s a container of safety, holding people and supporting them through it.

Sigal Samuel

I definitely have not yet worked myself up to doing corpse contemplation by looking at images of actual human corpses. But when I go for a walk, whenever I see a dead bird or squirrel or mouse that’s been run over in the road, I actually pause and take a minute to look at it. I’m trying to ease my way into this practice.

Nikki Mirghafori

Brilliant. Similarly, another informal practice I wanted to share is having a memento mori. Like a little skull, or those bracelets that are all skulls. I just drew on a little Post-It a skull and bones, and posted it on my computer monitor, so I would remember: Life is short. I’m going to die.

I’ve had various memento moris on my desk throughout the years, and I invite people to have them. They don’t have to be sophisticated. On a piece of paper, just write out, “Life is short” or “You are going to die” or “Traveler, tread lightly.” Whatever works for you to keep death in your perspective. And I think it’s good to switch memento moris around so that your mind doesn’t get used to seeing the same thing all the time.

Sigal Samuel

I’m glad you brought this up because I was going to say the corpse contemplation reminds me a lot of that memento mori tradition, which is a centuries-long tradition in Christianity. So many different religious traditions have emphasized the importance of meditating on our death and have devised ways like the memento mori to try to keep forcing the ego to recognize its looming demise.

Nikki Mirghafori

Yes. And I know that for me, I feel most alive and I feel happiest and I feel most connected with myself, when I’m aware of my death. If it happens for a day or two that it’s not in the forefront for whatever reason, I’m not as bright, as sharp, as alive. So I just love bringing it back. It enlivens me. It supports me to live more fully and hopefully die with more delight and joy and curiosity.

Sigal Samuel

I’m wondering if you can help me with something else. I mentioned earlier that I’m not really scared of my own death so much, but I am scared of the death of the people I love. And especially during the pandemic, I think that’s causing a lot of anxiety for me and probably a lot of others. We’re scared about the potential death of our grandparents, our parents, our friends. Is there a way to free ourselves of the overwhelming fear of their death?

Grief is a natural part of the process. However, it is complicated by our own seen and unseen fear of death. So I invite you to actually work with the practice of making peace with your own death. That’s what’s underlying it. Even if you think you’re not afraid of your own death, you probably are.

When people are really at peace with their own passing, there is a different perspective. There’s a different way of being with the fear or sadness of losing others. There is still a pain of loss, but it shifts.

Complete Article ↪HERE↩!

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Dying in Your Mother’s Arms

A palliative care doctor on finding a “good death” for children in the worst situations.

A palliative care doctor on finding a “good death” for children in the worst situations.

by John Beder

If losing a child to an illness is one of the worst things that can happen to a family, Dr. Nadia Tremonti has made it her mission to make it better.

It’s not easy. But as a pediatric palliative care physician, she works to ensure that terminally ill children receive quality end-of-life care. Palliative care is sometimes misunderstood to shorten life expectancy, but it’s a method that increases quality of life, improves symptom burden and decreases medical costs. We follow Dr. Tremonti in the short documentary above as she works to make death less medical and more human. In the process she asks a critical question: When a child is terminally ill, how can we make the end of life a better one?

Complete Article ↪HERE↩!

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‘Spiritfarer,’ a game about the afterlife, seeks to ease the terror of death

“Spiritfarer”

By Elise Favis

“Goodbye, my friend,” said a deer named Gwen, holding me close in a final embrace as we sailed into the blood red waters of the River Styx. Despite the intense color of the sea, and the intensity of the moment, I felt calm. Flower petals drifted on the surface of the water, and white, lush trees swayed in a tranquil way. Gwen disappeared into thin air.

“Spiritfarer,” a game releasing later this year (on several platforms including Switch, PlayStation 4, Xbox One, PC and Stadia), is about guiding spirits to the afterlife. It hopes to make the subject of death comfortable, even cozy, by focusing on relationships and care in people’s last moments while guiding them to the other side. After playing for an hour, I came away feeling hopeful and uplifted, even after experiencing its somber themes.

You play as Stella (or Daffodil, her accompanying cat, if you’re player-two via local or online co-op), a young girl who becomes a new spirit guide to the dead after Charon, inspired by the ferryman of Hades in Greek mythology, retires from that same position. You sail a fantastical world, gathering spirits and convincing them to board your ship. You help them through their problems and encourage them to accept their fates. For creative director Nicolas Guérin, building a death-positive game was cathartic; a way to cope with his own mortality as well as the passing of loved ones.

“I’m terrified of dying,” Guérin told The Washington Post in a recent interview. “I’m terrified of leaving my daughter behind me. I’m terrified of losing my friends and my family.”

His whole team drew inspiration from their experiences with losing someone. The characters in the game are each inspired by grandparents, uncles and friends who died. They’re not “carbon copies,” Guérin said, but composite characters; a mix of traits, personalities, feelings and anecdotes derived from connections they’ve had with deceased loved ones.

Guérin and his colleagues at indie studio Thunder Lotus Games had “no idea at first” if they could pull off themes of death positivity in a management sim, saying he “lucked out” with how it all came together. He said it was important to combine normal, mundane tasks with the “extraordinarily, terribly gruesome moment we face when we know we’re going to die.”

In “Spiritfarer,” your ship evolves over time as you build different structures on top of one another like eclectic towers. Some of these are temporary homes for the spirits you gather, and others are stations for cooking, harvesting, gardening and more. Each character wrestles with something. A lion couple, for example, struggles to find happiness together when one of them is unfaithful. Others, like Stanley, a talking and walking mushroom with childlike traits, just wants to be cared for, so I made him his favorite meal: french fries. Some just want to be hugged. You spend time on and off the ship, completing quests for these spirits and finding out more about Stella along the way, too.

It isn’t just through mechanics that “Spiritfarer” achieves a sense of serenity. The game has a calming atmosphere, with a striking art style inspired by Japanese painter Hiroshi Yoshida and from whimsical Hayao Miyazaki films like “My Neighbor Totoro.” This world about death is bright and colorful, rather than dark and morbid.

Having spent 15 years in the games industry, much of that time at Ubisoft working on franchises like “Assassin’s Creed,” Guérin wanted to explore death in a way that forces the player to think about it outside the bounds of a game. Instead of a fail state mechanic, death in “Spiritfarer” is the key to progress. Every time a character dies, they leave behind a room filled with beautiful, overgrown flowers. It’s a symbol of heritage, Guérin explained.

“You need to actually gather some of these flowers that are used as a token to pay a shark, to build upgrades on the ship,” Guérin said. “And those upgrades will allow you to go across specific barriers like ice or rocks.”

Guérin’s brother is the chief of staff for a geriatric ward in southern France. During early development for the game, Guérin spent a significant amount of time “documenting and understanding” what people think and feel during their final moments by meeting patients in hospice and end-of-life care facilities. As he visited the terminally ill, he noticed their drive to experience human connection or enjoy a peaceful moment. He wanted to convey this in “Spiritfarer,” rather than have characters give grand speeches or make sweeping life changes as they faced death.

“They just want to still wake up in the morning, brew themselves some coffee and spend time with their family, relatives and friends. And that’s it,” he said.

Complete Article ↪HERE↩!

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How to Say Goodbye When Someone is Dying

By Dr. Lynn Webster

Once, a patient with chronic pain due to an immunodeficiency made an appointment with me to say goodbye. For years, he had received intravenous therapies for his infections, but they had all stopped working. His other doctors had already told him that nothing more could be done, and he had little time left to live. He came to let me know that he appreciated what we had done for him.

It was a surreal moment. The young man wasn’t in agony, and he seemed to be at peace with the inevitability of his death. However, I was caught unprepared. Since I wasn’t sure how to respond, I simply acknowledged his words with a “thank you.” We shook hands and he departed. That was the last time I saw him.

Last week, a colleague of mine sent out an email to a small number of his professional associates. He told us that he is very ill. Clearly, his implicit message was that he might never see us again. 

As I reflected on his message, I felt unprepared again. I wondered how I should respond. How would I say goodbye? Should I even broach the topic? This might be my only chance to let him know that I’d always considered him a mentor. But would he become despondent if I appeared to eulogize him? Would it be hurtful to express my sadness that we might never speak again?

I certainly didn’t want to add to his suffering. Perhaps I should ignore the gravity of his illness and focus on how I hoped he would recover soon.

But that would be dishonest. He is a physician, too, and always modeled treating his patients with empathy and compassion This was the part of his character that I felt most drawn to. He is a doctor who healed as much by listening to his patients than by any other therapy.

Asking the Right Questions

I decided to tell my friend what an important role model he has been for me, but I also had a question for him. Having treated many terminally ill patients, I have learned that most people who are dying have hopes for themselves, as well as the loved ones they are leaving behind. Therefore, I asked my physician friend whether he had any hopes he wanted to share with me. He told me he had two wishes.

“As I have been reflecting upon my personal and professional life, my first hope is that my presence really made a positive difference in people’s lives. That would be my legacy. The outpouring of affection, goodwill and positive comments that I have received from ex-patients, friends, family and colleagues has made it clear that I have succeeded in that,” he said.

My friend also expressed his hope for a change in our political situation. He mentioned the anger, frustration and hopelessness he feels watching American society fall into two warring ideological camps. His hope is that the young people of today will lead us into a better future.

Opportunities for Closure

COVID-19 has forced me to think about the reality that death can catch any of us by surprise.

As I write this, we are in the midst of a pandemic that has infected more than 17 million people and taken more than 680,000 lives worldwide. Many of the COVID-19 victims died alone and didn’t get a chance to say goodbye to their loved ones.

Even in ordinary times, most of us don’t get to say goodbye. We often deny the reality of death as life draws to a close. “You’ll feel better soon,” we say, either to make ourselves feel better or to avoid the topic. Even when we are allowed to be at the bedside of someone who is dying, we often lack the courage to convey our true feelings. Honesty can be too painful during those moments.

I remember saying goodbye to my dying father. Lying with him on his bed in his home, I asked my father if he was afraid. Many of us refrain from expressing grief at moments like that, because we worry that we might make the dying person feel worse. But I could not keep from crying.

In The Four Things That Matter Most, author Ira Byock, MD, identifies the messages he considers most important to communicate to loved ones near the end of life: “Please forgive me. I forgive you. Thank you. I love you.” Expressing these sentiments can help create a sense of mutual peace and completion.

Saying goodbye does not wish death on anyone. It acknowledges the richness of the relationship that has been. That is what I felt when I told my dad I loved him, which at the time was my way of saying goodbye. It is also how I felt when I brought closure to the relationship with my friend who emailed me.

Congressman John Lewis, the noted civil rights leader, expressed hope for the future in a New York Times op-ed published shortly after his July 17th death. He said, “Though I am gone, I urge you to answer the highest calling of your heart and stand up for what you truly believe.”

Perhaps we should consider following Lewis’s example. By daring to acknowledge what is happening and to say goodbye, we are bravely addressing the highest calling of our hearts. We also have the opportunity to honor all those who touched us and made us who we are.

Complete Article ↪HERE↩!

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Sacred Crossings

– Reclaiming the Lost Art of Death Midwifery and Healing Ritual of the Home Funeral

Death Midwifery returns death to its sacred place in the beauty, mystery and celebration of life. A Sacred Crossings Death Midwife shepherds individuals toward a conscious dying experience; guides loved ones in after-death care of the body; and empowers families to reclaim the healing ritual of a vigil and funeral at home. They offer compassionate support to individuals and their families from terminal diagnosis to final disposition.

“As a culture, we deny the natural process of aging and death,” remarked Olivia Bareham, founder of Sacred Crossings. “Learning how to die consciously with grace and acceptance is the greatest gift we can give ourselves and those we love.”

Many people are unaware that they have the legal right to care for their dead at home before burial or cremation. Sacred Crossings offers education and guidance to families who wish to create meaningful funerals at home. We teach them the ancient ritual of bathing, anointing and dressing the body, laying the body in honor for a 3-day vigil and decorating the cremation casket. Inter-faith ministerial services include near-death prayer/meditation vigils, grief support and funeral celebrant services.

Sacred Crossings founder Olivia Bareham is a death midwife, home funeral guide, ordained inter-faith minister and funeral celebrant. She is a member of the National Home Funeral Alliance http://www.homefuneralalliance.org and serves on the board of the Center for Conscious Creativity. Sacred Crossings is owned and operated by certified death midwives.

About Sacred Crossings:
Sacred Crossings is changing the culture of death and dying – through death education and an alternative funeral home. We offer an environmentally friendly option to traditional funeral industry practices and the opportunity for families to have a vigil and funeral at home. The Sacred Crossings Institute offers workshops and classes in conscious dying, home funerals, end-of-life planning, and a certificate program in The Art of Death Midwifery. The Sacred Crossings Funeral Home, owned and operated by certified death midwives, offers a full range of services including home funerals, cremation, conventional burial, green burial and full-body deep sea burial. For more information, contact Annemarie Osborne, publicist at 949.237.2906 or by email annemarieosborne7@gmail.com or Olivia Bareham at 310.968.2763 or olivia@sacredcrossings.com or visit http://www.sacredcrossings.com.

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The Death-positive Movement & The Order of the Good Death

by Carl Gregg

As of last week, more than 150,000 people have died from the coronavirus in the U.S. alone. And we should be honest that that number is likely an undercount due to inconsistencies in how various localities attribute COVID-19 as a cause of death (The New York Times). Worldwide, more than 600,000 people have died of Coronavirus (NPR). The death toll will continue mounting in coming months. So in such a time as this, taking a step back to reflect on our own mortality seems in order.

Now, I will readily confess that confronting the subject of death can feel like a lot to take on: it can be a heavy, freighted topic, but it is also incredibly important. As the saying goes, “None of us are getting out of this alive!” One option, of course, is denial: trying to avoid the topic of death as much as possible until our time inevitably comes. But I invite you to consider that there is a better way. Keeping our mortality in mind and cultivating practices supportive of dying well (to the extent that is within our control) can be a key part—and sometimes a deeply moving, meaningful, and beautiful part—of living well.

Along these lines, reminders of mortality can be a central practice in the Buddhist tradition. Indeed, some Buddhist traditions specifically include “four reminders” which are sometimes linked to the origin story of the Buddha. After all, the rich and privileged Prince Siddhartha was launched onto the spiritual quest that would lead him to become the Buddha precisely when he wandered outside the protected gates of his palace and encountered three visceral, existential reminders about impermanence and change. He encountered, in turn:

  1. Old age (a person whose body had grown frail)
  2. Sickness (a person whose body had become ill), and
  3. Death (a body that had died)

In each of these cases, the young Siddhartha Gautama—the future Buddha—realized, “I am not exempt”: I too will grow older, get sick, and someday die.

My intent is not to be unduly morbid. Instead, it is to realize that reminders of our mortality—that none of us are promised even the next moment—can wake us up into more fully and freely experiencing life. We’re not going to be around forever, so stop sweating the small stuff; let that [BLEEP] go. We’re not promised even tomorrow, so let’s make the most of this time that we do have here and now. Can you feel that aliveness, that edge that remembering our mortality can bring?

The fourth reminder is that contemplative practices offer us a path of liberation—not an escape from those first three reminders (old age, sickness, and death), but a way of transforming our relationship to unsatisfactoriness. As the saying goes, “We can’t stop the waves of change from coming, but we can learn to surf.”

If you will indulge me in a related tangent, part of what comes to mind when I think about death is sex. Not in a weird way, but in a free association to another of those other big, freighted parts of the human condition. And it regularly makes me proud to be part of the Unitarian Universalist movement that is more than five decades into a commitment to comprehensive, lifespan sexuality education. Our Whole Lives (affectionally abbreviated as OWL) was launched fifty years ago in 1970. (This program was originally called AYS, About Your Sexuality.) For more than five decades Unitarian Universalism has been at the forefront of the sex-positive movement: affirming a wide range of sexuality as natural and healthy and emphasizing safer sex practices, consent, body-positivity, and reproductive justice.

I bring up that longterm commitment to the sex-positive movement because we quite progressive UUs have some work to do to be equally as committed to the death-positive movement. Death-positive, you might be asking yourself, “What is that?” For the uninitiated, allow me to introduce you to Caitlin Doughty, my favorite death-positive advocate. Doughty describes herself as a “mortician, activist, and funeral industry rabble-rouser.” I highly recommend all three of her books:

  • her memoir Smoke Gets in Your Eyes: And Other Lessons from the Crematory
  • her travelogue From Here to Eternity: Traveling the World to Find the Good Death
  • her most recent book Will My Cat Eat My Eyeballs? Big Questions from Tiny Mortals about Death.

All her writing is equal parts hilarious and profound. Some of you may recall that four years ago, I wrote a blog post on mortality inspired by Doughty’s memoir, as well as by the physician Atul Gwande’s book Being Mortal. I highly recommend that book as well, if you or someone you love is wrestling with end-of-life medical decisions.

For now, I would like to share with you the eight central values of the Death Positive Movement as articulated by a group Doughty helped found, called The Order of the Good Death:

  1. Hiding death and dying behind closed doors does more harm than good to our society.
  2. The culture of silence around death should be broken through discussion, gatherings, art, innovation, and scholarship.
  3. Talking about and engaging with my inevitable death is not morbid, but displays a natural curiosity about the human condition.
  4. The dead body is not dangerous, and everyone should be empowered (should they wish to be) to be involved in care for their own dead.
  5. The laws that govern death, dying and end-of-life care should ensure that a person’s wishes are honored, regardless of sexual, gender, racial or religious identity. [More information available at “Death with Dignity“]
  6. My death should be handled in a way that does not do great harm to the environment. [More information available at “Green Burial“]
  7. My family and friends should know my end-of-life wishes, and I should have the necessary paperwork to back-up those wishes. [More information available at “Conversation Project” and “Five Wishes”]
  8. My open, honest advocacy around death can make a difference, and can change culture.

And our culture is changing even if we still have a long way to go. One of the most pervasive death positive shifts is the Hospice Movement (which started in the 1960s and entered the U.S. in the mid-1970s). Hospice has initiated a much-needed sea change in according death greater dignity.

Relatedly, many of you may be familiar with doulas in the context of accompanying, guiding, and empowering people giving birth. There are also a growing number of people being trained as death doulas to accompany, guide, and empower people at the end of life.

And some of you may have also heard of or even participated in the Death Cafe movement, which was founded in 2004 as a way to connect people who want to talk about death in an open, honest way. As one of their promotional slogans says, Death Cafes, “never involve agendas, advertising or set conclusions. Interesting conversations are guaranteed!”

If you google “Death Cafe” (or visit deathcafe.com) and your zip code into the “Find a Death Cafe” link, you’ll find that the closest Death Cafes. You may even find one has moved to Zoom during the pandemic, and is open to all.

Here one description:

Death Cafes are an opportunity to demystify the death experience. We offer an open, safe environment for discussing thoughts and feelings about all manner of death and dying.

At a Death Cafe people drink tea, eat cake and discuss death. [“Life’s short, eat dessert first,” right?!] Our aim is to increase awareness of death to help people make the most of their (finite) lives…. Please note: Death Cafes are not meant to act as support groups or grief counseling.

If this post leaves you a little “death curious,” perhaps joining an upcoming Death Cafe might be right for you.

Overall, the hope is that being more open, honest, and transparent about our inevitable death can empower us to make the most of the life that we have. One ancient Buddhist inquiry practice puts it this way: “Since death alone is certain, and the time of death uncertain, what should I do?” 

As we sit with that question, allowing it to sink in, I want to conclude with a story. A few years ago my colleague the Rev. Georgette Wonders preached a sermon on the subject of death and mortality to Bradford UU Community Church in Kenosha, Wisconsin, the congregation she served as minister. That sermon was titled “Facing Death: The UU Book of the Dead.” She preached it on Sunday, August 6, 2014 with no knowledge at the time that she would be killed two days later in a car accident.

I invite you to reflect on the final section of Rev. Wonders’ sermon on “Facing Death: The UU Book of the Dead.” She is speaking to us from beyond the grave: both her words and the example of how she lived her life are part of the legacy that she had left behind as a gift for those of us still living. As you listen, notice if any words or phrases particularly resonate with you in this season of your life. Whether we are saying goodbye to a loved one—or whether we are the one being said goodbye to—the way we prepare is to:

  • Live each day as if it were the only day.… Every time you part, from this day forward, tell them you love them, even if you are in and out all day long.

  • Appreciate the little things—the common, everyday things—because they will become almost unbearably precious when death comes knocking at the door.

  • Overcome your resentments and learn not to accumulate them.

  • Be useful and light upon the earth.

  • Live a grateful life.