Philly’s deathcare enthusiasts want to bring back the shroud

— The idea that death and dying can be part of life, not handled by walled-off specialists in expensive facilities, has gained traction in recent years.

Attendees of a recent shrouding workshop practice on a volunteer, led by Pat Quigley, right, the supervisor of Laurel Hill funeral home.

By Zoe Greenberg

In a high-ceilinged, brick-walled space in Northern Liberties where people often host weddings, a group of strangers gathered on a recent Sunday to prepare for death.

They had come to learn how to shroud, part of a growing “death-positive” movement in Philly that seeks to demystify and de-commercialize the end of life. Many had been drawn to the hands-on workshop by fliers posted around the city that read, in part, “Yes, you heard that right! ‘Shroud’ as in wrapping a dead body for burial.”

Hosted at the MAAS building, the free event promised a shrouding demonstration (”on a live human”). It also served as the first meeting of a nascent “deathcare volunteer group,” which has aims to help Philadelphians who cannot afford funeral costs prepare and bury their loved ones. The median cost of funeral followed by burial in the mid-Atlantic region was $8,093 in 2021, according to the National Funeral Directors Association — a hefty sum for many families.

Pat Quigley, center and funeral director at Laurel Hill cemetery, teaches attendees how to shroud a dead body at a recent workshop in Northern Liberties. Kim Schmucki, on the table, volunteered to be practiced on.
Pat Quigley, center and funeral director at Laurel Hill cemetery, teaches attendees how to shroud a dead body at a recent workshop in Northern Liberties. Kim Schmucki, on the table, volunteered to be practiced on.

“I really want Philadelphia to be a death-positive hub on the East Coast,” said Isabel Knight, 29, the president of the National Home Funeral Alliance and the workshop’s organizer. In her vision, the grassroots group will wash and shroud the dead for free, and perhaps even transport bodies, in personal vehicles with burial permits, to cemeteries, Knight said.

Of actual burial or cremation, “That’s something that you’ve got to pay for, unfortunately,” she said.

The idea that death and dying can be part of life, not handled by walled-off specialists in expensive facilities, has gained traction in recent years. And the attendees at the shrouding workshop were not, on the whole, new to death — they included death doulas, a hospice music therapy worker, and a former palliative care doctor.

It was a practical meeting, but also something of a pep rally for people whose passion may not be the most popular at cocktail parties.

“I do a meditation where I visualize dying — and sometimes being cared for, and sometimes just being kind of abandoned on a cliff and decomposing,” said Natalia Stroika, 38, of South Philly, explaining to the group why she had come. “I got a lot of wisdom from that.”

Another attendee, a West Philly resident who goes by the name Ask Nicely, explained that he was in the process of growing flax in a burial ground in Upper Darby “so that I can learn to process it into fiber and then weave my own death shroud,” a comment that elicited an appreciative murmur from the crowd.

Many Jewish communities already have a volunteer burial society, or chevra kadisha, to ritually wash and prepare the dead for burial. Knight’s deathcare group will be for all religions, and particularly for those who cannot afford the high costs of the modern funeral.

Attendees of a free shrouding workshop practice wrapping a volunteer in a sheet.
Attendees of a free shrouding workshop practice wrapping a volunteer in a sheet.

Pat Quigley, 66, the supervisor of Laurel Hill funeral home and a member of the Reconstructionist Chevra Kadisha, or Jewish burial society, served as the shrouding instructor. She first reassured the group on two fronts: dead bodies do not immediately become too stiff to handle, and they do not instantly decompose.

Next was the practical matter of what to do. Everyone crowded around a pale green massage table at the front of the room; Kim Schmucki, 60, removed her shoes, revealing multicolored striped socks, and lay on the table, pretending to be dead. The group used a white linen-cotton shroud made by California company Kinkaraco, which Laurel Hill sells for roughly $900. Kinkaraco makes shrouds for a “green burial,” which means that everything about the body, the clothes, and the casket (if there is one) is biodegradable.

“Obviously we’re not going to suffocate Kim,” Quigley said, showing attendees how to roll her over and pull the shroud around her, but declining to pull it over her face. She offered a few “nifty little tricks” to keep eyes and mouths closed, advised attendees to support the head during the process, and showed the group how to tie the shroud tightly around the feet, waist, and upper body.

After the main demonstration, participants broke into smaller groups to try themselves. On the floor, a group carefully wrapped their volunteer corpse in a pale green sheet and rolled her back and forth, tied up with a bow.

“The whole death experience, like the whole birth experience, has become so medicalized and so sanitized,” said Quigley. “I think people just want something different.”

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The Empty Seat at Our Thanksgiving Table

By Sarah Wildman

Grieving parents like me are told to gird themselves for anniversaries and holidays, for birthdays and religious events. We’re advised to plan for days associated with joy. We consider exit strategies. We talk about how the markers of civil religion and religious observance are harder for us, now that we no longer exist exactly inside society, but run alongside it, observing. Each holiday centered on family is now barbed.

So, all that’s to say, I have been approaching Thanksgiving this year with trepidation.

I love a holiday focused on gratitude and gathering, of food and camaraderie. I tend to cook when I’m sad or worried, and I’ve been both, a lot, of late. I bake challah and cakes and cookies. I prepare salads and mains and sides. I sauté and stir and sweat and focus. On any given Friday afternoon, my kitchen looks as though I’m expecting a crowd. But no matter how many I’ve invited, it is never the fullness of our table I see, but the absence of a place setting.

And yet, as much as holidays and calendar markers are as hard as promised, in this first half year of bereavement since our daughter Orli, 14, died from the complications of metastasized liver cancer, it is her daily absence that is the cruelest blow. It is making a pot of Orli’s favorite black beans knowing she will never sit down to eat them; it is adding back chocolate into the recipes I had removed it from, for she, unfathomably, loathed it; it is setting the table again and again for three instead of four; it is the expansiveness of the back seat of the car. It is in this quotidian drama that our family has to work to find levity as well as management, joy and, yes, exit strategies — especially as, in so many of these moments, we find ourselves alone in the noticing.

The notes and text messages slow and stop, the absence drones on. Living in loss is heavy; it is made all the more so by a world overflowing with grief, and parental pain. I see myself in all these newly minted members of my terrible club.

It’s also a remarkable amount of work, a second (or third) job. My partner, Ian, and I have sat down with groups and met with counselors. We have joined Zoom sessions, read the words of those who have come before us. Together with our surviving daughter, Hana, 10, we recently traveled to a conference at Boston Children’s Hospital to process our grief and try to face the absence at our table with other similarly reeling families.

Such experiences aren’t in search of solace or solution, but of place. It is powerful to be around people who recognize the insistency of loss, its daily presence, the continued impact of which so easily slips past others, unseen, as everyone else returns to the business of living. It has made me recognize how many people walk around concealing pain.

As a family, we have weathered a batch of life markers since Orli’s death. Hana had a birthday in June, Ian in October. We have had Passover and Rosh Hashana and Yom Kippur and Sukkot, each of which was — the counselors were not wrong!— by turns meaningful and excruciating. Families arrived in synagogue, or at the holiday table, dressed and smiling, their children growing ever older, while Orli remains the age at which we parted.

Quietly, we mark our elder daughter missing, and wait on others to do the same. On Passover my father proposed adding a cup (“cos,” in Hebrew) for Orli, the way we leave a cup for Elijah, noting that absence is woven into our observance. In late summer we even, ill advisedly, attended a wedding. It was too soon. We were not ready to be surrounded by unadulterated joy; we did not know how to hold ourselves, and our pain, without dulling the bride and groom’s shine. We fled during cocktail hour.

But I have also found I relish the occasional dark humor of other parents who have lost children, who recognize the macabre place we all live, how comically awful it is to run into people who still don’t know. “How’s the family?” a writer I ran into asked me the other day. I wanted to say, “So Hana started volleyball, and, well, Orli’s dead.” Orli would have laughed. Instead I changed the subject.

I’ve been in awe of the strength and cheek of Hana, who decided to pen a letter to the writers of a children’s television program to tell them what real drama looks like (her sister’s seizure! Her miserable, hospitalized 14th birthday! The morning of her sister’s death, when she said a final goodbye); of Ian, who gets up daily and throws himself into parenting as though the world hadn’t ended in March.

This first Thanksgiving without Orli will also be the first time a group of friends and family that had traditionally gathered this time of year will be together since before Covid and cancer. The last time we assembled for the holiday the children ran freely in the hallways of our friends’ apartment building, careening along beige walls and dragging their sticky hands, making a hilariously loud ruckus near the elevators. I can see Orli, her hair still long, untouched by the ravages of cancer treatment, by turns serious and silly, chasing her sister and cousins, healthy, red-cheeked, unaware of what was to come. I have a photo of her there as a toddler, in a dress from my childhood, a red-checkered pinafore, years away from the abyss.

I already long had a mixed relationship with Thanksgiving, partly because it always lands on or around my birthday. I loathed, as a child, that friends would be away, that school cupcakes almost never arrived on the actual day. As an adult the holiday neutralized — even, briefly, got happier.

Then Orli had her first biopsy on my birthday, a few days before Thanksgiving, in 2019. My relationship to the holiday tilted once more. As we waited in pre-op, she worried she had ruined my birthday; I promised her there was no place I’d rather be. That first cancer Thanksgiving Orli was in terrible pain, pale and wan and yet, unbelievably, smiling in the few photos I took that week. Chemotherapy had not yet begun; her diagnosis, let alone prognosis, was still elusive.

We rushed to assemble a home-based holiday with as much cheer as we could muster. She told us she felt like she was in a movie; we wished it were so. One night, as she lay in the bath, she implored me not to cry in front of her; it scared her. So I didn’t. Instead we watched “The Greatest Showman” on repeat, and sang and cooked for many more people than we had on hand. For all the Thanksgivings that came after, I drew courage just being together.

We have tried to keep Orli with us, even as we feel ourselves slipping further away. These days I look for traces in how she approached holidays, and every day. I find myself seeking comfort in Orli’s journal notes of how proud she was of Hana for creating Ian’s birthday party one year ago (a Formula One theme), and her joy last holiday season in receiving tickets to “Wicked.” I love to hear the way Orli stories reach people, and receiving notes from her peers who let me in on things I might not have known: her favorite flower, a moment in which she extended a kindness, or was bolder than they felt they could be. I love hearing that her face is still on someone’s home screen, or that a friend took her with them, in spirit, to a concert she would have loved. Not long after she died I stumbled across a note she’d tucked into my desk drawer, written on a handmade cut-out heart, that said, “I love you Ima, no matter what.” It sits now in a lucite frame, next to me. I see her beloved foxes everywhere.

It is these chispas (“sparks” in English), as you might say in Spanish, that let me face each small daily indignity of grief: when I am asked at a restaurant “How many will you be?” and I find myself searching for the right number, when I feel my heart seize each time I see siblings together and watch Hana watching them, when I hear the opening beats of “Anti-Hero” and think of Orli, asking for Taylor Swift, in yet another operating room.

We are fundamentally rewired as a family, as humans. We face the world differently, holding loss, in both rage and sadness. This holiday season, this year, countless others have joined us in this awful place. In this time of mass bereavement, as so many will be wondering how to set their tables, or if they will even be able to gather at all, I keep wondering if the key to seeing each other’s humanity is in somehow recognizing how universal the terrible ongoing nature of loss is, how human it makes us, how frail, how essential each day is, when none of us has any idea about the next.

I wonder how we might all move forward, not just as each holiday comes, but as each day passes, not better, but altered. Meanwhile, the gratitude I’ll have this Thanksgiving will still come: from having had the chance to know this love, even in its pain.

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A visit with my late mother’s nurse, and a lesson on what you should know about hospice care

Grace Lopez, left, with her daughter Debbie Lopez, just before she was discharged from a hospital to hospice in January 2019.

By Steve Lopez

When my mother was dying, a private, for-profit hospice agency failed her — the assigned nurse was late for the first visit because of a staffing shortage. My mother suffered in misery without pain medication, and our family dumped the agency and switched to a nonprofit.

Karen Eshelman was the nurse who came to the rescue, calmly and quickly adjusting the pain medication and compassionately preparing us for the inevitable. Grace Lopez died peacefully a couple of days later, just shy of 90.

Eshelman showed up at my mother’s funeral to pay her respects, and recently, almost five years later, I dropped by her home in Concord to say thanks.

“For a lot of us in hospice care, something happened in life that made us want to give back,” Eshelman told me in her kitchen, wearing her blue uniform as she got ready for another shift. She said she lost her first husband when she was 30, and with their two kids to care for, she had to learn how to confront death and move past it.

“I know families will get through it,” said Eshelman, who remarried 25 years ago. “Grief isn’t easy, but you will come out on the other side and have good things happen in life.”

Demand for hospice care will grow dramatically as the population ages, but staff shortages, corporate profiteering and a rash of Medicare fraud and billing scandals have roiled the industry, with recent exposes in the L.A. Times and a joint ProPublica-New Yorker investigation. For a time, nonprofits resisted those trends, but Eshelman surprised me with a news flash.

A woman with a badge around her neck stands and poses for a picture
Karen Eshelman is a registered nurse who works at Hospice East Bay and cared for Grace Lopez in her final days.

She and her colleagues at Hospice East Bay had just voted to join the National Union of Healthcare Workers because they felt that industry pressures had begun to hit their agency. Eshelman said the big issue wasn’t money, but a belief that staffing shortages were impacting the quality of care.

“It leads to nurses being burned out, and not just nurses, but social workers and spiritual care counselors,” Eshelman said. “And it leads to more people calling in sick because they just need a break and they need a day off.”

Nearly 400 employees at five Bay Area nonprofit hospice agencies have joined the same union since May 2022, mirroring organizing efforts at hospice agencies in several other states.

Sal Rosselli, president of NUHW, said the corporatization of what had been primarily a faith-based, community-oriented, charitable industry has led to “an increasing drive to focus on the bottom line as opposed to providing adequate care or taking care of healthcare workers.”

When you’re holding the hand of a loved one who’s dying, you’ve got a lot on your mind, but it’s not the hospice agency’s bottom line you’re thinking about.

Some hospice employees “are being told they only have 30 minutes with a patient,” said Richard Draper, NHWU’s director of organizing, even though depending on the level of care needed, a patient might need far more attention. “The major issue for us is staffing,” Draper said, “and being able to have a voice in how the care is delivered.”

Jessica Williams is a registered nurse at the nonprofit Providence Hospice Sonoma County, where 131 employees organized in February. “I think ‘nonprofit’ is really only a name,” said Williams, who got into hospice care after her mother died in a car accident and she attended a grief support service at a hospice agency. She said a layoff and the scaling back of visits by home health aides “makes it more difficult for us to do a good job out there,” even as executives in the agency’s parent organization pocket millions in compensation.

The director of her hospice agency didn’t respond to my interview request, but I checked the ProPublica log of nonprofit tax records, in which the tax-exempt St. Joseph Providence Health — one of the nation’s largest nonprofit healthcare companies — listed its mission as being “steadfast in serving all, especially those who are poor and vulnerable.” For the 2021 tax year, according to the log, company Chief Executive Rod Hochman pocketed more than $10 million and was one of 11 executives at the company making above $1 million.

This is a nonprofit?

Claire Eustace, a spiritual care clinician at Hospice East Bay, said her job is made more difficult when the nursing team is understaffed and overworked, and there have been times when nurses had to work 10 straight days.

“It affects my work in that … loved ones are upset because they’re not getting the support they need,” Eustace said.

“We were being stretched too far and couldn’t provide good care and were getting burned out,” said her colleague Andrea Hurley, a social worker. Caseloads for social workers went from 26 to 30 and more, Hurley said, which can still be manageable except that shortages for other job categories were mounting.

“In previous years, I felt like the leadership would hear us and there could be some changes,” Hurley said.

Bill Musick, interim CEO of Hospice East Bay, said his staffing-per-patient levels are among the highest in the industry, but he conceded the agency is on the edge of a cliff financially. He’s down several nurses, he said, because it’s hard to fill positions given a healthcare labor shortage. So he’s been using contracted traveling nurses.

“Medicare reimbursement rates have increased slightly over the years, but they’ve not kept up with inflation and the increase in wages,” Musick said. “And so year after year, we’re trying to figure out what we can cut in order to stay in business.”

Holding onto legacy traditions like grief counseling isn’t easy, Musick said, and he predicts consolidation. But a recent plan to merge Hospice East Bay with another nonprofit fell through.

People can have good experiences in for-profit hospice care and bad ones in nonprofits, said Jennifer Moore Ballentine, chief executive of the advocacy and policy group Coalition for Compassionate Care of California. In general, she said, “nonprofits have better quality metrics and are doing a better job,” but they are struggling to stay afloat.

“Frankly, it’s a mess,” Ballentine said. “I weep every day for the industry that was hospice because I think it really is in trouble.”

In the hospice industry, and in the nursing home field as well, the provider network became inundated by equity and real estate investors, among other opportunists without a shred of experience in healthcare. Given the inevitability of chronic illness and end-of-life care, they flocked like vultures, eager to cash in.

California has cracked down on hospice agency proliferation following The Times expose, but greater regulation and oversight at the federal level is imperative. Dr. Joan Teno, a Brown University authority on the industry, called for a raft of reforms in a JAMA article published in May.

“The need for change is urgent to ensure that frail, older people receive high-quality care and that fraudulent care is rooted out of the system,” Teno wrote. “Quality measures are important, but there is a need to improve integrity oversight. The time is now.”

Ballentine said anyone shopping for a hospice agency should take a look at the national hospice locator, which compiles data on agency quality. When I checked Bay Area listings, Hospice East Bay was at the top.

It’s worth noting that when I spoke to my mother’s nurse and her colleagues, they told me that despite their grievances, they want to stick with their employer.

“I moved here because I love this agency and think it’s really good,” said Eshelman, who’s from the Midwest. Unionizing, she said, was a way for employees to have a bigger voice in upholding the traditions of the nonprofit model.

The ultimate goal, she said, “is to provide even better patient care.”

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20 must-watch movies about death

By Thomas West

Sadly enough, everyone must contend with death at one point or another. Given its ubiquity, it’s unsurprising that the movies have engaged with questions of death, dying, and grief, often with great effect. At their best, such films tug on the heartstrings and use cinematic storytelling to grapple with the broader questions that death inevitably raises. Just as importantly, for many people, films about death and dying are also invaluable tools for learning how to work through and process the sometimes overwhelming power of grief and loss.

‘City of Angels’

'City of Angels'

Nicolas Cage and Meg Ryan have astonishing chemistry in the beloved ‘90s movie City of Angels. Cage portrays Seth, an angel who falls in love with a human woman (Dr. Maggie Rice, played by Ryan) and, after sacrificing his immortality, learns what it means to be human. It hits many of the notes one would expect from a romantic drama of this sort, but it also does something a bit more: Using its story of an angel to ask the viewer to examine what it means to be human and how it is possible to make one’s peace with the inevitability of death.

‘Terms of Endearment’

'Terms of Endearment'

Shirley MacLaine gives one of the best performances of her career in Terms of Endearment, in which she plays Aurora Greenway, a woman with a close but complex relationship with her daughter, Emma. Things become particularly difficult when the latter develops terminal cancer, leading to some of the most emotionally wrenching and heartbreaking moments of the 1980s. It is anchored by the strong performances of MacLaine and co-star Debra Winger, and the film accurately captures how terminal illness can impact even the strongest of relationships, including the ones between a mother and her daughter.

‘P.S. I Love You’

'P.S. I Love You'

At first blush, the central conceit of P.S. I Love You —  in which a husband leaves behind a number of messages to his widow to keep her from being mired in grief — might seem ridiculous. However, one can’t help but admire the film’s commitment to this idea, which ends up being a sweet little melodrama (even if the critics disapproved). Though Hilary Swank was better known for her serious dramatic roles before this film, she does quite well as a romantic lead, and the film explores the difficulties of navigating love and loss.

‘Marley & Me’

'Marley & Me'

If there’s one thing sure to evoke tears, it’s a story about a dog. Perhaps no film pulls this off like Marley & Me,  the film based on the bestselling memoir by John Grogan. Though Owen Wilson and Jennifer Aniston are the putative stars, the yellow Labrador retriever Marley is the heart and soul of the film. Much like Old Yeller, the film is as heartbreaking as it is funny, but because of this, it is the ideal film for those who need to work through their own loss of a beloved family animal companion.

‘Soul’

'Soul'

The genius of the Pixar method of filmmaking lies in its ability to use the beauty of animation to explore weighty philosophical and emotional issues. Soul, for example, follows an aspiring musician who falls into a coma before he can realize his dream and tries to escape the inevitability of death. Like so many of the studio’s other beloved films, it doesn’t beat the viewer over the head with its messages; instead, it uses its gentle, soft story and the combination of beautiful animation and talented voice cast to guide them into a deeper understanding and appreciation of life and its inevitable end.

‘The Sixth Sense’

'The Sixth Sense'

These days, the works of M. Night Shyamalan have become quite limited due to his over-reliance on a twist ending. However, The Sixth Sense  remains one of his most notable creations, thanks to inspired performances from Bruce Willis, Haley Joel Osment, and Toni Collette. Moreover, its story about a boy who can commune with the dead retains its raw emotional power. Though it often veers into the realm of unsettling horror, it just as frequently ventures into more somber and thoughtful territory, asking what it means to grieve and what it means to move on from loss.

‘Meet Joe Black’

'Meet Joe Black'

Meet Joe Black is one of those unusual films that could have only come out in the 1990s, focusing as it does on a businessman who encounters Death who, in turn, wants to grasp the human experience. Things get more complicated once Death — in the form of a young man named Joe Black — falls in love with the businessman’s daughter. It stars some of the biggest names of the decade, including Brad Pitt and Anthony Hopkins. Though it is a bit overlong (it runs over three hours), there is still something remarkably touching and sensitive about the film’s engagement with the question of what makes one human.

‘The Fault in Our Stars’

'The Fault in Our Stars'

There’s something uniquely poignant and heartbreaking about films that focus on two young people who find love despite suffering from terminal illnesses. This premise is at the heart of the film The Fault in Our Stars,  which focuses on Hazel and Gus, two cancer patients who fall in love despite their bleak prognoses. In a less competent film, the story would have felt trite and cliche, but thanks to the memorable performances from Shailene Woodley and Ansel Elgort, it becomes instead a moving testament to the power of love to give meaning to a life.

‘Death Takes a Holiday’

'Death Takes a Holiday'

The Pre-Code era of Hollywood was a particularly fertile period for the industry, known for generating some remarkable and adventurous movies. For example, Death Takes a Holiday, as its title suggests, focuses on Death as he decides to become a human for a time. While in his mortal body, he falls in love with a mortal woman. This might sound a bit morbid, and it is, but somehow, the film manages to make it work, thanks in no small part to the performance of Fredric March as Death (and his human form, Prince Sirki).

‘The Lovely Bones’

'The Lovely Bones'

Though Peter Jackson is best known for his Lord of the Rings trilogy, he has also earned well-deserved praise for several smaller, more intimate projects. One of the most notable of these is The Lovely Bones, based on the novel of the same name by Alice Sebold. It’s a haunting and beautifully-told movie about a young woman who grapples with her own death and what to do from the in-between self in which she finds herself. The film deals with some heavy and powerful topics, but thanks to Jackson’s direction and Saoirse Ronan’s performance, it never becomes the cliche it could have been.
<h2″>’The Land Before Time’

'The Land Before Time'

The animated films of Don Bluth are rightly regarded as the more emotionally mature counterpart to Disney (for whom he once worked), and few ‘80s and ‘90s kids weren’t traumatized by The Land Before Time. The death of Littlefoot’s mother near the beginning of the film is heartbreaking in itself, but it is also wrenching to watch the poor young dinosaur have to come to terms with her loss. Nevertheless, Bluth’s genius lies in his ability to make death in all its devastation explicable and understandable for his young audience, giving them a means of working through the unimaginable.

‘The Bucket List’

'The Bucket List'

Morgan Freeman and Jack Nicholson are perfectly cast as Carter and Edward, two dying men who decide to start doing the activities they have wanted to try before they die. It’s an unquestionably sentimental movie, but this is precisely what makes it such a joy to watch Nicholson and Freeman portray two curmudgeonly but adventurous older men. It’s also a film that reminds the viewer of the importance of making the most out of the time that one has, whether it’s months or years.

‘Ghost’

'Ghost'

During the height of his career, the late Patrick Swayze was one of Hollywood’s biggest heartthrobs. He conveyed a mix of assurance, swagger, and sensitivity, which are very much on display in the 1990 film Ghost.  In the film, he plays Sam Wheat, a man killed only to return as a ghost. He then joins forces with a medium (played by Whoopi Goldberg) to reunite with his beloved Molly (Demi Moore). Its premise might be more than a little far-fetched, but somehow, the film makes it work, primarily because of the undeniable chemistry between Swayze and Moore, who manage to sell its outlandish premise.&

‘The Others’

'The Others'

Nicole Kidman is one of her generation’s finest actresses, and she performs remarkably in The Others. She portrays Grace Stewart, a mother desperate to protect her children from the malevolent entity that seems to have inhabited their house. As the film goes on, however, it becomes clear that not all is at all as it seems, and the film skillfully keeps the viewer guessing until the very end. The final twist is as heartbreaking as it is terrifying, and it allows Kidman to reach new heights in terms of her performance.

‘Love Story’

'Love Story'

Love Story is, in some ways, the exemplary 1970s romantic drama. Starring Ryan O’Neal and Ali MacGraw as a young married couple, Oliver and Jenny, who fall in love over the opposition of his parents and their significant class differences. Things veer into tragedy when it’s revealed that Jenny is dying from cancer, leading to Oliver’s reconciliation with his father. In a less capable film, such a story would be trite or treacly. Instead, thanks to a competent script, strong direction, and remarkable performances, it manages to be something stronger than the book on which it’s based, and it deserves its reputation as one of the best love movies ever made.

‘Steel Magnolias’

'Steel Magnolias'

If there’s one film that is the epitome of a tear-jerker, it would be Steel Magnolias. At the center of the story is the bond between Julia Roberts’ Shelby and Sally Field’s M’Lynn Eatento, a daughter and her mother who have to cope with the former’s failing health and her desire to start a family. The film is filled to bursting with great performances from the likes of Olympia Dukakis, Shirley MacLaine, and Daryl Hannah and, while also uproariously funny, it isn’t afraid to wear its heart on its sleeve, and this is precisely what makes it so enduringly popular and beloved.

‘The Farewell’

'The Farewell'

While Awkwafina might be best known for her many comedic roles, she has also shown dramatic range, particularly in The Farewell. She plays Billi Wang, a young woman who returns to China once she learns her beloved grandmother is dying. It’s a rich and textured film, particularly since the family refuses to tell the grandmother, Nai Nai, the truth about her diagnosis. This is the type of film designed to be a tear-jerker, but it also engages with several other issues, particularly concerning the conflicts that emerge between second-generation Americans and their first-generation parents and grandparents.

‘A Walk to Remember’

'A Walk to Remember'

For all that it might be more than a little trite and predictable, there is still something moving about A Walk to Remember.  After all, this is a film that focuses on a poignant teen romance between Landon Carter and Jamie Sullivan, the latter of whom is suffering from leukemia. It hits all the right notes, and there is no small amount of chemistry between Shane West and Mandy Moore. Just as importantly, the film also has some genuinely moving moments, particularly when Moore’s Jamie discusses her faith and what she thinks awaits her after death.

‘After Yang’

'After Yang'

After Yang, like the very best of science fiction, grapples with some of the biggest ideas that occupy the human imagination. In this case, the film uses the story of one family’s sense of loss over a robotic teenage boy to explore what it means to be human and just what, if anything, separates nonhumans from humans. It’s a remarkably subtle film, eschewing the bombast often associated with the genre. It also features some truly evocative and heartbreaking performances, particularly from Colin Farrell, who plays Jake, the father trying to bring Yang back to life so that his daughter can have a companion.

‘Coco’

'Coco'

As a studio, Pixar has always excelled at crafting exquisitely beautiful and emotionally poignant feature films, and Coco remains one of their best to date. When young Miguel wanders into the Land of the Dead, he finds that he must return home soon or risk being trapped there forever. While there, he has to grapple with some unfortunate truths about his family’s history and learn about the value of grappling with grief and loss. The film is the perfect blend of vibrant animation and poignant emotional truth, with characters one can’t help but love.<

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How to get through the holidays after the death of a loved one

— Since my sister’s passing in June, I’m dreading Thanksgiving and other seasonal family events without her. But there are ways to handle the loss and the festivities.

By

My sister died in June. That awful day was the beginning of my “first (fill in the blank) without Julie” dates. They kept coming: My first birthday. The first summer vacation. The first change of season. Now comes the onslaught of the first holiday season.

My therapist, and friends who have suffered losses, have warned me that “the ‘firsts’ are always the worst” — so I am dreading the upcoming holiday season.

And for good reasons, says Mary-Frances O’Connor, an associate professor of psychology at the University of Arizona and author of “The Grieving Brain: The Surprising Science of How We Learn From Love and Loss.”

Our bonds and rituals with our loved ones are deeply encoded in our brains, she says. For instance, we expect a spouse to come home after work at 5 p.m. or a child to awake up excitedly on Christmas morning.

When they don’t, when expectation hits the harsh reality of the new situation, “we experience grief, pain and suffering because they were so important, and we can’t function in the world in the same way,” she says.

As a result, O’Connor says, “your internal map of the world no longer matches up with the world itself,” which is why we need to created a revised cartography of our new lives.

“Suddenly, every plan that is in place has a hole in it where that person should be,” O’Connor says. “The first time, that hole is most apparent because you have no other way of understanding [for example] what a holiday looks like” without that person in it.

Our family was lucky — if it can be called that — because we were prepared.

Julie’s death was not sudden, as she had lived with ovarian cancer for 5½ years. Last Thanksgiving, which we feared would be her last, our entire family — spouses, nieces, boyfriends and girlfriends, as well as chosen family — gathered to be together with her. We leaned into every tradition. My pecan pie. My niece’s cheese board. While Julie, our family’s top chef, prepped and whipped, sliced and diced the turkey and its fixings. In our photos from last year, she’s right there in the middle; ditto in my memories.

A month after Julie died, her wife suggested that we carry on this year with our holiday traditions to provide continuity. Sticking with tradition can be a comforting way to approach the first holidays.

Brad Milne, co-founder and chief operating officer of Better Place Forests (which provides grieving families the opportunity to spread their loved ones’ ashes at the base of a tree in a protected forest) wrote in a blog post, “It can help you feel closer to your lost loved one by reminding you of happy holidays spent together …. People coming together to support one another often creates a comforting sense of solidarity.”

It’s not the only way and, frankly, I’m ambivalent about it. Yes, I want to be with my family, but I worry — no, I know — that we can’t replicate the past and that it will be painful.

That’s why others decide to change their long-held traditions in the first year — and sometimes much longer — after a loss. A complete change of scene, a break from tradition, can provide a different kind of comfort.

After Ed Chaney and Mandy Hitchcock lost their 17-month-old daughter, Hudson, in May 2010, they decided to leave the country altogether for that first Christmas without her. So they headed to Paris. Thinking of the popular saying “Wherever you go, there you are,” I asked Chaney whether they hadn’t just brought their sadness with them. No, he said, “we didn’t leave the country to escape the grief, just to grieve on our own terms,” without having to worry about the reaction or emotionalism of others.

Many of those I interviewed felt silenced by relatives at holiday celebrations and discouraged from bringing up their pain. O’Connor says it’s important to remember that each person in the family grieves differently and needs different things. “There are some who still really need to avoid conversations about it and there are others who need to memorialize and express how they’re feeling, ” she says.

Kate Kennedy, an educator, whose parents died in a car wreck when she was 27, told me, “I wish I had been allowed to talk about how worried I was that grief would bury me on a holiday. The not being able to say it out loud was hard.”

I worry about that, too. If everyone seems happy, will I bring down the room?

Preferring not to celebrate is normal, writes Milne, but he cautions against being alone as the alternative: “Having people around you for support is important when you’re grieving.” Over and over, I heard “Don’t be alone” and “Don’t isolate” from those I interviewed. It’s important if you can arrange it to be with people who understand what you’re going through.

Looking for advice on how to make it through the year-end dark days, I discovered the Happily Ever Adventures blog, where Lena Ameripour described how she survived her first holidays after her mother died of ALS, also called Lou Gehrig’s disease. “I didn’t know how we were supposed to be happy without her,” she wrote. She and others provided several suggestions about how to survive the “firsts,” which I intend to rely on:

  • Do something in memory of your loved one. I’m going to ask my family to go on a walk after our big meal, something we usually did together when Julie was alive.
  • If there were games that brought joy before, play them again — or try new ones. We love jigsaw puzzles and Rummikub, No need to change that except to introduce Qwirkle, a board game involving tiles that I think will suit our competitive spirit.
  • Buy a gift in honor of your deceased loved one and donate it to a hospital or a favorite nonprofit group. I’m going to send an amaryllis, my sister’s favorite flower, to her oncologist and others who helped care for her.
  • Watch a favorite movie together. Our family used to binge on the Hallmark Channel’s schmaltzy holiday movies, which, as Julie always said, deliver “a happy ending every 90 minutes.”
  • Tell others what you need. No one is a mind reader, not even loved ones or family members. Do you need a break? Or a hug? A good cry? As I joke with my dog, “Use your words!”
  • Find some joy. Even when grieving, there’s joy — in the foods we’ll eat, in the hugs we’ll give and get. Even in our memories. Yes, we can hold more than one emotion at a time.

I’m also planning to tell Julie stories of holiday seasons past. Ellen Steinberg, a graphic designer whose father died 14 years ago, told me, “talking about the deceased diffuses the pressure cooker of sadness that comes from people trying to hold it together and rise above the abyss the missing person has left behind. Talk about them. Share a story. Soon you’ll be laughing about a wonderful memory and quite literally bringing their spirit into the room.”

O’Connor also reminded me “to remember that grief comes in waves. There will be many different moments, and each of those moments will require your big tool kit of coping strategies, a different tool for every situation.”

She also notes that it’s normal for these waves to come and then recede, and knowing that may help us not to fear them quite so much and may even help in the midst of grief.< “I am sorry for your pain,” a friend wrote me recently. “It will most likely always be there but hopefully, it will lessen as you find your own way of facing it. Wishing you peace throughout this first year without your beloved sister.” I wish the same to all of you facing the holidays for the first time without your loved one. Complete Article HERE!

Celebrating Death As A Part Of Life

— Near Provides Ease For End Of Life Situations

Near’s platform aims to ease the “End Of Life” (EOL) for everyone involved, including caregivers.

By Kaitlyn Dang

Everyone dies eventually. So why is our culture generally avoidant about the topic of death?

It’s obviously not fun to think about the end of life, especially when discussing it with people close to you. According to this 2018 study, almost half of surveyed people aged 40-64 didn’t feel comfortable discussing death with their parents, with a third actually preferring to discuss their weight over the prospect of death.

People generally find death and dying difficult to speak about because it can be awkward, sad and, well, frightening. But death doesn’t have to be scary or weird to talk about, according to Near Co-Founders Christy Knutson and Jane Butler.

Created from all-too-familiar experiences with providing care for dying family and friends, Near is a Raleigh- and New York-based online services platform dedicated to uplifting care providers and providing resources focused on end of life (EOL). Their mission is to make EOL care and experiences easier and accessible for not only the dying person, but also the caregiver and close family/friends.

“I noticed that [life and grief companies] are one of the most neglected industries, partially because nobody wants to talk about [death],” Butler said. “But it can also be devastating, hard and difficult overall, even if you don’t want to talk about it. I thought there should be more of a platform to modernize it and help it be a little more applicable.”

The two founders met when Butler began working as a creative designer for Well Refined, a creative marketing agency serving nonprofits and startups that the Raleigh-based Knutson co-founded in 2011. While they were working with some EOL clients, they recognized gaps in care that occurred from the initial point of diagnosis to after death, according to Knutson. With her background in working with EOL organizations and Butler’s in creative web design, their passions aligned and led to conversations to create a modernized, easy-to-use platform for EOL resources.

Near Co-Founders Christy Knutson (L) and Jane Butler

At the time, Butler’s fiance (now husband) was diagnosed with a brain tumor, which she said was a wake-up call to the fragility of life. Knutson’s familiarity with EOL dates back to when she was 10 years old, taking care of her grandmother with Alzheimer’s. After experiencing her grandmother’s passing and then living through more significant losses—such as the loss of her cousin, whom she considered a sister—Knutson dedicated her work to ensuring ease, comfort, help and validation for people going through these difficult times.

“There are some losses you never get over and [my cousin] was that for me,” Knutson said. “She’s very much in my work, she’s a part of what I do. [Jane and I] were acutely aware of and exposed to all of the holes in support for both the person who’s ill and for their loved ones. And those experiences are really the driving force behind everything we’re doing with Near.”

What Near provides

Near is centered around three components: caring, connecting and celebrating.

The “care” aspect is complemented with a personalized care registry. Similar to a wedding or baby registry, users can register gifts and experiences that will help provide comfort and reassurance while they’re going through either the caretaking process or their own EOL. The startup just released its Holiday Gift Guide, which provides tangible and practical care to people experiencing hurt during the holiday season.

Through the care registry, not only can users ask for gifts, but they can also link to personal fundraising pages and delivery services, list close family members’ information and their specific needs and add care requests—like moving boxes or picking up kids from school—because no one wants to deal with all of that when they have to take care of a dying loved one.

The “connecting” aspect of Near offers a range of different services the user might need during an EOL process. They include meal support, legal services, EOL planning, funeral and memorial planning and more—all to ensure that no one should be alone through these difficult journeys.

Finally, Near’s “celebrating” component could redefine death as another milestone in a person’s life. It almost sounds like an oxymoron when you are looking to celebrate death, but why does the end of a life have to feel and look negative? Currently in development, Near plans to uplift and offer legacy and funeral/memorial planning services, which include but aren’t limited to personalized funeral programs and curated legacy memorabilia.

Near’s offerings are for both caregivers and those going through their final days

“When it comes to designing funerals, they’re often not designed with the same level of attention to detail and personalization that reflects the person who has died,” Knutson said. “We believe that there’s a real opportunity to actually celebrate the person who’s died in a way that aligns with their interest, their values, their aesthetics.”

They also hope to uplift and eventually provide resources on “living funerals,” which is the idea of having a celebration of life before an individual passes away. These provide an opportunity for the dying person to benefit from having the people that they love all together in one room and providing them with a real form of connection before they pass.

“A wedding pulls everyone you love together in one room and that does not happen again until you die,” Knutson said. “And you won’t be here to experience it. What an unnecessary miss.”

Near not only organizes services into one hub for the user, but they also find resources and providers through official communities and organizations who are dedicated to EOL care above all, so the user doesn’t have to scour through potentially unhelpful sources.

“We want [Near] to be the centralized place where you can be proactive in caring or celebrating the life of somebody else,” Butler said. “I want people to have more clarity during their difficult times—something I wish I had more of—or at least have the awareness of that.”

For Butler and Knutson, they hope that a service like Near can bring ease and comfort to a difficult time. They want people to know that they’re not alone in experiences of serious illness, end of life, loss and grief, and that there are services and tools to help bring the community together and help communicate needs and desires. They understand that because of our death-avoidant culture, it can be hard to break out of that shell.

“It’s hard for us to name out loud to the people we love what’s most important to us,” Knutson said. “Someone at the end of their life will feel isolated and lonely because they are having feelings about their mortality, but it’s difficult to talk about that with the people who are closest to them, because they don’t want to cause them any extra pain.”

She continues: “And it’s such a tender, sensitive time. We really want to surround people at this time of their lives and help them feel that sense of community and care. Even as a death-avoidant culture, we are seeing changes taking place. Over time, the more comfortable we can get talking about our own mortality and the end of life experiences with those we love, the more awareness and support there will be that is necessary.”

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Regulating Physician-Assisted Death

— Scholar analyzes the relation between federal regulation and assisted death initiatives.

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Following the U.S. Supreme Court’s decision in Dobbs v. Jackson Women’s Health Organization, when the Court removed constitutional protections recognizing the right to abortion, debates around bodily autonomy have grown increasingly contentious. Notably absent in many of these debates, however, is reference to the highly divisive right to die.

According to a 2001 book chapter by Margaret P. Battin of the University of Utah, an absence of attention to the right to pursue physician-assisted suicide, or “active euthanasia,” obscures the “charged and polarized” nature of the right, with the very model of end-of-life issues in the United States at risk of substantial change.

Assisted death and other end-of-life issues gained traction in the late 1960s as medical patients and other disfavored groups fought alongside the proponents of the civil rights movement to pursue greater political and legal recognition. Battin claims that the debate over patients’ control of their deaths and the associated process of dying skyrocketed with the passage of the California Natural Death Act of 1976, which established patients’ right to determine, while still competent, the treatments they did not want to pursue as their condition deteriorated.

Proponents of assisted death initially pursued a populist strategy, Battin explains. Opponents, alternatively, partnered with existing organizations, including the Catholic Church and the American Medical Association, to speak out against the legalization of physician-assisted death with the apparent backing of authoritative institutions.

Battin contends that the involvement of these large institutions escalated the debate and led both sides to pursue state-level initiatives, ultimately shifting the focus of the debate from public opinion to state law.

Proponents initiated referenda in numerous states, including Washington, California, Oregon, Michigan, and Maine, seeking to allow physicians to provide terminally ill patients with lethal prescriptions upon request. Battin explains that, with active efforts from opponents to challenge the passage of state-assisted suicide laws, the referenda failed by narrow margins in all states but Oregon, where Measure 16 passed twice in 1994 and again in 1997, when the state enacted the Death with Dignity Act. Since then, 11 states have passed “right to die” laws.

When cases came before the U.S. Supreme Court, the Court ruled unanimously to uphold the constitutionality of state statutes prohibiting suicide assistance. Although courts seemingly ruled in the opponents’ favor, Battin argues that these rulings created a “laboratory of the states,” through which some states could legalize assisted death and others could prohibit it, thereby allowing policymakers to gain greater insight into the relative benefits and drawbacks of each approach.

Viewing the Supreme Court’s decision as inadequate and Oregon’s Death with Dignity Act as “the domino that would let many others fall,” Battin describes how opponents then sought to overrule state law by imposing new federal regulations.

After the federal Justice Department declined to prohibit physicians from using scheduled drugs for the purpose of assisting death, opponents unsuccessfully pursued congressional measures in the form of the Pain Relief Promotion Act of 1999 (PRPA). As Battin explains, the PRPA would have amended the Federal Controlled Substances Act to prevent the distribution of controlled substances “for the purpose of causing, or assisting in causing, the suicide or euthanasia of any individual.”

According to Battin, this proposed legislation would have directly challenged the Death with Dignity Act’s legalization of lethal prescriptions by targeting not the physicians or patients themselves, but the very drugs that would allow for a painless death. The legislation never passed, partly because, Battin contends, palliative care specialists testified that it would hinder the provision of effective pain relief in unrelated circumstances.

Despite the PRPA’s failure, it highlighted the vulnerability of proponents’ state-level initiatives to federal overrides. Battin claims that this revelation prompted proponents to seek alternative methods that could not be so easily eradicated by federal regulation.

This pursuit of alternative methods culminated in the creation of “NuTech:” new technologies capable of causing “easy death” without the assistance of a physician or prescription-limited drugs. Most importantly, Battin contends, this means these technologies are not subject PRPA-like restrictions.

This series of moves and countermoves—the passage of the Death with Dignity Act, attempted passage of PRPA, and creation of NuTech—has created an area of individualized medicine difficult to reach with regulation. Battin suggests that this transition toward an unregulated model of end-of-life medicine is problematic, concluding “it is not clear that this is a change for the better.”

Many centrist organizations share this cautious sentiment and have chosen to continue advocating more traditional legalization initiatives, despite the looming threat of oppositional federal regulation.

Some legalization opponents fear it will facilitate abuse by careless physicians and greedy health care institutions. NuTech may provide the perfect compromise for these opponents, Battin claims, because the decision-making power is vested solely with the patient themselves.

Although Battin fears the debate over assisted death will continue its historical pattern of escalation without appropriate regulation, she urges proponents and opponents alike to pursue conciliatory, rather than escalatory, moves.

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