CA Governor Signs Respect After Death Act

(Sacramento) Today, California’s Respect After Death Act (AB 1577) was signed by Governor Brown, having passed in both the Assembly and Senate earlier this year. The long-awaited bill will provide needed guidance to help ensure that transgender people have their gender identity reflected on their death certificates. It was authored by Speaker of the Assembly Toni Atkins and co-sponsored by Equality California and Transgender Law Center.

respect after death

“We are grateful to the Governor, California’s Legislature, and the leadership of Assembly Speaker Atkins for enacting this common-sense bill that will help protect the dignity of our loved ones upon their passing,” said Masen Davis, Executive Director of Transgender Law Center. “This brings us a significant step closer to making sure that all transgender people are able to live—and die—authentically in accordance with who they really are.”

“Everyone deserves to have their identity respected in death, and this law cleans up a confusing process to ensure transgender Californians get the same respect that anyone else gets,” said Rick Zbur, executive director of EQCA. “We thank the Governor and Speaker Atkins for their leadership on this issue.”

AB 1577 requires the official responsible for completing a transgender person’s death certificate to do so in a manner that reflects the person’s gender identity if they are presented appropriate documentation, such as written instructions from the deceased person confirming their wishes, an updated birth certificate or driver’s license, or evidence of medical treatment for gender transition. In the absence of these documents, the gender reported by the person’s legal next of kin would be used.

Chris LeeDrafted at the beginning of this year, the bill drew inspiration from the passing of Christopher Lee, a San Francisco artist and transgender advocate who was misgendered after his death in 2012. The bill was passed by the Assembly Health Committee in March, and passed by the Senate in August. Transgender Law Center congratulates everyone who has helped advocate for this important step!

“I’m so happy,” said Lee’s close friend Chino Scott-Chung. “It brings us great solace to know that Christopher’s legacy will live on to protect the dignity of other transgender people, and that their friends and families will hopefully not have to endure what we did.”

Transgender Law Center works to change law, policy, and attitudes so that all people can live safely, authentically, and free from discrimination regardless of their gender identity or expression. www.transgenderlawcenter.org

Equality California (EQCA) is the largest statewide lesbian, gay, bisexual, and transgender advocacy organization in California. For more than a decade, Equality California has strategically moved California from a state with extremely limited legal protections for lesbian, gay, bisexual and transgender people to a state with some of the most comprehensive human rights protections in the nation. Equality California has partnered with legislators to successfully sponsor more than 100 pieces of pro-equality legislation. EQCA continues to advance equality through legislative advocacy, electoral work, public education and community empowerment. www.eqca.org

Complete Article HERE!

Life And Love After The Love Of Your Life Dies

“I had real love in my life once with Doug and I would desperately like to have it again. I know this is a big trap…sex and intimacy are not one and the same thing. But I always wind up acting like they are the same. I always have it in my head that maybe my next sexual encounter will bring me love. It’s maddening.”

My friend Kevin is 39. He is living with HIV. He tested positive twelve years ago. Luckily he continues to be asymptomatic.

Kevin is a music teacher and member of a jazz quartet. He is currently single and shares his house with two roommates. His lover, Doug, died five years ago just one month shy of their tenth anniversary together.

gay-men

Kevin is trim and buffed. He works out at a local gym four days a week. He is boyishly handsome with tousled red hair. He rides a motorcycle and is a wicked pool player.

Kevin tells me; “Even though I’ve had many friends die of AIDS, I still have plenty of my own death stuff to deal with.” He reports that he has recently engaged in some questionable sexual practices. “That’s a sure sign that I’m shoving a lot of this under the carpet. And I know this kind of thing could be, well, a fatal mistake!”

Kevin was born and raised a devout Roman Catholic. His Boston Irish Catholic family had high hopes that one day he would become a priest. “I know I disappointed them and I don’t think they ever really got over it. Ya see, when I came out in college I left the church at the same time. It was a preemptive strike, if you want to know the truth. I wasn’t about to wait around for them to throw me out just because I was gay.” His inability to find a suitable spiritual home makes him sad. “Sometimes I feel lost and rudderless. I know God loves me, but the sweet and easy connection I once had with God as a younger man eludes me now.”

My friend Kevin and I meet for lunch about once a month. We talk about life and death and what makes us tick. At a recent lunch we started to talk about life and love after the love of our life dies.

hiv+-life-cover

Kevin tells me; “My sexuality has always been a driving force in my life, but sometimes I simply feel driven. A manic pursuit of pleasure is no pleasure, if you know what I mean.”

“I do know what you mean. That’s how so many of us pursue our pleasure. It’s exhausting, huh?”

“Yep! Do you think it’s just a gay thing?

I don’t want to suggest that I’m a sex addict or anything, but I sometimes feel out of balance. I know a lot of this has to do with my relentless pursuit of love. I had real love in my life once with Doug and I would desperately like to have it again. I know this is a big trap…sex and intimacy are not one and the same thing. But I always wind up acting like they are the same. I always have it in my head that maybe my next sexual encounter will bring me love. It’s maddening.”

I smile knowingly and say; “I wish I had a nickel for every time I head a similar lament. We gay men, in the age of HIV/AIDS, have a unique set of sexual issues that need to be understood and addressed. Besides the obvious safer sex concerns, there are all the issues that arise with the death of a partner. Unresolved grief can and does cause sexual dysfunction. When a relationship ends with the death of a partner, the surviving partner has an array of new concerns. How and when does he begin to date again? If he is sexual with someone new, does this violate the memory of his deceased partner?

I frequently hear the same complaint. ‘I’m so lonely, but my grief is getting in the way of my having any kind of sexual feelings.’ As a therapist I try to help the surviving partner face these concerns as soon as possible. I often find myself saying; ‘Listen, I’m sure your lover wouldn’t want you to stop living. Choose life! It will be the best testament you could offer your deceased lover.’

It’s been my experience that if these concerns go unresolved for too long, the likelihood that they will develop into a full-blown dysfunction increases exponentially.”

I sense that I’ve hit a nerve in Kevin, but I push on.

“Kevin, you said you’re looking for a partner, but that you are only meeting men who are interested in sex. Searching for a life partner isn’t easy even under the best of circumstances. Looking for someone new after the death of a partner is even more difficult. There is always the tendency to compare the new love interest to the one who’s died, and that can be disastrous.

hiv_o_1006246

On top of that, where does one go to meet a potential partner? One thing’s for sure, it’s not likely that you’ll find this person in a sex club or in a bar. I suggest that you look in a less seductive environment like a café or at the gym. An HIV support group might also be a good place to look. Or perhaps you could try a common interest club, like the ones they have for line dancing or playing bridge.”

Kevin thought for a moment and responded. “I’ve considered all those things and have tried them all too. But then I begin to think; what happens if I meet someone who is HIV negative? I don’t want to get attached to guy who might reject me just because of my HIV status. That’s why it’s less of a gamble if I keep the connection more casual. So you see, I’m in a double bind. I want the intimacy that comes from a long-term relationship, but I’m afraid of the rejection. Or, what if I infected him? That would be the worst. And, even though I’m doing okay now on the medications I’m taking, but what if I get sick later? I don’t want to put anyone through what I went through with Doug.”

“If ya focus on the fact that you could be rejected for your HIV status, or infect a partner, or get sick and die yourself you simply won’t be able to live each day to the fullest. And all the love you have to give will die on the vine, so to speak. Fear is ruling your life, not pleasure, and certainly not love.

So many of my friends with HIV consider themselves damaged goods. That’s no way to approach the rest of one’s life. I understand the stigma, but HIV is simply a chronic illness like any other. Nowadays it’s manageable and there’s very little to interrupt one’s quality of life. Do you honestly intend to live without the intimacy you need and desire and sabotage the very thing that will enrich your life, just because you’re afraid? Gosh, I hope not.”

Life And Love After The Love Of Your Life Dies

“I had real love in my life once with Doug and I would desperately like to have it again. I know this is a big trap…sex and intimacy are not one and the same thing. But I always wind up acting like they are the same. I always have it in my head that maybe my next sexual encounter will bring me love. It’s maddening.”

 

My friend Kevin is 39. He is living with HIV. He tested positive twelve years ago. Luckily he continues to be asymptomatic.

Kevin is a music teacher and member of a jazz quartet. He is currently single and shares his house with two roommates. His lover, Doug, died five years ago just one month shy of their tenth anniversary together.

comfortKevin is trim and buffed. He works out at a local gym four days a week. He is boyishly handsome with tousled red hair. He rides a motorcycle and is a wicked pool player.

Kevin says; “Even though I’ve had many friends die of AIDS, I still have plenty of my own death stuff to deal with.” He reports that he has recently engaged in some questionable sexual practices. “That’s a sure sign that I’m shoving a lot of this under the carpet. And I know this kind of thing could be, well, a fatal mistake!”

Kevin was born and raised a devout Roman Catholic. His Boston Irish Catholic family had high hopes that one day he would become a priest. “I know I disappointed them and I don’t think they ever really got over it. Ya see, when I came out in college I left the church at the same time. It was a preemptive strike, if you want to know the truth. I wasn’t about to wait around for them to throw me out just because I was gay.” His inability to find a suitable spiritual home makes him sad. “Sometimes I feel lost and rudderless. I know God loves me, but the sweet and easy connection I once had with God as a younger man eludes me now.”

My friend Kevin and I meet for lunch about once a month. We talk about life and death and what makes us tick. At a recent lunch we started to talk about life and love after the love of our life dies.

Kevin tells me; “My sexuality has always been a driving force in my life, but sometimes I simply feel driven. A manic pursuit of pleasure is no pleasure, if you know what I mean.”

“I do know what you mean. That’s how so many of us pursue our pleasure. It’s exhausting, huh?”Gay Intimacyt

“Yep, sure is! Do you think it’s just a gay thing? I don’t want to suggest that I’m a sex addict or anything, but I sometimes feel out of balance. I know a lot of this has to do with my relentless pursuit of love. I had real love in my life once with Doug and I would desperately like to have it again. I know this is a big trap…sex and intimacy are not one and the same thing. But I always wind up acting like they are the same. I always have it in my head that maybe my next sexual encounter will bring me love. It’s maddening.”

I smiled knowingly and said; “I wish I had a nickel for every time I head a similar lament. We gay men, in the age of HIV/AIDS, have a unique set of sexual issues that need to be understood and addressed. Besides the obvious safer sex concerns, there are all the issues that arise with the death of a partner. Unresolved grief can and does cause sexual dysfunction. When a relationship ends with the death of a partner, the surviving partner has an array of new concerns. How and when does he begin to date again? If he is sexual with someone new, does this violate the memory of his deceased partner?

I frequently hear the same complaint. ‘I’m so lonely, but my grief is getting in the way of my having any kind of sexual feelings.’ As a therapist I try to help the surviving partner face these concerns as soon as possible. I often find myself saying; ‘Listen, I’m sure your lover wouldn’t want you to stop living. Choose life! It will be the best testament you could offer your deceased lover.’

It’s been my experience that if these concerns go unresolved for too long, the likelihood that they will develop into a full-blown dysfunction increases exponentially.”

I sense that I’ve hit a nerve in Kevin, but I push on.

hard to forget“Kevin, you said you’re looking for a partner, but that you are only meeting men who are interested in sex. Searching for a life partner isn’t easy even under the best of circumstances. Looking for someone new after the death of a partner is even more difficult. There is always the tendency to compare the new love interest to the one who’s died, and that can be disastrous.

On top of that, where does one go to meet a potential partner? One thing’s for sure, it’s not likely that you’ll find this person in a sex club or in a bar. I suggest that you look in a less seductive environment like a café or at the gym. An HIV support group might also be a good place to look. Or perhaps you could try a common interest club, like the ones they have for line dancing or playing bridge.”

Kevin thought for a moment and responded. “I’ve considered all those things and have tried them all too. But then I begin to think; what happens if I meet someone who is HIV negative? I don’t want to get attached to guy who might reject me just because of my HIV status. That’s why it’s less of a gamble if I keep the connection more casual. So you see, I’m in a double bind. I want the intimacy that comes from a long-term relationship, but I’m afraid of the rejection. Or, what if I infected him? That would be the worst. And, even though I’m doing okay now on the medications I’m taking, but what if I get sick later? I don’t want to put anyone through what I went through with Doug.”

“If ya focus on the fact that you could be rejected for your HIV status, or infect a partner, or get sick and die yourself you simply won’t be able to live each day to the fullest. And all the love you have to give will die on the vine, so to speak. Fear is ruling your life; it’s not pleasure, and it’s certainly not love.

So many of my friends with HIV consider themselves damaged goods. That’s no way to approach the rest of one’s life. I understand the stigma, but HIV is simply a chronic illness like any other. And nowadays it’s manageable and there’s very little to interrupt one’s quality of life.

So Kevin, do you honestly intend to live without the intimacy you need and desire and sabotage the very thing that will enrich your life, just because you’re afraid? Gosh, I hope not.”

Lonesome And Alone, A Matter of Life and Death

With all the lonely people in the world it’s a crime to be lonely alone. Remember, intimacy is not a gender issue; it’s a human issue.

 

My client, Janice, is 62 years old. She has late onset diabetes and rheumatoid arthritis. She is a neatly dressed, silver haired woman with gnarled hands and feet. The thick lenses of her glasses sit heavily on her pleasant, open face. She is of medium build, and walks with the aid of a cane. She has the shy, nervous demeanor of a young girl, often absent-mindedly fidgeting with the buttons on her favorite mauve sweater. She is a Red Cross volunteer and a recent widow. She was raised a Methodist in Alton, Illinois, a small town just across the Mississippi River from St. Louis, but she currently has no religious affiliation. “I miss not having a church to attend. At least the social part of it.”

arthritis_handsHer husband Albert died in the hospital of congestive heart failure 18 months ago. Albert’s sudden death dramatically changed her life. She was forced to give up the comfortable home they shared for nearly 30 years and now lives alone in a modest apartment in a subsidized senior housing complex.

She says she is often alone and lost in her profound grief. “Our marriage was a traditional one, the kind that was popular fifty years ago. Albert was solely responsible for the family finances. He shared little of the intricacies of these things with me. I’m afraid that he kept me completely in the dark about all of it.” Albert withheld their troubled financial situation from her in order to shield her from the unpleasantness. He died without a will or an estate plan, leaving Janice completely lost and befuddled.

Albert died in intensive care and Janice was unable to be with him when he died. She has a great deal of guilt about this. She claims that her biggest fear is “dying alone in some awful hospital, hooked up to a bunch of beeping machines.” However, she’s just as anxious about becoming dependent on strangers. “You see, I’m losing my eyesight to the diabetes.”

I ask her, “Why do you suppose it’s so difficult for you to ask for help?”Assisted-Living

“I don’t know. Maybe I’m just afraid to ask for what I need. When Albert was alive we used to look after one another. Of course, I don’t want to be a bother either. I’m embarrassed to admit it, but there have been times that I have gone to bed hungry because I couldn’t open a can of soup; my arthritis being so bad. But would I call a neighbor and ask for help? No! Well, there’s no fool like an old fool. That’s for sure. I don’t want this to continue. Oh, how I wish I had family to count on.”

I ask Janice about her relationship with her husband, Albert.

“I’ve been with only one man my entire life, my husband Albert. Our sex life was very conventional. And if the truth be known, there wasn’t even much of that. I always wondered if I disappointed him. I guess now I’ll never know. You’ll have to excuse me, but this makes me very uncomfortable. I guess I’m just old fashioned. I was brought up believing that ladies don’t talk about such things in polite company.”

silence“Ya know, Janice, there are a lot of us who make the distinction between sex and intimacy. Perhaps, you don’t miss the sex, but I’m guessing you miss the intimacy. Am I correct?”

“To tell the truth, I don’t miss it at all. The sex, I mean. But, yes, I do miss the companionship. I’m so very lonely now. I mean, you get pretty attached to a person after thirty-nine years together. What I wouldn’t do for just one more hug from my dear Albert. It’s the predicament of so many women that I know. The senior center is filled with widows who are starving for affection. It’s so unfair.”

“Yes, it’s criminal; all these lonely people being lonely alone. It’s my experience that many seniors and elders don’t know how to form intimate relationships after the death of their spouse. They are often self-conscious about their needs and desires, like sex, dating, or even forming a close relationship with someone else. Rather than put themselves out there to find fulfillment, they, like you Janice, follow the path of least resistance. Their intimacy needs shrivel and die long before they do because they lack an outlet for their affections. Sad to say, this can leave them cranky and curmudgeonly. It’s such a waste, don’t you think?”

“Yes, I certainly think I have a tendency to be like that myself. Yet I have this overpowering fear of dying alone. And I don’t mean alone as in solitary. I would feel just as alone if the only people attending me as I die were people I didn’t know. So it’s not about care, really, it’s about being loved. Is that so much to ask? Maybe I should just stop now.”our-world-is-hungry-for-love

“We can talk a break, if you’d like, but I think we’re really on to something here, don’t you agree?”

“I’ve never had much of an interest in sex and I don’t see that changing at this late stage in the game, but I do continue to be interested in friendship. Since the death of my husband I’ve been very much alone. I so miss the companionship we used to share. Do you think it’s too late for a person like me to find that kind of thing again?”

“Of course it’s not too late, Jan.” May I ask you if you are taking hormone replacement therapy? I’m assuming that you are post-menopausal. Am I correct?”

“I went through menopause years ago, but I’ve never taken hormone replacements. Why do you ask?”

“Many women find that their libido, their interest in sex, disappears after menopause. It’s simply a chemical thing that happens as one ages. Many post-menopausal women don’t know about this option and so they go through some of the best years of their life without knowing the joys of sexual intimacy unfettered by concerns of becoming pregnant. I used to be a strong advocate of natural hormone replacement for all post-menopausal women. However, nowadays I encourage women to engage their doctors in a frank conversation about the pros and cons of this therapy. There is a known connection between hormone replacement therapy (HRT) and breast cancer. Breast cancer survivors who took HRT to relieve menopausal symptoms had more than three times as many breast cancer recurrences as survivors who did not take HRT.”

“I had no idea. But what if I’m not interested in sex, should I bother my doctor about this?”

alone_and_lonely“Like I said, there’s sex and then there’s sensuality and/or intimacy. Maybe you have no interest in the one, but it sounds like you still want the other. You might find that HRT could help you overcome some of the barriers that appear to be in place preventing you from forming new and life-affirming relationships. Besides, the benefit of discussing this issue with your physician is two-fold. First, you’ll get information you need to make an educated decision about the therapy itself. And second, you will have established a working relationship with your OB/GYN on the topic of your intimate life.”

“I see. You make a good point, Richard. Thank you.”

“Ya know, Jan, there are plenty of options open to you if it’s simply companionship you seek. You’re living in a senior complex, right? Have you met your neighbors? Why not strike up a conversation? Join in the planned activities. What are your interests? How about taking a class? What about the Red Cross; are you still volunteering? I’ll bet you have loads of leisure time. It is often said that an acquaintance is a friend just waiting to be discovered. And if that’s true, then a friend could become a companion, and a companion could even become a lover or partner. But like everything else that’s worthwhile in life, it will take some time and energy on your part.”

“I always have the best of intentions, Richard. I leave our sessions full of hope and plans for getting out of this rut I am in. But, by the time I get home, all the wind goes out of my sails. I feel like such a failure.”

“No need to be self-defeating. You have the will to make the changes you want; now all we have to do is develop a strategy for accomplishing your goals. You mentioned something very touching earlier. You spoke with such eloquence about the plight of all the lonely senior women you know. Have you considered having another woman as a companion? Like I said, with all the lonely people in the world it’s a crime to be lonely alone. Remember, intimacy is not a gender issue; it’s a human issue.

Weight Concerns, Life Concerns, and Intimacy Concerns

“Sex was a taboo subject when I was growing up, just like death and dying, come to think of it. And since I never even came close to conforming to the ideal body image, I always had a hard time of it. I was teased mercilessly as a kid for being fat. Boy, kids can be really cruel.”

 

My friend Raymond is 50 years old. He is a social worker employed by a home health care agency. He is thinking about applying for a position in the agency’s hospice program, but he’s not quite sure he’s ready for the responsibility. “I need to better understand my own feelings about death and dying before I can hope to assist anyone else.” He hopes I can help him do this. “If I’m going to do this work, I want to do it well.”

Raymond’s mother died of ovarian cancer when he was seven years old, but he never really processed the loss. Now a dear friend of heavyset manlong standing, Joann, is also dying of cancer. Joann’s imminent death has opened the floodgates of his unresolved grief associated with his mother’s death. “I’m both drawn to Joann and repulsed by her all at the same time. And she knows it. It’s so crazy. You should see me. I’m confused and disoriented, which is not at all like me.”

Raymond reveals that a recent visit to his doctor disclosed that he is at high risk for heart disease. Raymond is considerably overweight. “I guess I’ve pretty much let myself go to seed. I’ve always been a big guy, big-boned, as my mother would say, but now I’m just Fat with a capital ‘F’”. The heart disease news, while shocking, didn’t come as much of a surprise.

Three years ago Raymond went through a very acrimonious divorce. “My life shattered before my eyes.” His three children, two girls and a boy, live with his ex-wife in another state. He gets to see the kids only on holidays and for a month during the summer. “After the divorce, I just didn’t care if I lived or died. I ballooned. I put on over a hundred pounds in a matter of months. Hey, wait a minute. Maybe that’s why I’m considering this hospice move, and why I’m so ambivalent about Joann. Maybe I need to recover a sense of meaning for my life.”

“You want to talk about that, Raymond? Sounds to me like you’re avoiding something and it’s not just about mortality. Is it sex and intimacy?”

“I’ve never been comfortable talking about sex, particularly my own sexuality. To be honest, I’ve replaced sex with food in my life. I’m not proud of this, but turning to food was a lot easier than trying to figure out the whole sex thing.

divorceMy divorce devastated me. I never had much confidence that I was a good lover, and when my wife left me, I figured it was because I was lousy in bed.

Intimacy, on the other hand, is a different story altogether. I’m real good at that. In fact, I believe that more intimacy is possible over a dinner table than in the bedroom. I mean, just think about it. Intimacy is about a meeting of souls. Sex is about bumping parts. Maybe that’s why I excel in the kitchen. I’m a much better chef than a lover.

Sex was a taboo subject when I was growing up, just like death and dying, come to think of it. And since I never even came close to conforming to the ideal body image, I always had a hard time of it. I was teased mercilessly as a kid for being fat. Boy, kids can be really cruel.

When I was older, I guess I still let that haunt me, because I never had any confidence about my role as a husband and lover either. I know there wasn’t any expertise involved in getting my wife pregnant. In fact, I wonder how many of us would be here today if conceiving a child involved any kind of skill at all.”

“It’s true what you say, Raymond, our culture is plagued with mixed messages about sexuality and intimacy. We can easily become obsessed with the image of the perfect body, with youth and beauty. All of this can get in the way of finding a comfortable place for us to express ourselves as intimate and sexual beings.

Can I ask you a question? How important is sexuality in your life? Some people haven’t any interest in sex, and that’s just fine for them. But I sense that you’re not like that. Am I correct, or are you content with the status quo?”

Raymond thought for a moment then responded; “I know I’ve built up this wall of fat to keep people out. And I can see that this crazy defense mechanism of mine will most likely kill me if I don’t get a handle on it. Listen, I don’t aspire to being the world’s greatest lover, but it would be nice to stop running for cover every time the subject comes up.”

“Thank you for being so honest about that, Ray.

I believe it’s never too late to relearn new and healthy ways to deal with our sexuality. This re-education process begins with dispelling the myths and misconceptions that our culture passes off as sex information.

I suggest that you begin by doing some reading around the topic of male sexuality. I think you will find it both informative and supportive. There are a number of good books available, and I’d be happy to suggest some titles, if you like.no real ending

Once you’re more comfortable with the basics, you could then move on to being with a partner. Earlier you said that you feel that more intimacy is possible over a dinner table than in the bedroom. An interesting thought and very insightful too. And that leads me to a suggestion! Why not bring some of the intimacy of the dining room into the bedroom? This way you would be combining something you know how to do really well with something you’re just learning. You could invite a partner to join you for dinner in bed. Eating could be part of your sex play. Plan a menu of finger food, and other things you could feed one another. Make it playful. Sex, like eating, shouldn’t be work. And maybe when you get real good at eating in the bedroom, you could try having sex in the dining room.

When you’ve finished your sex play, take a long walk together. The exercise will do you good and you’ll have a perfect opportunity to do some talking about sex. I suspect that sex, sexuality, and sensuality continue to confuse you because you know very little about any or all of these things. Talking with others about their experiences broadens out our own life experience.

Thing is, I don’t think couples talk nearly enough about sex with one another. Learning to communicate is key to having a happy and healthy sex life. Talking about sex is especially important for couples that have been together for a long time. It keeps them from getting stale and prevents them from presuming each knows all there is to know about their partner.

Why not get interested in life again, Ray? Have a little fun. Sexuality isn’t a mystery. It’s a wonderful miracle.

Holly Returns With Good News

“She stood and faced me, and her hands reached out until they came to rest on my scars. It was like her touch was both fire and ice, but I didn’t pull away. There was no turning back. I was finally doing what I should have done two years ago.”

Do you remember me introducing you to my friend, Holly? She is a 43 year old graphic artist who shares a home with her wife of ten years, Jean, and their teenage daughter Annie. She is also living through breast cancer. She had a double mastectomy three years ago and has been cancer-free since.

Holly has been dealing with some big-time body issues post surgery. The mastectomy scarred her psychologically as well as physically. This has had a tremendous impact on her intimate life with Jean.black:white

In the earlier column I mentioned above, I recounted an meeting she and I had where we tried to come up with a strategy to overcome these emotional and physical obstacles so that she could resume some semblance of intimacy with Jean.

During that meeting I asked Holly if she had ever taken the time to grieve the loss of your breasts. I suggested that she go to Jean and ask her to hold her while she mourned for what is no longer hers?

I recommend that the Holly and Jean begin to explore what is possible in their sex life together now. I suggested they avoid comparing what they are able to do now with how things were in the past. “Keep the exploration simple and open-ended. And I suggested that they avoid creating a goal to be achieved in their exploration. That’s where most people in their situation go wrong.

hollyI gave Holly two exercises: 1) spoon breathing — to rebuilding a sense of confidence about being physically together with Jean again. And 2) guided-hand touch — to help reestablish a threshold for what is possible between she and Jean as they move forward now.

I suggested that she and Jean keep these exercises playful and that she honor her limits. I asked her to get back to me in a few weeks and let me know how things are going.

Two weeks later an ebullient Holly returned to see me.

“I’ve had a great two weeks. No kidding. Jean and I are on cloud nine. It all started when I got home from our last session. No sooner did I get in the door than Jean was at me with her usual twenty questions. ‘How did it go? What did you talk about with Richard? Did you talk about me?’ And so on and so on. She was following me around the house like a puppy.

I was afraid that was gonna happen. On my way home from your office I was trying to work things out in my head — what should I tell Jean? I couldn’t just blurt it all out, all the stuff you and I talked about. Besides, I was afraid that Jean would pitch a fit about me airing our dirty laundry in public. I thought maybe if I told her I have a headache she’d leave me alone and I won’t have to mix it up with her right then and there.

As a matter of fact, I did have a headache, a big one, but it was mostly from all the anticipation. I had so much bottled up inside of me for so long, all that fear and shame, I didn’t know how it was gonna come out or even if it would come out at all. I was so afraid that I would say the wrong thing and make matters worse. I’ve done that more than once in our relationship.

When I got in the house, I headed straight for the bedroom but she cut me off at the kitchen. ‘What’s wrong, babe? Don’t you want to talk about it?’ I was shaking all over. My legs felt like rubber. I began to cry. I kind of fell in a swoon right into Jean’s arms, just like in the movies, except I’m lots bigger than she is so she couldn’t really catch me. I wound up slumped on the floor where my crying became a wail.

‘Jesus, Holly, what is it? Talk to me. Are you sick? Say something, damnit. You’re freakin’ me out.’blanco:negro

It was only then that I realized I hadn’t yet said a word to Jean since I got home. I tried to speak, but nothing came out. I was like a madwoman curled up on the floor rocking back and forth sobbing like a motherless child.

Jean was indeed getting pretty freaked out by this time. She had never seen me like this. She helped me to my feet and we stumbled to the bedroom where we both collapsed on the bed. Mind you, I was still carrying on this whole time.

I started to undress. This generally is a signal for Jean to leave the room, because I haven’t let her see me naked since the surgery. She was afraid to leave me alone in my hysterical condition, but she also didn’t want to embarrass me any further. She got up to go. I could feel her anguish. By now, tears were streaming down her face too. I reached for her hand and pulled her back down to the bed next to me. Still no words.

I began to undo the buttons of my top. My hands were shaking and I was moaning deep inside. I turned away from Jean and undid my bra and let it slip from my shoulders. I had gone this far, now all I had to do is turn and face her. But I couldn’t raise my head. I was frozen in place.

I was never so scared in all my life. Jean stroked my back with her fingers. Her caress was so gentle that it could hardly even be called a touch at all. But for some reason her touch calmed me. I took a couple of deep breaths and stood. Then I slowly turned toward Jean. I brought my hands to my face in shame and began to sob more intensity.

black_and_white_hands_holding_sjpg70She stood and faced me, and her hands reached out until they came to rest on my scars. It was like her hands were both fire and ice, but I didn’t pull away. There was no turning back. I was finally doing what I should have done two years ago.

When I was finally able to speak, the first words out of my mouth were, ‘they’re gone.’ I took Jean in my arms and pulled her close and we kissed like lovers do for the first time in three years.

I was stunned by Holly’s story. Tears welled in my eyes as she recalled her joyous reconnection with her lover. I thought to myself, what a courageous woman!

After my breakthrough with Jean, I noticed that I have a renewed interest in living. I don’t mean just going through the motions. I’ve done too much of that already. I want to live. I want to be present for whatever life holds for me and for as long as it is available to me. It also means being aware of my limits. When I’m tired or in pain I need to acknowledge that and rest. I’m not real good at taking care of myself in this way, but that’s going to improve, so help me.

What a role model Holly is for anyone facing a similar situation, indeed anyone of us. Too bad there isn’t a place out there where people, like Holly, could tell their intimate stories, successes as well as disappointments, and inspire others.

Bringing To a Close a Long Life Together

“Each of us is entitled to intimacy and pleasure in our life, regardless of how our body looks or at what stage of life we are at. The fact that we might be sick, elder, or dying need not cut us off from these precious life-enhancing things. However, we will most likely have to take the lead in defining what it is that we need and want, and then communicate that to those who are in a position to answer our need. We ought to have confidence that this will be as enriching for partner as it will be for us.”

Clare, 73, and her husband, Charley, have been married for fifty-three years. They have four children, nine grandchildren, and five great-grandchildren. Clare’s leukemia, which was in remission for over ten years, has recurred. This time it is considered untreatable. She has decided to forego any of the heroic, life-sustaining measures for which modern medicine is so famous. She and her doctors agree that hospice is her best option. “I’ve done my homework. I’ve shopped around. I interviewed all the hospices in town and have chosen the one I feel will honor my wishes for the kind of end-of-life care I want.”

our-livesClare has lived a rich and full life. “I was a career woman long before there was such a thing as a career woman. I’ve always been a take-charge kind of gal. This leukemia may very well kill me, but it will never get the best of me.” Her illness has made her very frail. Her skin is almost translucent. She has an otherworldly look about her, but there is no mistaking her remarkably robust spirit.

Her youngest son Stan, her one and only ally in the family, brought her to our meeting. Stan says, “Oh yeah, she’s feisty all right. There’s no flies on her, and the ones that are there are paying rent.”

Clare’s biggest concern is her family. They are pressuring her to fight against death even though she doesn’t want to. She wishes that they would join her in preparing for her death rather than denying the inevitable.

“I worry about how they will manage when I’m gone. And even though I’m ready to die, I feel as though I need their permission before I can take my leave.Elderly-couple

I try to tell myself that my Charley will be just fine after I’m gone. After all he does have our four grown kids and their families to look after him. But deep down, I know how lost he’ll be without me. Even after all these years, he still needs me to help him find a missing sock!

Whenever I try talking to him about how he’ll manage when I’m gone, he gets this awful flush across his face and starts shaking like a scared little boy. It makes me feel so terrible. I feel so bad for upsetting him like that.

I’m so confused! I want to talk to Charley about all of this. He’s my husband and has been my best friend for well over fifty years, but I honestly don’t know how to reach him on this one.”

Clare straightens herself up in her chair and continues.

“Stan, here, is the only one I can talk to. Everyone else, including my husband, won’t hear a word when I start talking about planning my funeral or who will get my antique Tiffany lamp. They just say, ‘Oh, mother, stop talking like that, you’ll outlive us all.’

I know they mean well. They’re just scared and upset. But boy oh boy, it’s really getting under my skin. I know I only have a short time left to live, so I want it to be real. I’m sick of always having to smile and pretend when I’m with them. It’s about time for them to start considering my feelings for a change.”

reason to smileClare’s immediate concern and the reason for our get together is her husband Charley. She is afraid that they are drifting apart right when they need each other the most. I ask her for a little background on their intimate life together.

“I was well into my thirty’s when the woman’s movement began. It was a time of great awakenings for me. Charley was threatened, of course, but I was able to win him over in time. It was only then that our sex life started in earnest. I finally realized that sex could be about pleasure and not simply about duty. What a liberating experience that was!

Even now Charley and I are intimate, or were until the last couple of months or so. After we both turned 60 our sex wasn’t like when we were youngsters, all heated and hormonally driven, but it’s just as special. Oh, I’m so glad I am able to talk about this with you.

My main concern is the medications I’m taking for the pain. I’m woozy when I take them, but irritable without them. I want to be more available to Charley for the closeness that’s so important to each of us, but I’m often too out of it. This is a problem for Charley too, because he doesn’t know how touch me anymore. And so, I’m afraid, he keeps his distance. This only makes matters worse for the both of us.

How do I change this? Or maybe there’s no changing it. Maybe it’s just over. What a terribly sad thought that is.”

I reach out for Clair’s hand. “I am touched by the loving depiction of the intimate life you’ve had with your husband over the years. It can’t be easy for either of you to see this wind down. However, the closeness and tenderness you’ve had throughout your marriage need not stop now.eldery hands

May I ask; do you still sleep together in the same bed? Would you be comfortable initiating a little cuddling with Charley? Good! Then I’m going to suggest a regiment of spoon breathing and guided-hand touch that I’m sure will work for you both. You will, of course, need to take the lead role in this since, as you say, Charley no longer knows how to touch you, but once he gets the hang of it and he has your permission to do so, he can continue even when you’re not able to reciprocate or even respond.

Allow me to quickly explain spoon breathing. Here’s what you do; lay on your side with Charley on his side close behind you like two spoons. Then see if you can match one another’s breathing pattern. You will be amazed at how calming and comforting this will be for you both. It will also be a very effective way to reestablish a threshold for what is possible between the two of you now, in this final stage of your life.

Now the guided-hand touch; take his open hand in yours and guide it to where you like to be touched. Show him how you like to be touched where he is touching you. Long strokes, slow strokes, short strokes, soft strokes, or just having his hand rest on you, whatever. Show him the kind of pressure you are comfortable with where he is touching you. Once you’ve established a simple routine of breathing and touching, give Charley permission to carry on even if you happen to fall asleep. Because this breathing and touching technique is so gentle and loving, it should be able to serve you even as you are actively dying. But you’ll have to let Charley know that this is what you want and need. You could tell him that you want to die in his arms. What an ideal way to bring your life together to a close. Do you think Charley will accept your invitation?”

“I can’t say for sure, but I think if I suggested it to him in a way that lets him know that he would be doing it for me, it might work. But I’m not sure about what I should say.”

everyone dies“When words fail to communicate what is in your heart, you can always rely on touch. Maybe you will find that nothing needs to be said at all, Clare. Draw him close and keep him near you with touch. Something tells me Charley will find this irresistible. It could be the fondest of farewells. Something he’ll never forget.

This is my philosophy. Each of us is entitled to intimacy and pleasure in our life, regardless of how our body looks or at what stage of life we are at. The fact that we might be sick, elder, or dying need not cut us off from these precious life-enhancing things. However, we will most likely have to take the lead in defining what it is that we need and want, and then communicate that to those who are in a position to answer our need. We ought to have confidence that this will be as enriching for partner as it will be for us.”