How to Find Meaning in the Face of Death

The time between diagnosis and death presents an opportunity for “extraordinary growth.”

 

By Emily Esfahani Smith

[T]he psychiatrist William Breitbart lives at the edge of life and death. As chairman of the Department of Psychiatry and Behavioral Sciences at Memorial Sloan Kettering Cancer Center in New York, Breitbart specializes in end-of-life care for terminally ill cancer patients. For many of his patients, the most pressing question isn’t when they’ll die or how painful death will be. Rather, it’s what makes life meaningful. They are in search of a meaning that cannot be destroyed by death.

Is there one?

Breitbart has spent the better part of his career trying to answer that question. His ground-breaking research shows that while the specter of death often leads people to conclude that their lives are meaningless, it can also be a catalyst for them to work out, as they never have before, the meaning of their lives.

When people believe their lives are meaningful, according to psychologists, it’s because three conditions have been satisfied: They feel their existence is valued by others; they are driven by a sense of purpose, or important life goals; and they understand their lives as coherent and integrated. Psychologists and philosophers say that the path to meaning lies in connecting and contributing to something that is bigger than the self, like family, country, or God.

Meaning and death, Breitbart believes, are the two sides of the same coin—the fundamental problems of the human condition. How should a human being live a finite life? How can we face death with dignity and not despair? What redeems the fact that we will die? These questions roll around Breitbart’s mind every day as he works with patients facing life’s end.

Breitbart’s interest in meaning took root in his childhood. Born in 1951, Breitbart grew up on the Lower East Side of Manhattan. His parents, Jews from eastern Poland, narrowly avoided Hitler’s death camps. When they moved to America, they carried their memories of the war years with them. Breitbart’s childhood was steeped in that tragic past. Every morning, his mother would ask him at the breakfast table, “Why am I here?” Why, she wondered, did she live when so many others had died?

“I grew up with a sense of responsibility to justify my parents’ survival and to create something in the world that would be significant enough to make my life worthwhile. It’s no coincidence,” he laughed, “that I ended up at Sloan Kettering.”

Breitbart began working at the hospital in 1984 during the height of the AIDS epidemic. Young men his age were dying all around him. As he tended to them, “They were constantly asking me to help them die,” he said. He was also working with terminal cancer patients. “When I walked in the room, they would say, ‘I only have three months to live. If that’s all I have, I see no value or purpose to living.’” They told him, “If you want to help me, kill me.”

If death means non-existence, Breitbart’s patients reasoned, then what meaning could life possibly have? And if life has no meaning, there’s no point of suffering through cancer.

By the ’90s, physician-assisted suicide was a hot topic in Breitbart’s circles and beyond. The doctor Jack Kevorkian had helped his first patient end her life in 1990. As the United States debated the ethics of assisted suicide, other countries were taking steps toward normalizing the practice. In 2000, the Netherlands became the first nation to make physician-assisted suicide legal. Today the practice is legal in the United States in California, Vermont, Montana, Washington, and Oregon.

As Breitbart heard more stories of assisted suicide, he began to wonder what specifically was driving the terminally ill to give up on life. At the time, he was doing research studies on pain and fatigue at the end of life, so he tacked onto those studies some questions that asked his subjects whether they felt a desire for a hastened death. What he discovered surprised him.

They no longer wanted to die. Their spiritual wellbeing improved. They reported a higher quality of life.

The assumption had been that the ill chose to end their lives because they were in terrible pain. But Breitbart and his colleagues found that wasn’t always the case. Instead, those who desired a hastened death reported feelings of meaninglessness, depression, and hopelessness. When Breitbart asked patients why they wanted a prescription for assisted suicide, many said it was because they had lost meaning in life. Unlike clinical depression, which has a specific set of diagnosable symptoms, meaninglessness was more of an “existential concern,” Breitbart said—a belief that one’s life has little value or purpose and is, therefore, not worth living.

Breitbart knew he could treat depression—there were medicines and well-developed psychotherapies for that—but he was stumped when it came to treating meaninglessness. Then, in 1995, he began to see a way forward. He was invited to join the Project on Death in America, which aimed to improve the experience of dying. Breitbart and his colleagues on the project—including philosophers, a monk, and other physicians—had long conversations about death and the meaning of life, “peppered with references to people like Nietzsche and Kierkegaard and Schopenhauer,” Breitbart said. “What I suddenly discovered,” he explained, was that “the search for meaning, the need to create meaning, the ability to experience meaning was a basic motivating force of human behavior. We were not taught this stuff at medical school!”

Breitbart became convinced that if he could help patients build meaning, he could decrease their suicidal thoughts and make their lives worth living even to the very end.

He developed an eight-session group therapy program where six to eight cancer patients come together in a counseling workshop. Each session, in one way or another, helps build meaning. In the first session, for example, the patients are asked to reflect on “one or two experiences or moments when life has felt particularly meaningful to you.” In the second session, patients respond to the question “Who am I?” to tap into the identities that give them the most meaning. One woman responded saying, “I’m somebody who can be very private … [and] have been working on accepting love and affection and other gifts from other people.” In subsequent sessions, they share their life story with the group and think about the role that love, beauty, and humor played in their lives.

In the final session, the patients reflect on the part of them that will go on living even after they are dead—their legacy. That could be their soul, or it could be something they helped to create that will continue to exist—their children, a work of art, or an organization. They present a “legacy project” to the group, generally something they do or create that represents how they want to be remembered. One man brought in a woodcut of a heart sculpted into a Celtic Trinity. “This is what I will teach my children,” he said, “that there is eternal love, and that I will be there for them, far beyond my passing.”

Breitbart performed three randomized, controlled experiments on the meaning-centered psychotherapy. When he analyzed the results with his colleagues, Breitbart saw the therapy had been transformative. By the end of the eight sessions, the patients’ attitudes toward life and death had changed. They were less hopeless and anxious about the prospect of death than they were before they began the program. They no longer wanted to die. Their spiritual wellbeing improved. They reported a higher quality of life. And, of course, they found life to be more meaningful. These effects not only persisted over time—they actually got stronger. When Breitbart followed up with one group of patients two months later, he found that their reports of meaning and spiritual wellbeing had increased, while their feelings of anxiety, hopelessness, and desire for death had decreased.

The time between diagnosis and death, Breitbart has found, presents an opportunity for “extraordinary growth.” One woman, for example, was initially devastated by her diagnosis of colon cancer—but after enrolling in the therapy program, she realized, “I didn’t have to work so hard to find the meaning of life. It was being handed to me everywhere I looked.” And that realization ultimately brought her—and Breitbart’s other patients—some measure of peace and consolation as they faced life’s final challenge.

Complete Article HERE!

How Death Makes Us Human — For Now

Thinking of death is inherent to being human. Technological advances, like so many human activities, reflect our desire to avoid it. But that may all be bound to change.

 
By Darío Sztajnszrajber

The human being’s link to death is intrinsic and existential. It is not an external notion one could discard or disregard and somehow remain human. Death, simply put, is a part of us.

As the German philosopher Martin Heidegger observed, our death is both imminent (we could die almost immediately) and conceived in our minds as too distant (we usually think we still have a long time left to live). French philosopher Jacques Derrida asked cheekily, “Is my death possible?” when dying precisely eliminates all possibilities. The curious thing is that while we know we are born to die, we spend our lives trying to transcend death. There is a basic awkwardness or nonsensical origin to all our actions: Whatever we do, we will still die, whence our flight toward daily routines in order to forget or seek relief. This ambiguity may explain a great part of human culture. Just as we want to negate death, we also seek to surpass ourselves.

The 20th-century Spanish writer Miguel de Unamumo postulated that human anxiety was a product of the tension between reason on the one hand, which understands that life is finite, and the desire that it continue forever. That desire has become the engine behind all the attempts to supercede our limits. Thus with every technological innovation, symbolic transformation, revolution in values or new narrative on the meaning of life, are we not aspiring, ultimately, to achieve immortality?

Graveyards do not so much recall our provenance as our destination

 
Now death, which pertains to others, is not the same as dying, which we cannot possibly experience. Cemeteries and their rituals are a means of linking ourselves to the deaths of others, the only possible death experience. In any case, a person supposes that he too will also be buried, honored and remembered — or forgotten. Graveyards do not so much recall our provenance as our destination, prompting the sensations of uncertainty, respect and concern among us all.

Cemetery in Buenos Aires

Cemeteries remain of their time of course. Technology makes it possible today to live on through images and sounds, and create a presence from the experience of absence. It would be interesting to analyze the impact of death’s omnipresence, and the evolution both of mourning and the mechanics of a memory that now is live before us, always within reach.

In reality, current trends like robotics or cloning will change the roots not just of our ties with the death of others, but our own dying. The day will eventually come when we have resolved death, which can only happen when we stop dying. That of course is also when we will stop being human. And so we shall mutate again …

Complete Article HERE!

This Study Reveals The 5 Biggest Regrets People Have Before They Die

With just a few weeks to live, these are the biggest regrets most people have

By

[D]o you have any regrets?

Most people do.

But it appears our regrets gain a lot of weight as we approach the end of our lives.

For many years, Bronnie Ware – an Australian nurse and counselor – worked in palliative care; taking care of terminally ill people, most of whom had less than 12 weeks to live.

Her patients were typically old people with very serious illnesses, waiting to die.

And a lot of her work involved providing counseling and relief from the physical and mental stresses that come naturally when a human being comes face to face with their mortality.

Death is not a comfortable subject for most people. We prefer to not think or talk about it.

But the sad truth is, all of us will die someday.

Knowing you are going to die in a few weeks is a very bitter pill to swallow. And Bronnie noticed as her patients experienced a range of emotions that usually started with denial, and then fear, anger, remorse, more denial, and eventually, acceptance.

As part of therapy, Bronnie would ask about any regrets they had about their lives, and anything they would do differently if life gave them a second chance.

Of all the responses she got from her patients, she noticed there were 5 regrets that stood out. These were the most common regrets her patients wished they hadn’t made as they coursed through life.

But the regrets of the dying can be sound and invaluable advice for the living.

And that’s why it’s a really good thing you’re reading this article.

One of the key revelations from Bronnie’s study is that we often take our lives for granted because we are healthy.

Health affords us boundless freedom very few realise, until we no longer have it.

But while her dying patients were helpless in the face of their regrets, you and I still have time to do something about our regrets, before it’s too late.

Let’s now look at each of the 5 most common regrets Bronnie observed:

1)    I wish I pursued my dreams and aspirations, and not the life others expected of me

According to Bronnie, this was by far the most common regret of all.

When people realise their life is coming to an end, it becomes easier to look back and see all those dreams they had but didn’t have the courage to pursue.

In many cases, their failure to pursue those dreams were often due to fitting into the expectations of others – usually family, friends and society.

One of her dying patients, Grace, made Bronnie promise that she would pursue all her dreams and live her life to its fullest potential without ever considering what others would say.

According to Bronnie, Grace was in a long but unhappy marriage. And after her husband was put in a nursing home, she was diagnosed with a terminal illness. And Grace’s biggest regret was that she never was able to pursue all the dreams she put on hold.

I think the biggest lesson from this regret is, if you know what really makes you happy, do it!

It appears that our unfulfilled dreams and aspirations have a way of silently stalking us, and eventually haunt our memories in our dying days.

And if you’re afraid of what people will say about your choices, remember that their voices will not matter to you in your dying days.

2)   I wish I didn’t work so hard

This one makes me feel guilty.

According to Bronnie, this regret came from every male patient she nursed. And a few female patients too.

As breadwinners, their lives were taken over by work, making a living, and pursuing a career. While this role was important, these patients regretted that they allowed work to take over their lives causing them to spend less time with their loved ones.

Their regrets were usually about missing out on the lives of their children and the companionship of their spouse.

When asked what they would do differently if given a second chance, the response was quite surprising.

Most of them believed that by simplifying our lifestyle and making better choices, we may not need all that money we’re chasing. That way, we can create more space in our lives for happiness and spend more time with the people who mean the most to us.

3)   I wish I had the courage to express my feelings and speak my mind

This one just made me so much bolder. 🙂

According to Bronnie, many of her dying patients believed they suppressed their true feelings and didn’t speak their mind when they should have, because they wanted to keep peace with others.

Most of them chose not to confront difficult situations and people, even when it offended them. By suppressing their anger, they built up a lot of bitterness and resentment which ultimately affected their health.

Worse still, harbouring bitterness can cripple you emotionally and stand in the way of fulfilling your true potential.

To avoid this type of regret later in life, it’s important to understand that honesty and confrontation are a necessary part of healthy relationships.

There is a common misconception that confrontation is bad for relationships and can only create division.

Not all the time.

In reality, when confrontation is kind, honest and constructive, it helps to deepen mutual respect and understanding and can take the relationship to a healthier level.

By speaking our minds, we express our true feelings and reduce the risks of building up unhealthy stores of bitterness that ultimately hurt us.

4)   I wish I had stayed in touch with my friends

This one is a regret many of us struggle with.

Bronnie found that her patients missed their old friends and regretted they didn’t give those friendships the investment of time and effort they deserved.

Everyone misses their friends when they’re dying.

It appears that when health and youth have faded, and death is looming, people realise that some friendships hold more value than all their wealth and achievements.

According to Bronnie, it all comes down to love and relationships in the end. Nothing else mattered to her patients in the last few weeks of their lives but love and relationships.

We live in a busy world these days. And the pressures and demands of work, city life and trying to raise a family can take its toll on some golden relationships.

Knowing this now, what would you do differently?

5)   I wish I had let myself be happier

This is a very humbling one, really.

Many of her patients didn’t realise until the end of their lives that happiness is a choice.

They wished they had known that happiness isn’t something to be chased and acquired through wealth, social acceptance and the trappings of life.

In their deathbeds, these patients realized they could have chosen to be happy, regardless of their circumstances in life – rich or poor.

To me, this regret is the most touching.

Throughout our active lives, we often focus too much on acquiring the things we would like to have – wealth, status, power and achievement. We often (wrongly) believe that these things hold the keys to our happiness.

When asked what they could have done differently, here’s the key message those dying folks shared: Learn to relax and appreciate the good things in your life. That’s the only way to find real happiness.

Happiness is a choice.

Is it possible to live a life without regrets?

This is the big question I’ve been asking myself.

As no human being is perfect, and I doubt there’s anything like a “perfect life”, I expect all of us would have some regret(s) in our dying days.

But I think the key is to have as few regrets as possible.

And the best way to die with very few regrets is to live life as if we would die today.

After all, almost nobody knows exactly when they’ll die.

By living our lives as if the end is nigh, we would realise that we really don’t have all the time in the world. As a result, we would procrastinate less, and pursue our truest desires, dreams and aspirations.

Also, to live a life of few regrets, we have to focus on and accommodate ONLY those things and people that make us happy. Because if we try to conform to the expectations of others and hide our true feelings, the regrets could haunt us later in life.

If you’re reading this article and you’re alive and healthy, you still have a choice.

Remember, you only live once!

Don’t forget to share this article with people you care about. You may just save someone a ton of regrets.

I wish you an amazing life.

Complete Article HERE!

How to die well

Lack of faith is no impediment to a decent death – or to helping another through theirs

Stand by me: Shailene Woodley and Ansel Elgort as cancer patients who fall in love, in The Fault In Our Stars.

By Johannes Klabbers

In the secular age you don’t need special authorisation to console a dying person. Just learning what it means to be there for someone is enough.

Death literacy” is officially a thing. People go to death cafés; books about death are in demand… and around 55 million people worldwide do it every year. But how do you actually do dying well? And who can dying people turn to for support?

Although I know exceptional doctors and nurses who can and do talk with patients about their looming demise, it is something that many don’t feel qualified to do.

Traditionally, expertise in dying was thought to be the remit of religion. The Catholic church recently revived their medieval handbook for dying people, Ars Moriendi, now illustrated with drawings of happy families rather than demons, like the original, and handily available in the form of a website: artofdyingwell.org.

But what are the options for atheists or agnostics today? When it comes to thinking about what it means to be mortal, many people find themselves in a kind of secular vacuum. But living a life without religion doesn’t mean that you have to be alone at the end.

As a secular pastoral carer, I learned that consoling a seriously ill and dying person is something that almost anyone can do, whatever their faith – or lack thereof. You don’t need a special qualification, or a badge, or permission from an authority figure, supernatural or otherwise, just your humanity and determination – and for the suffering person to want someone to be there with them.

The first crucial step is turning up. Too often, our anxiety about saying or doing the “wrong thing” leads us to decide not to visit someone. Offering to be there for someone, even if they decline – and they might – is never wrong. Being there for someone means giving your attention to the person not to their illness, and concentrating on listening, not on worrying about what to say.

You will need to accept that the dying person may not want to discuss their sadness and fears – at least at first. They may want to talk about the football or the latest episode of Bake Off. Or they may just need someone to sit with them in silence.

Remember that it is not unreasonable to feel awkward. You might feel uneasy in the setting, or be distressed by their appearance. But your job is to accept your discomfort and think beyond it. You can show sadness, but do not burden them with your grief. You may need to be supported and comforted yourself afterwards.

While there might not be any formal qualifications in death literacy with which you can arm yourself, there are a number of wonderful, entirely secular, books by brilliant writers who are in the process of dying or supporting dying people, from Jenny Diski’s In Gratitude (to Tom Lubbock) and Marion Coutt’s memoirs, which together form an awe-inspiring document of courage, humility and humanity.

There is a moment which perfectly illustrates how to console a dying person in the Dutch author Connie Palmen’s moving memoir Logbook, when her husband, a leading Dutch politician, lies dying. In a moment of lucidity he sits upright and exclaims, “I am sorry for my sins!”

“I absolve you,” Connie tells him.

Ultimately, our humanity is all the authority we need to offer consolation to dying people.

Complete Article HERE!

What to say to a dying person

A hospice chaplain offers some insight

By Rona Tyndall

[P]erhaps like I, you like to eat pizza and watch movies on Friday nights.

One night, I watched, “Cleaner.” Samuel L. Jackson plays a former police detective who owns a company that cleans up death scenes.
The opening scene takes place at his 30th high school reunion.  His former classmates are all standing around awkwardly with drinks, making small talk about what they’ve been doing for the past 30 years.  Someone asks The Cleaner what he does.   He responds with the utmost respect and compassion necessary for speaking an ugly truth,

“I handle the remnants of heartache and disappointment so that people can go about the business of healing. Most people don’t know this, but someone dies in your home, you are left to clean it up.”  

The classmates look confused.  The Cleaner shares in vivid detail, right down to the special mixture he invented from Listerine to un-coagulate blood.  Everyone is horrified; mouths agape, shifting from one foot to another, coughing nervously.  Noticing their discomfort, he tries to avert attention, asking one of the guys how things have been going for him for the last 30 years;

“Oh, married to the same woman since college, the kids are great, playing a little golf, just got a bigger house so my mother-in-law could move it.  It’s fine; she almost never leaves her room.  Some day she won’t come out.”
Then, a funny look of realization flits across his face and he says to the cleaner, “Um, can I have one of your cards?”  “Sure,” comes the response, “sooner or later, everyone needs us.”  One at a time, each person in the crowd steps forward for a card.

The opening scene touched me; it felt familiar.  People who deal with death know what it feels like to be a skunk at a lawn party.  

That’s pretty much how people react when I tell them I am a hospice chaplain; initial discomfort that such service is necessary, followed by the realization that almost everyone needs hospice care for themselves or a loved one eventually, and finally the realization that the person standing in front of them, who tends to the very deepest of sorrows, does so from a place of deep compassion and love. Then, they ask for my card.

Love, loss and longing…those are the themes that I work with every day in my ministry. 

I love my job, but the most frequent question I get asked is, “Isn’t it depressing?”  It isn’t.  It is sad, often, but not depressing.  Depression is isolating, lonely, hopeless.  Sadness (sorrow) is a point of deep connection, because as human beings, we all experience it at various points throughout our lives.  Joining in that emotion, and the emotions of love, loss and longing that drive sorrow (sadness) begets a deep heart-connection, one to another; the very antithesis of the isolation, loneliness and hopelessness of depression; the very essence of what it means to be in communion, in community, in common, with one another.

Do you know what people talk about when they are dying?  We talk about love; pretty much exclusively.  When we come to the end of our lives and the conversation has narrowed down to, “What was the point of me?” people reflect on love.  It is true that dying people never talk about the unfinished business at work.  We talk about the unfinished business in our intimate relationships.  We talk about the loves that made us whole; the loves that gave us joy and meaning and pride…and the loves that broke our hearts.  We talk about the ones that we loved well and the ones we forsook.  We talk about the intimate love of family and dear friends, and the love for humanity that compels us to reach out to strangers in our professional and private lives.

People are made for love.  We are made to love.  The measure of a life well-lived is always and only a person’s courage in loving.

But though our lives are meant to be a love story, we learn along the way that all love stories end in tragedy.  Whether through choice or through death, someone always is left to grieve. 

Leaving friends and family and home for school or work or marriage is a kind of a death.  Broken relationships are a death.  Divorce is a death.  The end of a life is a death.  The grief that goes with any death is heartbreaking.

Heartbreak hurts!  The feeling of ripping and then aching in our chest, the initial agony of waking up crying, being utterly consumed by the sense of loss, feeling hopeless. 

My eldest daughter loaned me a novel recently.  It was a light read.  Nevertheless, just as even the most simple people contain great wisdom, so does simple reading. 

“When you drop a glass of wine or a plate to the ground, it makes a loud crashing sound. When a window shatters, a table leg breaks, or a picture falls off the wall, it makes a noise.

“But as for your heart, when it breaks, it’s completely silent. You would think, as it’s so important, it would make the loudest noise in the whole word or even have some sort of ceremonious sound like the gong of a cymbal or the ringing of a bell. But it is silent and you almost wish there was a noise to distract you from the pain.” If You Could See Me Now by Celia Ahern

Isn’t that the truth?

When a heart breaks, it is completely silent. But loss is the price we pray for living into our purpose, which is to love.  Love, loss, longing; they are all of one piece.  Life.

In the months following my nephew, Mark’s sudden death at aged 7, none of us could have ever imagined that his parents would smile again.  But then, unexpectedly, like a rainbow arching over the deep, wild, mysterious ocean, something struck my sister-in-law funny one night at dinner, and she laughed.  We never stopped missing Mark, of course. His life and his love and his death shaped our lives and expanded our souls.  But his mother’s laughter was testimony that there is yet hope and joy and life to be had after loss.  Something good is always waiting to be had, eventually.  The resiliency of the human spirit is extraordinary.  The human capacity to hope beyond hope is truly amazing.

Every day, I keep company with men and women and children who are dying and with their families.  It can be a time of profound grace, even in the midst of deep sorrow. Time to look back, pay honor to, and close out a life is precious time. 

There are four phrases that chaplains often offer to people who are dying and to those they love the most, to facilitate sacred conversations:

  • “I love you.”
  • “I am sorry for what has gone wrong between us.”
  • “I ask your forgiveness for the part I had in any hurt between us.
  • “I thank you for your role in my life.”

There is no need to wait for such sacred conversations.  We can have them at any time, and be blessed by the sharing.    

I leave you with a reflection on love, from Dr. Peter Kreeft, from “The Turn of the Clock”

“What to say to a dying person: the profoundest thing you can ever say to a dying person is: I love you.  Not even God ever said anything more profound than that.”

Complete Article HERE!

The Role Of Mindfulness In End Of Life Care

by vimhsadmin

Mindfulness assists people with their end of life process by giving them and their caregivers a tool they can use in order to be fully aware of the present moment and their own physical and mental states

[T]he Venerable Yin Kit (pictured above) has spent decades in hospitals, hospices, and homes, assisting people through their death. Through these experiences, her understanding of how to compassionately and wisely care for those dying and their families has changed as a result of constantly reflecting on what she experiences and what she learns as a Buddhist nun living in the West in the 21st century.

The end of life is a transformation from one physical existence to another existence. Similarly, mindfulness is a transformation of one mental existence into another mental existence.

Emphasis on mindfulness

Buddhist teachings have always emphasized the contemplation of death; a subject that engenders so much fear and worry for many. Mindfulness can take on a role  that  compliments advanced medical technology in end of life (EOL) care.

Mindfulness assists people with their end of life process by giving them and their caregivers a tool they can use in order to be fully aware of the present moment and their own physical and mental states. This allows them to settle into each moment and open up to a wider vision of the future.

With mindfulness, a dying person not only sees their physical changes, but also how their mind influences the perception and experience of their waning body. With an aware and balanced mind, a person is more able to cope with the vicissitudes and challenges that come with this stage of life and be at peace with these experiences. This in turns greatly helps to console the family, friends and care-givers.

Mindfulness also assists in opening pathways for healing relationships and positive life reviews. One can be more receptive and capable of planning for, dealing with and understanding the constantly changing physical and mental experiences and in the end, one’s own death.

The role of mindfulness in end of life care

Venerable Yin Kit speaks at The End of Life: Dying, Suicide, Death conference in Vancouver, November 2016

Venerable Yin Kit spoke about the role of mindfulness in end-of-life care at Simon Fraser University’s Vancouver campus on November 3, 2016. She was also a participant in a “praxis panel” that included Rabbi Laura D. Kaplan, veterinarian Dr. Jeff Berkshire, and counselor Hilda Fernandez.

Venerable Yin Kit, also known as “Sister Jessie”, has been a Buddhist nun since 1992 and is the spiritual leader of Po Lam Buddhist Association in Chilliwack, B.C. She is involved in leading numerous workshops teaching hospice care and hospital spiritual care in Hong Kong and in Canada. The Venerable is also the advisor to the Hong Kong SPGA Hospice program.

In 2005, Venerable Yin Kit established the Compassionate Centre for Health, a service for the Chinese-speaking community in the Greater-Vancouver area. This group has grown to over fifty active volunteers who visit senior homes and palliative care units at several sites. The Venerable has spent decades in hospitals, hospices, and homes, assisting people through their death. Through these experiences, her understanding of how to compassionately and wisely care for those dying and their families has changed as a result of constantly reflecting on what she experiences and what she learns as a Buddhist nun living in the West in the 21st century.

Dr. Jeff Birkshire, Rabbi Laura Kaplan, Venerable Yin Kit Sik, and moderator Hilda Fernandez
on the Praxis Panel at The End of Life: Dying, Suicide, Death (November 2016)

The End of Life: Dying, Suicide, Death

Simon Fraser University’s Institute for the Humanities hosted a conference in November 2016 called The End of Life: Dying, Suicide, Death. The conference was intended to provide space for pondering the complex and agonizing decisions regarding the end of life. Space for such conversations is especially needed given the 2015 decision of the Supreme Court of Canada declaring that the prohibition on physician-assisted dying infringes upon Section 7 of the Canadian Charter of Rights and Freedoms, and the introduction of Bill C-14 which has resulted in debate about who, when and in what circumstances an individual may make such a decision.

Speakers included academics, graduate students and practitioners who spoke from their own particular perspectives: legal, ethical, medical, and spiritual or religious. The presentations also drew upon insights from literature and art, some of humanity’s most treasured resources.

Complete Article HERE!

Looking Death in the Face

Mummy of Ramses II

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[R]amses II, also known as Ramses the Great, was born about 3,000 years ago and is widely regarded as the most powerful pharaoh of the Egyptian Empire. The Greeks called him Ozymandias. When he died in 1213 B.C.E., he left a series of temples and palaces that stretched from Syria to Lybia, and countless statues and monuments commemorating his impressive reign. By the 19th century, when European colonization reached Egypt, most of these statues were gone, and the ones that remained were in ruin. In 1816, the Italian archaeologist Giovanni Belzoni discovered a bust of Ramses and acquired it for the British Museum. This is when Ozymandias’s life, in one respect, truly began.

“Ozymandias,” perhaps the most famous sonnet Percy Byshe Shelley ever penned, was written in 1817, as the remains of the famous statue were slowly transported from the Middle East to England. Shelley imagines a traveler recounting a journey in a distant desert. Like Belzoni, Shelley’s character discovers a great bust, half-buried in the windswept sands. Next to the wreckage is a pedestal where the monument once stood. Inscribed in shallow letters on the slab of rock: “My name is Ozymandias, king of kings: Look on my works, ye Mighty, and despair!” Of course, as Shelley’s poem tells us, nothing remained of these works or the king of kings. Just sand.

The poem’s message is perennial: All of this will be over soon, faster than you think. Fame has a shadow — inevitable decline. The year 2016 has delivered a string of deaths that serve as bracing reminders of this inevitability: Prince, Nancy Reagan, David Bowie, Elie Wiesel, Bill Cunningham, Muhammad Ali, Gordie Howe, Merle Haggard, Patty Duke, John Glenn. Of course, it has also been a year that has ushered in a new empire and, simultaneously, the specter of apocalypse. The year’s end is a time to take account of kingdoms built, but also the sheer rapidity of their destruction. It is a chance to come to terms with the existential fragility that is overlooked in most of our waking hours and that must be faced even by the greatest among us.

We tend to defer the question of living or dying well until it’s too late to answer. This might be the scariest thing about death: coming to die only to discover, in Thoreau’s words, that we haven’t lived.

Facing death, though, is rarely simple. We avoid it because we can. It’s easier to think of “dying” as an adjective than a verb, as in a dying patient or one’s dying words. This allows us to pretend that dying is something that is going to happen in some distant future, at some other point in time, to some other person. But not to us. At least not right now. Not today, not tomorrow, not next week, not even next decade. A lifetime from now.

Dying, of course, corresponds exactly with what we prefer to call living. This is what Samuel Beckett meant when he observed that we “give birth astride the grave.” It is an existential realization that may seem to be the province of the very sick or very old. The elderly get to watch the young and oblivious squander their days, time that they now recognize as incredibly precious.

When dying finally delivers us to our unexpected, inevitable end, we would like to think that we’ve endured this arduous trial for a reason. Dying for something has a heroic ring to it. But really it’s the easiest thing in the world and has little to do with fame and fortune. When you wake up and eat your toast, you are dying for something. When you drive to work, you’re dying for something. When you exchange meaningless pleasantries with your colleagues, you’re dying for something. As surely as time passes, we human beings are dying for something. The trick to dying for something is picking the right something, day after week after precious year. And this is incredibly hard and decidedly not inevitable.

If we understand it correctly, the difficulty is this — that from the time we’re conscious adults, maybe even before that, we get to choose how we’re going to die. It is not that we get to choose whether we contract cancer or get hit by a bus (although certain choices make these eventualities more or less likely) but that, if we are relatively fortunate (meaning, if we do not have our freedom revoked by circumstance or a malevolent force we can’t control), we have a remarkable degree of choice about what to do, think and become in the meantime, about how we go about living, which means we have a remarkable degree of choice over how we go about our dying. The choice, like the end itself, is ultimately ours and ours alone. This is what Heidegger meant when he wrote that death is our “own-most possibility”: Like our freedom, death is ours and ours alone.

Thinking about all of our heroes and friends and loved ones who have died, we may try to genuinely understand that death is coming, and to be afraid. “A free man thinks of death least of all things,” Spinoza famously wrote, “and his wisdom is a meditation not of death but of life.” But we don’t even begin to think about life, not really, until we confront the fact that we are doing everything we can not to think about death. And perhaps we’re not so much afraid of dying, in the end, as of not living and dying well.

Everyday life has no shortage of things with which to waste our time: the pursuit of money, intelligence, beauty, power, fame. We all feel their draw. But the uncomfortable, claustrophobic truth is that dying for something like money or power tends not to be a choice at all. David Foster Wallace argued that for most of us dying in the pursuit of wealth or prestige is simply our “default setting.” The problem isn’t that we’re picking the wrong things to die for, but that we aren’t actually picking. We chose to live by proxy. We allow ourselves to remain in a psychological trap that prevents us from seeing what might be genuinely meaningful in our own lives. In doing so, we risk, according to Wallace, “going through (our) comfortable, prosperous, respectable adult life dead, unconscious, a slave to our heads and to (our) natural default setting of being uniquely, completely, imperially alone day in and day out.” We might call this the Ozymandias Trap — Look on my works, ye Mighty, and despair! — and be on guard against falling into it ourselves.

Most days we discover that we’re not quite up to the heroic task of extricating ourselves from the Ozymandias Trap. Others, we fear we’ve failed miserably. It is not realistic to love in the awareness that each day might be your last. But at least we can stop pretending that we will endure forever.

In Tolstoy’s famous story “The Death of Ivan Ilyich”, the dying hero reluctantly accepts his own mortality, albeit only once he can no longer avoid the truth:

It’s not a question of appendix or kidney, but of life and … death. Yes, life was there and now it is going, going and I cannot stop it. Yes. Why deceive myself? Isn’t it obvious to everyone but me that I’m dying … it may happen this moment. There was light and now there is darkness … When I am not, what will there be? There will be nothing …

Ivan Ilyich can’t pretend that he’s not dying. He recognizes what Ramses II apparently did not: With his death, there is no justification of his life, there is no proof of himself to leave behind, there are no monuments where he is going. He has lied to himself all of his life about the fact that he’s going to die.

In the end, Ivan is liberated from his self-deception. And we, too, can free ourselves from this delusion. As soon as today. Right now.

If we succeed, we may find that confronting the fact of our own impermanence can do something unexpected and remarkable — transform the very nature of how we live.

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