As a doctor, I’m trying to have more empathy for my patients — and myself

By Joseph Stern

“Well, then. I’m going to die, aren’t I?” my friend asked me from a bed in the emergency room. I faced him and his wife. I had worked with Alan Davidson for 20 years. A recently retired ER attending physician, he came in with new right-sided numbness one Saturday evening.

Initially, the ER team called a “code stroke,” rushing to take advantage of the precious minutes available to administer clot-busting drugs or open blocked arteries before the patient suffers more brain damage. A CT scan suggested not a stroke but a brain tumor. I was consulted when an MRI suggested a glioblastoma. We both knew his prognosis was likely poor.

Three days later, I took him to surgery, aware that he was trusting me with his life. When he awoke, Alan and I were pleased that his numbness was no worse and he had no weakness. The postoperative scan showed we had removed virtually the entire tumor.

When the pathology came back, I met with Alan, his wife, and his son. I sat on the edge of his bed and told him his diagnosis. Pathology suggested glioblastoma, a malignant brain tumor with a terrible life expectancy. Neither of us was surprised: We both knew this was coming. But he choked up as he expressed gratitude for the care he was receiving.

Holding back my own tears, I told him how honored I felt he trusted me enough to care for him. Previously, I would not have allowed myself to acknowledge my own gratitude to Alan or accept the depths of his gratitude to me: I would have pushed these feelings away.

More than 25 years earlier, I had faced a similar situation with different results. As a resident, I helped my supervising doctor remove a tumor from deep within the temporal lobe of a man in his 30s. The surgery went well, but we knew the patient’s prognosis was dismal. I entered the cramped consultation room and encountered, for the first time, his wife and three small children. They nervously awaited our report.

I couldn’t bring myself to tell them this was an incurable tumor from which the patient would die in the near future. Instead, I parsed my words. They were technically correct, yet detached. Overwhelmed, I had no idea how to face the patient’s family. What they needed was honesty and compassion. Instead, I avoided connecting, leaving someone else to fill in the gaps. To this day, I carry a sense of shame and failure: I avoided pain, but fell short as a physician.

Physicians develop detachment and emotional distance as a coping mechanism against the pain of grief, loss and failure. Yet our attempts to protect ourselves through detachment ultimately intensify feelings of loss and deprive us of resolution. I have come to see that these unresolved feelings contribute directly to professional burnout.

Mary Buss, director of ambulatory palliative care at Beth Israel Deaconess Medical Center and associate professor of medicine at Harvard Medical School, says that physicians are afraid of, and avoid, feelings of sadness. We reason, mistakenly, that being open to pain and loss could damage us; we fear losing our composure and appearing vulnerable. Yet accepting vulnerability is what most closely connects us with our patients. This is what they remember in the end, after all. Patients crave acceptance, appreciation, and acknowledgment; we all want this for ourselves.

As the brother of a patient, I discovered how it felt to be on the receiving end of care lacking in compassion as I observed occasional blunt, insensitive or confusing comments from the medical staff. I became determined to connect more deeply with my patients and my own emotions. Yet I wondered: How could I balance connection and detachment as a neurosurgeon? Did connecting emotionally with my patients mean I could no longer detach enough to be an effective surgeon? Would it be better to become a technician and leave the emotions to others

I found my approach through a conversation with Helen Riess, a psychiatrist and author of “The Empathy Effect: Seven Neuroscience-Based Keys for Transforming the Way We Live, Love, Work, and Connect Across Differences,” who explained that through the process of developing self- and other empathy, emotional armor could be replaced by “emotional agility.” Intrigued, I went on to read Susan David’s “Emotional Agility: Get Unstuck, Embrace Change, and Thrive in Work and Life,” which characterizes this healthier stance.

Emotional agility enables us to move easily between powerful emotions, recognizing feelings without becoming bogged down by them; to move fluidly through life’s demands without becoming stuck or overwhelmed.

Emotionally agile people derive power from facing, not avoiding, difficult emotions. By allowing ourselves to be vulnerable, physicians become better able to connect more deeply with our patients and ourselves. I came to appreciate that it is possible to move between dispassionate technical precision and intense emotional connection without having to choose between them.

I sat with Alan and his family after his surgery, and we talked until I had to return to the operating room for another case. As I left, Alan remarked that I seemed to get energy and joy from my work. I was surprised to realize that I did feel energized, not depleted; privileged to witness both the beauty and fragility of life. At that moment, I knew I had discarded my suit of emotional armor. In its place was something better and more powerful: emotional agility.

Weeks later, Alan was readmitted to the hospital with increasing right-sided numbness. I read him a draft of this essay as he sat in his hospital bed, unable to control his computer or phone yet intellectually forceful and emotionally attuned. He said that he wanted me to tell his story. He felt strongly this message must be shared, agreeing that doctors often carry a burden of private grief and perceived failures.

We spoke of his children, his grandchildren, his wife. He told me of professional mistakes and a sense of failure that haunted him, yet he also spoke proudly of the thousands of patients he had cared for, their individual stories and faces no longer distinct but flowing through him.

Sitting at my friend’s bedside, I saw Alan forgive himself. He always tried to do his best.

Sometimes, he failed. Just as I often felt powerless, unable to pull someone from the wreckage I saw coming, yet I had done my best. As a resident years ago, knowing that a young husband would not live for long and that his children would lose their father, I had done all I could do — except to allow the enormity of this loss to wash over me, to share it with his family and to accept it, as Alan was doing in his own life

Alan reinforced for me that it is possible to be a skilled surgeon and also a caring and emotionally connected doctor; to hold someone’s hand, and to be present. I couldn’t repair my failed conversation with that family, but I can learn from my mistakes. As long as I continue to practice, there will be another opportunity to try to get things right.

And, as Alan told me, these lessons hold for our lives beyond practice. Part of emotional agility is self-compassion, often a sticking point for physicians. We tend to be unforgiving of ourselves (and of our colleagues). Just as we need to recognize and admit our failings, we also need to let them go. We must forgive ourselves and each other.

These are essential steps toward accepting our vulnerability and achieving emotional agility. Only then can we abandon our detached and defended selves and make the connections that sustain and enrich us.

Alan Davidson, born Jan. 6, 1942, died June 26, 2020. Joseph Stern is a neurosurgeon in Greensboro, N.C. He is the author of “Grief Connects Us: A Neurosurgeon’s Lessons on Love, Loss, and Compassion,” published in May by Central Recovery Press. His website is josephsternmd.com.

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Caregiver Stress

Help Yourself Help Others

By Angela Morrow, RN

caregiving-stress

Families are the mainstay when it comes to providing long-term care to the elderly or disabled, more so than nursing homes, government agencies, or private agencies. More that 22.4 million people in the United States provide some form of informal, unpaid care to someone who is elderly or disabled. Those caregivers include spouses, children, other family members, and friends. Caregivers face a variety of physical, emotional, and socio-economic strains that can cause caregiver stress and, if not properly relieved, lead to caregiver burn-out.

Physical Demands

Caregivers are often required to do a number of physical activities that can stress the body. These may include:

  • Lifting the patient (in and out of a bed, wheelchair, bathtub, or car)
  • Turning the patient from side to side in bed
  • Bathing the patient
  • Feeding the patient
  • Cooking for the patient as well as for themselves
  • Additional shopping

These physical tasks can be very exhausting, especially when piled on top of other demands such as caring for young children and work. These physical demands can also be very difficult for caregivers that are elderly or frail themselves.

Emotional Demands

Caring for someone who is ill or disabled can be very taxing emotionally as well. Sometimes the person you’re caring for can’t remember you or has a hard time following directions or communicating their needs, particularly if he or she suffers from dementia. The person you’re caring for may also have behavioral problems such as yelling, hitting, biting, or wandering away.

This may make you feel frustrated, angry, or resentful towards your loved one.

Socio-economic Demands

Let’s face it – caring for someone can be a thankless job and it is almost always done without pay or reimbursement. It can demand so much of your time that you are unable to continue working. It can also be very costly.

Most items needed for day-to-day care aren’t covered by insurance such as adult diapers, food and health shakes, latex gloves, etc. These factors combined can really put a dent into your financial situation.

Am I Stressed?

It would probably be abnormal to not have any days when you feel stressed. Stress that doesn’t get any better after a short time or is getting worse needs to be dealt with before it leads to burn-out. Common signs of caregiver stress include:

  • Feeling sad or moody
  • Crying more than is normal for you
  • Having low energy
  • Feeling like you don’t have any time for yourself anymore
  • Changes in sleeping patterns (insomnia or sleeping too much)
  • Changes in eating patterns (having no appetite or overeating)
  • Isolating yourself from friends and family
  • Losing interest in hobbies
  • Feelings of anger or resentment towards the person you are caring for

All of these feelings are normal and can occur from time to time as you care for someone. The important thing to remember is to take care of you as well.

You are no good to others if you’re stressed out and sick yourself.

I Am Stressed! Now What?

Remember first and foremost that this is normal. Talking to your doctor, nurse, medical social worker, or chaplain can be helpful in finding ways to manage the stress that goes along with care-giving. You may need to ask family or friends for help so you can take a break. Asking for help does not make you a failure and taking a short break can help reenergize and refresh you. If you have any type of supportive in-home care, such as home health or Hospice care, take advantage of the times that the nurse or home health aide is there. Take a short break and escape to your room with a good book knowing your loved one is in capable hands.

Caregiver Burnout

If caregiver stress continues without treatment, burnout is a real possibility. Burnout is essentially when you feel so overwhelmed that you are unable to care for your loved one and often unable to care for yourself. If think you are reaching that point or are already there, it is important to find help. The first thing you need to do is find medical attention. Then, you can utilize resources in your community. These may include:

  • Adult Day Care – If the person you are caring for is able to safely leave the home, this may be a good option. These centers offer seniors a place to socialize and participate in activities and provide you a much needed break.
  • Skilled Nursing Facilities – Nursing homes (or convalescent hospitals) and assisted living facilities may be able to provide you with respite care. Especially if your loved one is on Hospice. Respite care is part of the Medicare Hospice Benefit.
  • Private Care Aides – Private aides can be hired for a variety of schedules. You may want help for just a couple of hours a day to take a short break or you may choose to have someone there around the clock.

Utilizing this type of support requires financial resources so if you are a little strained in that area as well, start with your church or synagogue. They may have programs that offer support. There may be other community supported programs in your area that offer respite services as well. You can also look into the National Family Caregiver Support Program (NFCSP) through the U.S. Department of Health and Human Service’s Administration on Aging (AoA). They can assist you in finding resources in your area. Their website can be found at www.eldercare.gov or you can call 1-800-677-1116 for more information.

Just remember that you are not alone. Taking care of yourself does not make you selfish or uncaring towards your loved one. Taking care of yourself means you will have all the strength, compassion, and patience needed to provide the best care to others.

Complete Article HERE!