Data from each of the 5,329 patients across the US who died from medical aid in the 23 years after Oregon became the first state to legalize shows well-educated, white patients with cancer dominate the group.
More than 72% of patients who died with medical aid had at least some college education, more than 95% were non-Hispanic whites, and nearly 75% had cancer.
“We don’t know if these numbers reflect genuine, underlying differences in group preferences or disparities in how laws are written or services provided,” says Elissa Kozlov, an instructor at the Rutgers University School of Public Health, and lead author of the study in Journal of the American Geriatrics Society.
“But such large differences in utilization are always a red flag that demands further investigation, and if that investigation finds disparities that make it harder for some groups to access desired medical services, we need to correct them.”
“Many doctors will not participate in MAID, and many who will don’t necessarily advertise the fact.”
The sexes were relatively evenly represented—53% male, 47% female—but medical aid in dying (MAID) users naturally skewed much older than the population at large. Nearly 60% of the people who died with medical aid were between ages 65 and 84. Another 16% were 85 years old or older, while 8% were 54 years old or younger.
One major barrier to many would-be users is cost. MAID is now permitted by eight states and Washington, DC, but the federal Medicare program, which is the primary insurer of Americans 65 years old and older, doesn’t pay any costs associated with MAID.
Those costs can be considerable, Kozlov says. States that allow MAID typically require two doctors to certify the patient will die within six months. There’s also the expense of buying the medications prescribed for MAID, which are often not covered by insurance and can cost up to $3,000.
Another major barrier is finding a doctor who will provide the service.
“Many doctors will not participate in MAID, and many who will don’t necessarily advertise the fact,” Kozlov says. “You have to be well connected within a network of doctors or skilled in researching such matters, and that’s one possible explanation of why well-educated people are disproportionately represented in our findings.”
Many MAID users previously had received hospice care. Still, the overwhelming majority—90%—chose to die at home, and nearly as many—88%—told their families of their plans.
“Further research in this area is necessary because although MAID will likely never account for more than a small portion of deaths, it is becoming more common in the states where it is legal, and it’s currently on the legislative agenda of another 14 states,” says Kozlov.
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