How To Deal With the Physical Symptoms of Grief

By Nneka M. Okona

Creaky hips were my first sign that something different was going on. It was the fall of 2017, and my hips groaned and crackled whenever I moved from the spot where I spent hours staring blankly at a TV. My hips ached as I slept and as I sat. Nothing could soothe them, not even painkillers or a few extra stretches per day.

This was a pain I’d never experienced, but it mirrored the emotional anguish I was enduring. My best friend had just died, and my body held massive stress. It was as if my hips were bracing for impact from the next inevitable devastation. The seasons were changing, and all I could think about was how much my life had suddenly shifted. The persistent pain was yet another transition through which I was struggling.

It turns out that creaks, aches, and phantom pains are pretty normal for people dealing with grief and bereavement. I didn’t know about the physical symptoms of grief at the time—I thought my decreased activity and shock were likely culprits. While my bleary-eyed TV-watching marathons didn’t help, the pain was a symptom of something bigger. Grief had made a home within my body, and I carried it with me as I moved.

Katherine Shear, MD, founder and director of The Center for Complicated Grief at Columbia University School of Social Work, is a psychiatrist and internist. In her clinical work, she’s seen the physical symptoms of grief firsthand. “A lot of people have pain in their body,” she says. “It can be very intense and can be anywhere. [There’s also] the usual bodily stress responses meaning things like cardiovascular symptoms, gastrointestinal symptoms, and muscle tensions.”

In other words, grief hurts. Acute grief, which The Center for Complicated Grief defines as the early period following a significant loss, is an incredibly distressing time. Even though most of us emphasize the emotional weight, bodies react to the stress and pain as well. Dr. Shear says that altered sleep and weight fluctuations are common, too. Understanding that our bodies react to loss helps correct the misconception that grief is limited to yearning for a loved one or what is gone. Dr. Shear’s work helps us to see grief as an embodied event, and it helps us treat it as such. Our response to loss connects to every single body part. Our bodies roar as we wrap ourselves around a newly-arrived reality.

I recently published Self-Care for Grief, a book I began working on at the beginning of the pandemic, a global event that has left so many of us reeling from all types of loss. I set out to create a grounding resource for anyone processing physical, emotional, mental, and spiritual loss. If physical pain has become a part of your grieving journey, you’ll find a few tips below.

Recognize that your pain is normal

As we mentioned above, physical symptoms, as well as weight fluctuations and sleeping habits, are a natural part of grief—they aren’t a sign that your process is strange or wrong. It’s worth restating that grief can include a wide range of physical symptoms: You may get sick more often, deal with stomach upset, decreased focus, exhaustion, or general aches and pains. All of these fall within the realm of normal grief reactions. While addressing any physical concerns, remind yourself that the pain you’re feeling is a valid part of healing. Just as physical cuts and sores take time to mend, so does the enormous pain of loss.

Approach your physical symptoms of grief with curiosity and self-compassion

I’ve learned throughout my grief journey that you can’t be too kind, too compassionate, or too generous with yourself. Embracing softness and self-compassion was huge for me—especially as a Black Nigerian woman. Even before I lost my best friend, my body felt like a battlefield—a receptacle for pain and roughness. Grieving required me to reside in my softness. Please commit to giving yourself that same grace.

To find your softness, Dr. Sheer references My Grandmother’s Hands: Racialized Trauma and the Pathway to Mending Our Hearts and Bodies by Resmaa Menakem. “[Menakem] believes that the most important thing to do is find a way to settle—to start really paying attention to your body,” Dr. Shear says. “You want to focus on your body—where you’re feeling tense and where you’re not feeling good in some way—and try to pay attention to it. Acknowledge it, then try to settle—to release whatever it is that you’re experiencing in your body.”

Embrace gentle movement

When I realized my aching was grief-related, one of the first things I turned to was yoga. Instead of doing intense hip-opening exercises, a friend suggested I try both restorative yoga and yin yoga. Both are slower-paced and involve holding poses for more extended periods. For me, those moments on the mat were life-altering. There, I was in the valleys of my grief, mourning over a dear friend who should still be alive. I had space to feel what was coming up and release it, too.

Within weeks, the aching in my hips dissipated. My grief remained, but over time it felt more manageable. I had given myself the chance to hold my grief without judgment, and it was a step toward what Dr. Shear calls integrated grief—the kind of pain we spend the rest of our lives existing alongside.

Maybe yoga isn’t for you, though. Perhaps you like hiking or leisurely trail walks. Maybe you want to feel the wind against your cheeks. Or maybe weight lifting or burpees fits what you need. In the throes of grief, getting out of bed can be a challenge, so be gentle with yourself and go in the direction of what feels right. You can adjust and experiment with what works.

Consider talking to a healthcare provider about your concerns

If any of the sensations you’re experiencing worry you, it’s okay to discuss your concerns with a healthcare provider. For instance, if you’re dealing with gastrointestinal distress, a doctor can recommend something to soothe nausea, or they can suggest lifestyle changes to lessen cases of upset stomach.

Additionally, you can chat with a mental health professional or grief counselor who might be able to help you work through emotional challenges while you tend to your physical needs. Grief can be harrowing, and it’s perfectly fine to seek multiple methods of support.

Complete Article HERE!

What Is Thanatophobia?

Understanding prolonged, excessive fear of death

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Thanatophobia is a persistent and irrational fear of death or dying. The fear may focus on your own death or the death of a loved one. In extreme cases, these thoughts may be so terrifying that you end up isolating yourself completely, avoiding leaving the house in case something terrible happens.

In the Greek language, the word “Thanatos” refers to death and “phobos” means fear. Thus, thanatophobia translates to the fear of death.

Many of us will feel scared of death and dying at some point in our lives. If you have a phobia of death or dying that is persistent and longstanding, causes you distress or anxiety, and is so extreme that it interferes with your daily life, you may be suffering from thanatophobia.

This article takes a close look at thanatophobia, or death anxiety, to explore the symptoms, causes, and treatments for this phobia.

While thanatophobia is not specifically listed in the Diagnostic and Statistical Manual of Mental Disorders, 5th Edition (DSM-5), there are symptoms of a specific phobia that could be applied in assessing whether someone has a typical fear of death or something more.

  • Unreasonable, excessive fear:The person exhibits excessive or unreasonable, persistent, and intense fear triggered by a specific object or situation.
  • Avoidance of situations in which thinking about death or dying may be necessary: In severe cases, this can lead to the person avoiding leaving home altogether.
  • Life-limiting:The phobia significantly impacts the individual’s work, school, or personal life.
  • Duration:The duration of symptoms must last for at least six months.

The panic you experience with thanatophobia is often attributed to general anxiety, which could produce the following physical symptoms:

  • Sweating
  • Shortness of breath
  • Racing heart
  • Nausea
  • Headache

Death Anxiety in Children

A child’s fear of death may be a healthy part of normal development. Children generally lack the defense mechanisms and understanding of death that help adults cope. Whether the fear qualifies as a phobia depends on its severity and the length of time it has been present.

Diagnosis

Thanatophobia isn’t a clinically recognized condition, so there is no specific test healthcare providers can use to diagnose this phobia. But a list of your symptoms, the length of time you’ve been experiencing the fears, and their severity will give healthcare providers a greater understanding of what’s going on.

It is important that thanatophobia is diagnosed by a trained mental health professional. They will try to determine whether the fear is part of a specific phobia, an anxiety condition, or a related mental health disorder

Thanatophobia may be linked to:

  • Specific phobias: Death anxiety is associated with a range of specific phobias. The most common objects of phobias are things that can cause harm or death, including flying, heights, animals, and blood.
  • Panic disorders: During a panic attack, people may feel a fear of dying or impending doom.
  • Illness anxiety disorders: Death anxiety may be linked to illness anxiety disorders, once known as hypochondriasis. Here, a person has intense fear associated with becoming ill and excessively worries about their health.

A 2019 study linked death anxiety to more severe symptoms across 12 different mental disorders.

Causes

The exact cause of thanatophobia is unclear. However, the condition is a specific phobia with a focus on previous experiences with death.

Some of the risk factors that expose people to a higher risk of thanatophobia include:

  • Age: Studies found death anxiety peaked in people during their 20s and declined significantly thereafter.
  • Sex: Although men and women both experience death anxiety, women experience a secondary spike of thanatophobia in their 50s.
  • Parents nearing the end of life: Children of elderly or sick parents are more likely to fear death. They’re also more likely to say their parents are afraid of dying because of their own feelings.
  • Personality and temperamental factors like being prone to anxiety may increase your risk of death anxiety.
  • Personal health: People with chronic illnesses are more at risk of developing an extreme fear of death.
  • Traumatic event: Those who have experienced death-related, traumatic events are more likely to develop death anxiety.

Prevention

Medical literature on death anxiety is limited and often conflicting, but one study found that fear of death is uncommon in people with:

  • High self-esteem
  • Religious beliefs
  • Good health
  • A sense of fulfillment in life
  • Intimacy with family and friends
  • A fighting spirit

Your healthcare provider may recommend that you receive treatment for an anxiety disorder, phobia, or for a specific underlying cause of your fear of death.

Therapy

Cognitive behavioral therapy (CBT) is an effective treatment for many anxiety conditions and for symptoms of thanatophobia. During a course of CBT, you and your therapist will work together to determine the cause of your anxiety and focus on creating practical solutions to problems.

The goal is to eventually change your pattern of thinking and put your mind at ease when you face talk of death or dying.

Medication

Your healthcare provider may prescribe medication to reduce anxiety and feelings of panic that are common with phobias. Medication is rarely a long-term solution, however. It may be used for a short period of time in combination with therapy.

Coping

Social networks and support groups may help you to deal with death anxiety. Some people may come to terms with feelings of death through religious beliefs, though for some, religion increases feelings of death anxiety.

Self-help techniques include activities that help you feel calmer and more relaxed, such as breathing exercises and guided meditations, as well as other activities that help you improve your overall mental health, such as eating a nutritious diet, getting enough sleep, and regular exercise.

They may not help you overcome your fears in the long term but can help you to reduce the physical symptoms of anxiety you are experiencing and feel better able to cope.

Frequently Asked Questions

How common is thanatophobia?

Everyone will experience a fear of dying at some point in their lives. If you find yourself worrying about death a lot, the first thing to do is to remind yourself that you’re not alone. But if this fear is persistent and is impacting your daily life, seek medical help.

Death anxiety peaks for people in their 20s and seems to get better with age.

Why can’t I stop thinking about death?

Anyone can experience obsessive thoughts about death or dying, and unfortunately they can worsen when a triggering situation arises or can even appear suddenly. While there are many strategies you can try on your own, if you continue to experience unwanted, intrusive thoughts about death, it’s best to reach out to a mental health professional for help.

How do I talk to someone about my fear of dying?

It can be daunting to seek help for death anxiety, but asking for help and learning how to handle these fears in a healthy way can help you manage your condition. It can also keep you from feeling overwhelmed.

A therapist will work with you to examine your thoughts and behaviors and improve how you feel. Your therapist will also give you the tools to help you open up to loved ones about your fears.

Is necrophobia the same as thanatophobia?

Necrophobia is different from thanatophobia. Necrophobia refers to an intense, often irrational, fear people exhibit when confronted with dead “things,” such as the remains of a deceased human being or an animal, or an object typically associated with death, such as a casket, cemetery, funeral home, or tombstone.

A Word From Verywell

Worrying about your own death, or the death of a loved one, is normal but can be distressing and concerning when the feelings linger. If the worry turns to panic or feels too extreme to handle on your own, seek help.

If your worries about death are related to a recent diagnosis or the illness of a friend or family member, talking with someone can be helpful.

Complete Article HERE!

What To Say To Someone Who Lost a Loved One

—And What To Definitely *Not* Say

By Korin Miller

There’s no denying how difficult knowing what to say to someone who has lost a loved one can be. You’re coming from a well-intentioned place of wanting to offer support, not cause additional harm, and yet, too often the desire to console results in the bereaved person taking on the added emotional labor of offering the support to others who are uncomfortable and don’t know what to say.

“Most of us are socialized to help others by solving problems, but grief cannot be fixed,” says trauma and loss expert Gina Frieden, PhD, an assistant professor at Vanderbilt University’s Peabody College. Most people are also “uncomfortable with the topic,” says Katie Opher, a coordinator at Penn Medicine’s David Bradley Children’s Bereavement Program and clinical director of Camp Erin with Penn Medicine Hospice, adding, “it’s hard to talk about something that is painful for ourselves.”

As a result, Dr. Frieden says, some people will either try to avoid discussing the topic or try to offer comfort by talking about their own experience. Unfortunately, those responses aren’t usually the most effective. It certainly is possible to offer effective support to folks who are grieving, though. Keep the following tips in mind for how to do so, and then get specific prompts for both what to say to someone who lost a loved one and also what to avoid saying.

Don’t feel like you have to say the perfect thing to convey your support to someone who is grieving

Of course, you don’t want to further upset a person who is grieving the loss of a loved one. But to save yourself from awkwardly stumbling over your words in an effort to say the exact perfect thing, remember this is a person you’ve interacted with in the past.

“Often, friends and colleagues feel a need to say just the right thing. People may fear saying something that could make the situation worse so they avoid saying anything at all.” —Gina Frieden, PhD, trauma and loss expert

“Take the pressure off yourself,” Dr. Frieden says. “Often, friends and colleagues feel a need to say just the right thing. People may fear saying something that could make the situation worse so they avoid saying anything at all.”

This lack of response, says Opher, may make the person who is grieving may feel that their loss is being minimized or brushed aside. If you find yourself feeling this way, though, Opher says you can say so. Because that alone can effectively convey support. “You can say, ‘I don’t really know what to say, but I’m so sorry for your loss,’” she says. Another option: “I’m sorry this is something I can’t fix for you, but I’m here for you.”

The best way to communicate, Dr. Frieden adds, “is often just being present and validating the griever’s feelings and experience.”

Don’t feel the need to talk about the loss—but don’t go out of your way to ignore it, either.

“It’s important not to avoid the situation, but to take cues from the person,” Opher says. “They may not want to talk about it all the time.” Talking about a loss can help provide good memories, but can also make someone feel vulnerable or sad at a time they may not feel comfortable expressing those emotions.

So, how can you know how to proceed in a way that’s actually helpful? Ultimately, it’s best to “take your cues from the griever,” Dr. Frieden says. “People grieve in many different ways. Some grievers might prefer to talk openly about the loss. If so, listen without trying to fix or change the subject. Just being present and acknowledging the pain is important.”

There are a few phrases you may have heard in the past that probably won’t be received the way you hope, the experts say. Those include things like:

  1. “Be brave. You can push through this.”
  2. “Don’t cry.”
  3. “At least they didn’t suffer.”
  4. “God has a plan… .”
  5. “I know how you feel.”
  6. “This reminds me of a loss I went through….”
  7. “They’re out of their pain and in a better place.”

3 go-to prompts to say to someone who lost a loved one

Dr. Frieden says that these phrases are often helpful:

  1. “There are no words…but know I am here for you. My heart is with you.”
  2. “I am thinking of you and wishing you strength through this difficult time.”
  3. “I know I cannot know all that you are going through, but I am with you and want to be a support in whatever way is needed.”

To convey ongoing support, around significant dates like birthdays or the anniversary of the loss, Dr. Frieden suggests checking in and saying that you’re happy to talk about the loss if they feel like it. “Don’t avoid talking about the loss,” she says. You can also send a thoughtful card to let them know you’re thinking of them and haven’t forgotten the significance of their loss. “Our culture often rushes grieving, but grief is a process and takes time,” she says.

Tangible ways to offer support beyond the things you say

This is a big one, experts say. “Offering to coordinate plans, helping out at work, or running errands can be helpful,” Dr. Frieden says. “Bringing food and helping with childcare can ease anxiety during the initial transition after loss.”

Opher suggests being very specific about how you plan to help instead of leaving it up to your loved one to figure out what they need. “A lot of times when people say, ‘Let me know when you need help,’ the person who is grieving may not know what they need,” she says. “It can be more helpful to say, ‘Can I bring you dinner next Wednesday or mow your lawn’ or ‘I’m going to do [insert helpful thing here] for you.’”

Again, it’s okay if you don’t know exactly what to say to someone who has suffered a loss. But taking your cues from them and acknowledging what has happened in the right moment can go a long way toward giving them a little comfort during this tough time.

Complete Article HERE!

I Don’t Want to Spend the Rest of My Days Grieving

By Margaret Renkl

Sometimes I remember how I tried to comfort my children when they encountered a setback or were disappointed that a dream they were nurturing had not yet come true.

“Life’s a long process,” I would say, echoing my father’s reassurances. “There’s still time.”

But that was long ago, when I was still young enough to believe those words of comfort. Now my father is gone, and my mother too, and I know that life is not at all a long process. Life is the glint of light on rushing water, a flash of lightning. Life is a single wink from a single lightning bug.

How brief is the season of “splendour in the grass,” as the poet William Wordsworth put it, and surely summer is the time that brings such lessons closest to home. The dog days of August crisp the spring-green underbrush to crackling tinder. The children trudge back to school under a blistering sun. We wonder: What has become of the languorous summer we longed for back in the sadness of winter? Where did the endless, grass-fragrant days go?

In one important sense, summer has gone nowhere: During a single week at the end of July, the National Weather Service issued five heat advisories for Nashville, with heat indexes over 100 degrees in this fertile place traditionally known as the Garden of Tennessee. There’s a difference between weather and climate, of course, but increasingly the connection between them — and between them and us — becomes clearer. Human behavior has plunged the earth into an everlasting summer.

This isn’t the lovely kind of summer that has us lingering on the porch and watching the lightning bugs, if only because insects are among the most deeply imperiled lives in the Anthropocene. And these days a person sitting on his porch in Kentucky can smell the smoke from wildfires in Oregon.

I do what I can to lower my carbon footprint, to encourage biodiversity in my small yard. I vote for environmentally aware political candidates. I give all the money I can spare to nonprofits fighting for the earth on a far larger scale.

But I also remind myself sternly to attend to what is not dying, to focus as much on the exquisite beauties of this earth as on its staggering losses. Life is not at all a long process, and it would be wrong to spend my remaining days in ceaseless grief.

The heat may be monstrous, the air may be filled with smoke from distant wildfires and suburban Americans may be drenching their yards with poison, but in this wildlife-friendly little patch of Nashville, nature carries on in its lovely, halting way. Katydids sing in the trees at night and crickets sing in the grass. Bats wheel in the darkening sky above the roosting box we installed in our prettiest sugar maple tree.

Most of the perennials in the butterfly garden have faded now, but the passionflower vines are bearing green fruit, and I have not given up hope that the gulf fritillary butterflies will be arriving any day to lay their eggs on their leaves. The Joe Pye weed is in full, glorious bloom; bumblebees embrace it with the urgency of love. All day long, goldfinches pick seeds from the black-eyed Susans, flitting from blossom to blossom, yellow on yellow, gold on gold. Watching from a distance, it looks as though the flowers have lifted into flight.

Last week, four tiny bald bluebirds hatched in the nest box I had set out for them. These are not the same birds who nested there earlier this summer, and I worried when I saw a new pair moving in. These parents are young, and experience matters when there’s a territorial house wren darting through the brush piles. But the bluebird eggs survived both the wren with egg-murder on his mind and this year’s stifling heat. The gaping nestlings lifted their heads in concert when I opened the box to check on them.

A new-fledged red-tail hawk has taken shelter in my neighbor’s hemlock tree. It calls out, forlorn, as the mockingbirds and crows harass it endlessly, diving into the hemlock again and again, until the baby hawk lifts clumsily into the sky to circle a bit before settling in the tree again. Whenever its regal mother appears, the crows and the mockingbirds are the ones taking wing.

What are the antonyms for speed? What is the opposite of hurry? There’s ambling, perhaps, or apathy. There is quiet. Waiting. Calmness. It’s not true that the living is easy — for no creature on earth is the living easy, not even in summertime — but these days it slows. The songbirds rest in the hot trees, their wings held out to let the still air cool them. The resident rat snake curls slowly through the shady ground cover, too hot to bask in the sun. The black crow, panting, keeps to the shade.

And then it comes me. Here is the word I want: rest. I think of Mary Oliver’s lovely poem “The Summer Day”:

I don’t know exactly what a prayer is.
I do know how to pay attention, how to fall down
into the grass, how to kneel down in the grass,
how to be idle and blessed.

“Doesn’t everything die at last, and too soon?” she asks. Yes, I say. Too, too soon.

The air is so thick I can hardly breathe, but I can feel the breath of the earth on my ankles. Heat rises from the sun-warmed soil. Dampness pours out of the dew-drenched tangle of white clover and wood sorrel and mock strawberries that pass in this yard for a lawn. The earth is breathing. I can breathe, too, because it is still breathing.

Complete Article HERE!

Qualitative Study Shares Strategies for Successful End of Life Conversations for Patients With Cancer

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End-of-life (EOL) discussions such as advanced care, palliative care, and discontinuation of treatment are consistently being missed, according to a study published in JAMA Network Open; however, investigators highlighted existing strategies that are being utilized to achieve successful EOL conversations.

Investigators found that out of 423 outpatients encounters with 141 patients with advanced cancer, only 21 encounters (5%) included EOL discussions. When investigators included a random sample of 93 encounters, 35 encounters (35%) included missed opportunities for EOL conversations. Three patient/oncologist dyads had more than 1 encounter with a conversation pertaining to EOL, which translated to 17 of 141 dyads (12%) having at least 1 event of EOL discourse. The dyads included 13 of 39 oncologists (33%).

“In this secondary analysis of outpatient oncology visits, EOL discussions were rare and missed opportunities for these discussions were common. When oncologists did discuss EOL, they framed it around trade-offs, anticipatory guidance, and acknowledging patients as experts,” investigators of the study said. 

Investigators identified 3 strategies that are being used to navigate opportunities for successful EOL conversations:

Those who take advantage of opportunities for EOL discussions are able to reevaluate treatment options based on patients’ concerns, outlining the risks and benefits between treatment continuation and discontinuation. When suggesting chemotherapy for treatment, it is imperative to be transparent in letting patients know it could prolong survival, but there would be discomfort from adverse effects, the investigators stated. This allows the patients to make decisions about their own future.

Another strategy that has been utilized when making EOL decisions is allowing patients to be experts on their treatment decisions in order to meet their goals. This was accomplished by positing questions such as “What would you like?” and “What was the goal you would like to attain?”. By exploring a patient’s goals and allowing them to lead the conversation, the patient can shape treatment recommendations. Patients are able to explore their thoughts and feelings with regard to treatment discontinuation in a manner that is approachable. This allows one to act as a facilitator who creates an environment of reflection, while the patient shifts their focus to decision making.

The use anticipatory guidance to frame conversations pertaining to treatment reevaluation is another useful strategy. Anticipatory guidance can be used to identify a potential timeframe in which patients will need to make decisions regarding quality of life over cancer-directed treatments. During this time, it is the oncologist’s responsibility to provide sign posts to convey when it may be time to consider quality of life over treatment. This helps patients set appropriates goals and limits as to when they might like to discontinue treatment.

There are a number of hurdles that lead to missed opportunities for or deflected EOL conversations, one of which including responding inadequately to patient concerns. Patients who are concerned about disease progression or dying are often met with partial, avoidant, or absent responses instead of opening the conversation about EOL, which limits the opportunity for patients’ conversations around goals, values, and preferences. Additionally, giving little to no response when a patient expresses fear at the idea of living for years with late stage disease could prevent the occurrence of conversations around disease burden, treatment decision making, and EOL care.

Although speaking about the future optimistically may seem helpful it does little to address patient concerns. Instead of using anecdotes about other patients who exceeded life expectancy, consider using that moment to realistically discuss the patient’s prognosis.

Additionally, expressing concern over patient’s decision to discontinue treatment could be another opportunity for a missed discussion. Although one might be able to justify their treatment decisions by stating that they are in line with the patient’s goal, it is a missed chance for discourse pertaining to quality of life and treatment goals. Moreover, declaring a patient’s next steps for treatment without holding a proper conversation is yet another missed opportunity wherein a conversation about the patient’s options could have taken place.

“Although we recognize that not every patient or appointment may necessitate an EOL discussion, all patients in this study had stage IV malignant neoplasm and their oncologists had previously acknowledged that they ‘would not be surprised if they were admitted to an intensive care unit or died within one year.’ Despite the urgent necessity of EOL discussions within this population, we found far more missed opportunities than actual discussions in this analysis,” the investigators concluded.

Reference

Knutzen KE, Sacks OA, Brody-Bizar OC, et al. Actual and missed opportunities for end-of-life care discussions with oncology patients: A qualitative study. JAMA Netw Open. 2021;4(6):e2113193. doi:10.1001/jamanetworkopen.2021.13193

Complete Article HERE!

How COVID has transformed the death care industry for ‘last responders’

by Kat Eschner

More than 3.35 million people died last year in the United States—far more than the death trade was easily able to handle. Over 70% of those deaths were attributable to COVID-19, a recent analysis found. Others were related to the disruption of the pandemic and some to simple chance. In hotspots around the country, funeral homes, cemeteries, and crematoria were under unprecedented stress as a system designed to accommodate a predictable number of deaths (around 2.8 million in a more normal year like 2019) confronted the challenges of caring for many more.

In New York, an early hotspot, “the adjectives that come to mind were ‘overwhelming’ and ‘intense,’” said Mike Lanotte, executive director of the New York State Funeral Directors Association. In more normal times, Lanotte said, New York State sees about 400 deaths per day. That’s the number that the funeral homes, crematoria, and cemeteries in the state are set up to handle. Occasionally, something like an unusually bad flu season causes a local spike in the number of deaths, but the system in New York State and elsewhere has proved fairly resilient over time.

During those first months in New York and New Jersey, that wasn’t the case. Lanotte said his members—and their colleagues in the neighboring state—were snowed under by demand. “It probably lasted through the early part of summer 2020 before it really started to come down to a point where the system could really catch up,” he said.

New York’s outbreak, with its refrigeration trucks to store bodies, became the face of the early pandemic for many Americans and conjured up memories of 9/11, the last time local death care infrastructure was so overwhelmed by a disaster. But deaths spiked in spots all over the country throughout 2020, pushing death care professionals to their limits.

People who work with the dead aren’t often discussed. “You need their help when you need it,” said Barbara Kemmis, executive director of the Cremation Association of North America, “but my funeral and cemetery director and crematory owner [members] are never listed in any of the ‘Thank you, first responders’ things that are out there.” People in the business understand their role, she said, but the last year on the front lines has been a difficult one.

COVID-19 cases are spiking again across the country now, with a more dangerous new variant and low vaccination rates wreaking havoc. The pandemic is far from over for America. But better knowledge of how to treat and contain the disease, combined with vaccination, means those in the death trade aren’t facing anything like the nationwide deluge of last year. As they begin to take stock, industry leaders and advocates say their profession has been irrevocably changed by the pandemic.

Fast technological change, an increase in cremations, and just the sheer scale of death they had to handle have all contributed to an epidemic of burnout and many people leaving the business. At the same time, revenues last year—usually driven by funerals of the kind that weren’t possible under COVID-19 restrictions—were down, said Steve Spann, president of John A. Gupton College, which serves the mortuary business. “All funeral homes, I think, will determine that they took a pretty decent hit financially,” he said, pegging that impact in the 20% to 30% reduction range.

In the short term, that means there just aren’t enough people in the business. In the medium term, that might mean further consolidation in the already highly consolidated death business, and the loss of funeral homes that serve specific communities, such as the Black community. In the long term, it’s hard to say. But one thing is for certain: The death business will never return to the way it was in 2019.

‘Last responders’

Alabama funeral director Randy Anderson got his first call to pick up the body of someone who had died from COVID-19—a “decedent” in funeral argot—on or around March 27, 2020. That person died in a nursing home, one of the early locations where the disease spread like wildfire.

“That began the multitude of deaths that we would have, about 25% of the deaths that we handled in 2020,” he said. In total, the two funeral homes he owns, Radney Funeral Home and Langley Funeral Home, handled more than 100 COVID-19 deaths in 2020, representing an increase of 60 to 70 calls to pick up bodies over 2019, he said.

That same recent analysis of excess death—the term for numbers of the dead that go beyond the expected—showed extra deaths occurring all over the country, although the impact was distributed in time and space. Writing in the scientific journal JAMA Network, the study authors identify Alabama as the state that endured the fifth-highest number of per capita excess deaths in 2020, after Mississippi, New Jersey, New York, and Arizona.

After the H1N1 pandemic, Anderson followed CDC instructions and continuously maintained a high enough level of supplies to embalm 100 bodies, along with PPE. When COVID-19 hit, he was in a position to share supplies with local health care providers and protect his own team.

But all the supplies in the world couldn’t prepare him and his staff for what they would face. “That veterans’ nursing home, we were there probably five or six times a week during the heat of the crisis,” Anderson said. They also made numerous trips to the morgues of local hospitals and to people’s homes.

“We were working 12- to 14-hour days from about April to about October, November,” he said. The toll of all that work was physical, but—as for others on the front lines of the COVID-19 pandemic—it was also psychological.

Those in death care have a twinned role, said Lanotte. They are public health practitioners who ensure that when patients leave the medical system as a dead body, they are put to rest. In that role, they work with local health officials. But they are also the first point of care for people grieving the loss of a loved one.

Last year, when daily deaths surged, the public health role had to take the front seat, he said. But their other role remained. While coping with the demands of the pandemic and learning, along with the rest of us, about social distancing and other measures, funeral directors and other death care professionals sought to include grieving families in their loved ones’ final disposition.

That took innovation. Kemmis lost her grandmother last year. She and her mother couldn’t travel to the graveside service because of the pandemic, but they were still able to participate thanks to one funeral director. “She was standing at the graveside, holding up her cell phone,” Kemmis said. She and her mother watched on Facebook Live.

To Kemmis, that’s a sign of how far “last responders” will go for those left behind. “She didn’t have to do that. She didn’t charge us to do that. And I didn’t even know to ask for that.”

Rushing to catch up

Kemmis’s experience is one example of a broader trend of death care professionals trying new techniques to connect loved ones with the deceased. While Zoom funerals and Facebook memorials were new for many consumers, they represent an even bigger change in the slow-moving, traditional funeral industry.

“Death care is an old profession. They have a lot of old practices,” said Poul Lemasters, a former embalmer who is now general counsel for the International Cemetery, Cremation, and Funeral Association. “I know a lot of people who even still have fax machines.”

When the pandemic began, he said, death care practitioners found themselves navigating everything from regulatory issues around digital correspondence to dramatic technology shifts in their own workplaces. That embracing of technology “advanced funeral service by a decade or more,” said Kemmis.

Mortuary education is rushing to catch up. While in-person funeral attendance around the country is more possible now than it was a year ago, said Spann, “a good portion [of families] still want livestreaming.” John A. Gupton College was beginning to offer digital marketing instruction, he said, but COVID-19 has accelerated that part of the curriculum.

In the past, “almost everything that a consumer would do with the funeral director would be done face-to-face in the funeral home,” said Lanotte. In some parts of the country, that state of affairs was entrenched in law, further complicating the transition to a new way of doing things.

In New York State, for instance, cemeteries, crematoria, and funeral homes were legally not allowed to accept digital signatures on their documents. That meant grieving families had to provide a physical signature and send the documents by FedEx or other means—a process further complicated if they were quarantined by COVID-19 themselves, writes Joe Mahoney of CNHI. This particular law was recently changed. But it’s part of a larger dynamic in the death care industry whose fading has been hastened by the pandemic.

There was a time when funeral homes and artfully embalmed and displayed bodies were at the center of death care for nearly all Americans. That’s not true anymore, said Tanya Marsh, a professor of law at Wake Forest University who studies the funeral and cemetery trades. Cultural attitudes toward death and final disposition are slowly but surely shifting, she said, a trend exemplified by the increased adoption of cremation.

For the past few decades, the national cremation rate has grown by 1% to 2% per year. In 2016, that rate rose above 50% for the first time. “Cremation has been a game changer,” said Marsh. It allows for different approaches to final disposition and mourning because cremated remains don’t require a specialist to handle them, as an embalmed body does.

Although many predicted a spike in cremations during the pandemic, the national cremation rate went up only by a predictable 1.5% in 2020, according to numbers from the Cremation Association of North America. In some areas, however, the cremation rate increased far more. In the first six months of 2020, for instance, the cremation rate in New Jersey went up by more than 3%. These regional increases may endure, Marsh noted. “The question is going to be, Do people associate [cremation] with COVID?”

If they do, that could negatively impact the increase of cremation rates. But Marsh isn’t sure. “There’s a really strong social normalizing aspect of funeral practices,” she said. If people had a loved one cremated for the first time out of necessity but found it to be a positive experience, she added, it’s likely they will seek out cremation for future final dispositions.

The practice has a lot going for it. It’s generally less expensive than a full burial, for one thing, and it gives families time to gather and say goodbye in their own way. It allows for very different options than the big funeral many of us see on television. But for funeral homes, it represents generally lower revenues and a changing role. “They have to change their identity from being embalmers to event planners,” said Kemmis. “That’s what the trends are pointing to. And that’s hard.”

Tomorrow’s death care

A changing role, combined with the other stresses and changes of the pandemic, is having a huge impact on the death trade. Some are leaving it, while those who remain are dealing with the trauma of being on the front lines. After things settled down in his area, Anderson brought in a PTSD counselor to meet with his staff. “We view what we do a little differently now,” he said.

Like many in the profession, Anderson himself caught COVID-19. He was out of work for three months and hospitalized for a week. Seeing the ravages of the disease firsthand made the prospect of his own illness more alarming. “I had buried people that died with [COVID-19],” he said.

Kris Busini, who was an executive assistant for two funeral home owners in Connecticut through the worst of the pandemic, also caught COVID-19, along with almost everyone else at his funeral home. “We were terrified,” he said. The only one on his team who didn’t catch COVID-19 was their embalmer, a young man who worked long days in the funeral home’s morgue, away from other staff.

Busini was drawn to the death care industry because of the care involved, for both those grieving and the deceased. “There’s a tenderness to it that I really appreciated,” he said. He left, in part, because of the stresses of the pandemic.

The exodus from the death care profession will likely drive further consolidation, Kemmis said. After the past year, some members of the profession who were contemplating retirement or leaving their practice are choosing to sell to conglomerates, she noted.

Lemasters handles some of those transactions as part of his consulting firm and has seen a spike in the past few months. “This has pushed a lot of people to say, ‘I don’t want to do this anymore,’” he noted.

But the trend may be slow and unpredictable. Death on the scale of what has happened during this pandemic altered the future value of the death trade, because in some places, the boomer generation whose death peak was anticipated to be more than a decade from now happened early.

“Between now and 2025-ish, we might actually see a decline in deaths in some areas,” Kemmis said. That short-term decrease may change the valuation of funeral homes, crematoria, and cemeteries—at least for now. But it may also create time to train up new embalmers, crematorium operators, funeral directors, and others in a vast profession, Kemmis said. The death professionals of tomorrow will graduate into an industry that’s been fundamentally altered by the pandemic, in a country only beginning to grapple with its implications.

Marsh expects to see further early retirements and industry exoduses over the next three to five years. “There’s a ton of burnout,” she said.

Some seeds of what’s coming next are beginning to unfurl. The professional associations that death care professionals rely on are starting to host in-person meetings and conferences, the first since before the pandemic. For those who have stayed in the profession, it’s an opportunity to regroup and examine the recent past. During a recent gathering of about 180 members of the death trade hosted by his organization, Lemasters said, “there was absolutely a sharing of stories.” There’s a new feeling of comradery, he said.

As death care professionals reckon with the past year and a half, the industry is also trying to plan for the future. “That’s a full death care industry conversation,” said Lenotte. Part of that conversation is preparing for the next pandemic. Anderson recently presented on that topic at a state convention. “The first thing is just take care of your staff,” he said.

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What Is Anticipatory Grief

—And How Is It Different From Regular Grieving?

This type of grief can pose unique challenges.

By Claire Gillespie

Grief is associated with the period after a death or traumatic change in a person’s life. But when the grieving process starts long before the actual loss, it’s called anticipatory grief.

“Anticipatory grief is the collective thoughts, feelings, and emotions we have before a loss occurs,” Diane P. Brennan, LMHC, founder of Life & Loss Mental Health Counseling in NYC, tells Health. Here’s what to know about anticipatory grief, and why it’s different from regular grieving.

Types of anticipatory grief

Though anticipatory grief is used as a general term, it doesn’t have a single, precise definition, M. Katherine Shear, MD, a psychiatry professor at Columbia University and director of the Center for Complicated Grief, tells Health.

“It’s used in different ways by different authors,” Dr. Shear says. One Frontiers in Psychiatry article defines it as “expectations and emotions” associated with fear of losing a loved one. A review in The Family Journal describes it as “uncertainty, fear, and sadness associated with expecting the impending loss of a loved one which can lead to adverse health outcomes.”

Anticipatory grief also refers to “pre-death grief” in the context of a terminal illness in which there are already losses. For example, the ill person no longer has the same physical, mental, or social functioning, says Dr. Shear. Or there has been a loss of reciprocity in the relationship or plans for the future.

Preparatory grief, the grief experienced by dying patients related to loss of their own life, is another type of anticipatory grief. “This is often misunderstood as grief related to bereavement,” Dr. Shear says.

Anticipatory grief vs “regular” grief

The big difference between anticipatory grief and regular grief is that anticipatory grief occurs before the loss, while regular grief occurs after the loss, explains Brennan.

For example, someone may experience anticipatory grief when a person they love is diagnosed with a terminal illness. “We know they will die from it, so we begin to anticipate the loss and experience grief starting at the time of the diagnosis,” Brennan says. Another example of anticipatory grief is when someone is expecting layoffs at work, or preparing for the breakup of a close relationship.

While the grief felt before a death or other type of loss is not necessarily less intense as grief experienced afterward, it may come with some particular challenges. First of all, not everyone experiences anticipatory grief in the same way. Those who are trying to come to terms with their loved one’s imminent death may struggle with the idea of letting them go, while holding onto hope that they won’t actually die, for instance.

What anticipatory grief can feel like

Generally, it may not be particularly helpful to try to split the grieving process into defined stages. “I often begin talks by saying that grief is universal but how we define it is not,” says Dr. Shear. “That said, there is general consensus in the field that grief can be defined as the response to a meaningful loss and that the two are inextricably linked, i.e. there is not meaningful loss without grief and no grief without meaningful loss.”

She adds that the hallmark of grief is yearning, longing, and/or frequent, insistent thoughts of the deceased or other loss.

“In general, grief is complex and variable, containing a wide range of thoughts, feelings, behaviors, and physiological changes, as well as social and spiritual responses,” Dr. Shear says. “The specifics of what we experience are unique to the grieving person and their relationship with the deceased (or other loss).”

In other words, two people grieve the loss of the same person differently and the same person grieves two different losses differently—and this is true of any form of grief.

That said, loss of a loved one is highly stressful, and there are typical early “defensive responses” that can become problematic when they persist and are overly influential in mental functioning. These include disbelief and protest, counterfactual thinking, caregiver self-blame or anger, excessive proximity seeking (efforts to escape from the painful reality), or excessive avoidance of reminders of the loss. Some of these resemble the five stages of grief model (known as the Kübler-Ross model), which theorizes that those who experience grief go through a series of five emotions: denial, anger, bargaining, depression, and acceptance.

Dealing with anticipatory grief

It’s helpful to think of grieving as a process that begins with accepting your current reality, says Dr. Shear. Another crucial step is to accept grief, including all its painful and positive emotions. If you can, reach out to a trusted friend or family member to make light of what you’re going through. Simply acknowledging what you’re feeling can make a big difference, and it may help to form connections with others who are feeling the same way.

If you’re grieving the impending loss of a loved one, it may help to find ways to spend meaningful time together, and perhaps create opportunities to have conversations you’ve been avoiding. As difficult as they may be, you don’t want to regret not telling them how you feel about them when you have the chance.

A difficult aspect of anticipatory grief is the feeling that your own life is on hold. But many people don’t feel comfortable expressing this to others, out of fear that they come across as being selfish or insensitive.

Also, it can be hard to predict when someone will die, so anticipatory grief often lasts for a long time. This can take a huge toll on the griever’s physical and mental health.

“It’s important to remember that you—the grieving person—matter too,” Dr. Shear says. This means taking care of yourself, practicing mindfulness and self-compassion, making a ritual of simple pleasant activities (like reading, having relaxing baths, and cooking yourself nice meals), and taking some time to start to plan at least one project for the future that connects with a strong personal interest or value—something you find satisfying.

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