Understanding and Dealing with the Death of a Partner

By Tony Del Percio

[I]t does not matter if you’re straight, gay, lesbian, bisexual, or transgender: we are all human beings who have the capability to love and be loved. From the moment we are born, we develop bonds and attachments to people, places, and even things. When that bond is separated and detached, especially because of death, we experience grief and loss.

Grief is an intense emotional and psychological suffering related to any type of loss we may experience. Depending on the bond and the relationship, grief can last a few days or several months. Yet for those who have experienced a significant death, grief can last up to two years. Grief does not just involve the emotional but also the physical. The feelings we experience are neither right nor wrong; they just are.

It can be difficult for us in the GLBT community when a partner/spouse dies or even when we go through a serious break up after being together for a long period. Still in our society there are those who will never accept same-sex relationships or marriage or the fact that two people of the same sex can love just as much as a heterosexual couple. I can remember running a support group for men in San Diego whose partners had died, and some of these men had been in long-term relationships and yet had no legal rights over their partners at the time of death. The family of one of the deceased came and took the body and never recognized the two of them as a couple. The surviving partner never had a chance to say goodbye because in many states the next of kin has the legal rights. That is why it is so very important that couples in the GLBT community have the legal papers that will honor the wishes of the couple before a serious illness or death, because you may not have any rights. Luckily, our society is changing and becoming more open, accepting, and acknowledging of same-sex relationships. Love is love.

It also may be difficult for a partner to talk about their loss with family, friends, and coworkers if they are not out. The lack of support leaves those to grieve in what feels like solitary confinement, which could lead to a greater isolation and a deeper depression.

When dealing with a death or a serious break up, we will experience a wide range of emotions and physical reactions. We may experience shock, denial, depression, anger, guilt, abandonment, insomnia, lack of energy, memory problems, confusion, concentration difficulties, forgetfulness, social withdrawal, chest pains, panic attacks, and headaches as well as other symptoms. These are normal reactions. For some, the emotional pain may become so intense that they will find ways to mask their feelings with increased alcohol or drug use or by taking various unhealthy risks because they may feel they have nothing else to live for. Men, in particular, have a difficult time doing their grief work because of what they have been taught over the years: “be strong,” “it’s finished so move on,” “men don’t cry,” or “pull yourself up by the bootstraps.” Over the years, the lack of understanding feelings, expressing them, and dealing with various losses such as coming to terms with sexuality, divorce, abuse, poor self-esteem as well as other losses has led to substance abuse, abusive relationships and suicide. Men must learn to find healthy ways to express feelings and not be embarrassed about them. Some members of the GLBT community may not have the love and support they need in coping and adjusting to death.

For many, the funeral is the easy part. It is the weeks and months after it when reality sets in and we become more aware of the void in our lives. We know in our heads that our loved ones have died, yet our hearts do not want to believe or accept it. As you begin the mourning process, you need to understand that not only are you experiencing grief, but you are also going through a period of stress and adjustment as you begin to make changes in your life now as a single person.

It is important as you begin the mourning process to be open and honest about what has happened and to accept the fact that your loved one has died. Once you can accept and move from your head to your heart, you can begin to heal. As you move through the process, you will feel like you’re on an out-of-control roller coaster ride, especially around birthdays, holidays, and anniversaries. For many, the sixth month often becomes more difficult as reality really sets in. We will experience triggers of sights, smells, sounds — especially music — that will turn a good moment to a bad moment in a second. Depending on the type of death, there may be more heightened feelings such as anger and guilt. It is okay to be angry since we may feel cheated or that we did not have enough time with our loved ones. Guilt is where we say, “If only…” “could have…” “should have…” It is more important that we come to an understanding of our guilt, whether it be real or imaginary. In sudden deaths, there may be unfinished business in the relationship or intense guilt that we may need to get past to truly accept reality. We all do the best we can with what we know at the time.

At some point, it is Important to begin letting go to heal and find a new purpose. Our grief is not about the person dying as it is more about the loss of the relationship: someone to hold, someone to talk and share each day with, someone to cuddle and hold hands with. You will grieve the loss of dreams and a future with your love. You might also experience the loss of identity, especially if you were in a long-term relationship. In other words, “who am I?“ becomes very unclear. It is crucial that we not rush or deny our grief. For some of us, we may find that older unresolved losses from our past come to the forefront.

The following are some helpful hints for dealing with loss: recognize it, you are not alone, give yourself time to heal, keep decision-making to a minimum, beware of being on the rebound, don’t rush into a new relationship, set goals, keep a journal, drink plenty of water and eat well. And know that you will survive.

As you grieve, it is important if you have children to allow them to be open and honest about their feelings and take time to share stories and memories. If the kids are younger, put together a memory box with personal items and photos. Depending on the age of a child, be as open and honest about the death, yet do not overwhelm him or her. Plus, never tell a child something that may need to be undone later. In other words, never lie to a child about the cause of death. Allow the child to participate fully in the funeral, no matter what age he or she may be.

As you grieve the death of your loved one, it may be important to find a support group of others who are experiencing the same things. This may be a difficult task since many of the groups out there are mostly made up of older individuals who have been married for many years. These people may have trouble understanding a same-sex relationship and may not be respectful of your mourning. Otherwise, you might find that you are comfortable sharing your grievances with close friends and family.

If you are reading this and know someone who has experienced the death of a partner/spouse, here are a few tips on how you can help that person cope and adjust: give them your physical presence, just be there. Do rather than ask. Most people who are grieving do not like to ask for help. Keep the subject on them, this is not a time about you. Do not rush the person through their grief or try to find them a new relationship. Never minimize a person’s loss. Be with them for the long haul because for some this may be a long process.

Complete Article HERE!

Disability and sex are not mutually exclusive

Like many young women, Emily Yates has tattoos, tinted hair, a love of fashion and a great sex life. She also happens to have cerebral palsy

By Emily Yates

Emily Yates: ‘I’m much more than a girl in a wheelchair.’
Emily Yates: ‘I’m much more than a girl in a wheelchair.’

I think it is fair to say that the Paralympics have changed perceptions for the better in linking disability and sport. We have become used to watching elite athletes win medals and represent their countries in front of large crowds, and they just happen to use wheelchairs or prosthetic limbs, or be of short stature, or have hearing and visual impairments.

But what happens when we change “sport” to “sex”? Does awareness and education exist in the same way?

Inclusive and accessible sex education certainly did not exist when I was at school – apart from, perhaps, putting a condom on a banana. We are aware that disabled women, in particular, are almost three times as likely to be sexually abused than their non-disabled peers and yet those of us with disabilities are still entering lessons and workshops that are not designed for us. There are few, if any, subtitled and audio-described videos, information is usually not easy to read or understand, and the bodies in these videos and photos rarely, if ever, reflect disability of any kind, further alienating those of us classed as less than normal, and often less than attractive.

My twin sister and I were born 10 weeks early with cerebral palsy and I became a wheelchair-user at the age of nine after corrective surgery on my legs.

Like many of my friends, I have been in situations where I felt vulnerable sexually, but one in particular was exacerbated by my disability. I am well able to stand up for myself, but I was in a taxi, with my wheelchair in the boot, and the taxi driver was totally inappropriate and very suggestive. Knowing that my disability hindered me in dealing with his approaches was horrible. I decided to keep talking politely to him in the hope that I could distract him through small talk, which I did, until he dropped me off.

I reported him, but it highlighted the difficult situations you can find yourself in sexually if you have a disability.

Children and teenagers are constantly told to respect themselves and others, but if you are disabled, it is likely that many of the adults in your life might never consider you as a sexual being, meaning that the usual safety advice and strategies are rarely discussed. You are doubly vulnerable if you can’t physically remove yourself easily from an awkward situation.

I have been fortunate enough to have great sex and talk about it, but it wasn’t easy for me. Before losing my virginity pretty late, when I was 19, my main concern wasn’t the act itself, but the positions that would be possible without causing a great amount of pain. I also worried that the passion would totally disappear after a bit of inevitable planning.

There were very few helpful answers on the internet, so that left one avenue: laughing and crying with my auntie and sister on a Sunday afternoon as we went through possible positions together … no doubt a story that will surface should I ever get married.

Although it was a giggle and it helped a lot – thanks, guys – it is also tragic that I had to get myself in such a panic over something that is supposed to be sexy and fun because I simply didn’t know where, or who else, to turn to.

Most people, disabled or not, go through a transition stage in which they are suddenly aware of others’ attraction to them and their desire to be attractive in return. For me, this happened quite late and I tended to leave getting the guys to my sister, who was, I have to say, very successful at it (she is about to get married). Although I’m over the moon for her now, I can see that I was pretty jealous of her victories with boys at the time.

As I have got older, learned that necessary patience and had great sexual experiences, I have also grown in confidence, although I still have some way to go until I am as self-assured as I would like to be when it comes to romance and intimacy.

Some people still think that disability isn’t sexy or, worse, having sex with someone who has a disability is seen as wrong. There is also still a sense that if you have a disability, you are ill or frail, neither of which fit into the traditional idea of what we consider sexually attractive in our society.

But change is coming and I am proud to be a part of that.

My sexual experiences have resulted in an awareness of myself as a woman that no one can take away – and that is a great place to be, disability or not. But it is important to remember that those experiences don’t come easily for young disabled people. For so many years, I have had more important things than being sexy to concentrate on. Other teenagers tend not to have to think twice about whether they are able to go on school trips, or prove they can go to university – physically travel there, rather than just reach the required academic standards, find accessible accommodation and work out travel arrangements.

My confidence has been boosted enormously by taking control of my life, and this has helped me in my job as a travel writer. When I volunteered at London 2012, I sat next to Sebastian Coe at a press conference and asked him for 15 minutes of his time and all the contacts he could give me. He, in turn, mentioned me in his speech at the closing ceremony for saying that the Paralympic Games had “lifted the cloud of limitation” for those with disabilities.

I went on to do a two-year consultancy with MetroRio on accessible underground travel and wrote an accessible-travel guide to Rio de Janeiro with Lonely Planet in preparation for the 2016 Olympic and Paralympic Games. I am the founder and one of the directors of My Purple Compass, a company that encourages people with disabilities to travel far and wide, journeying out of their comfort zones.

I also work with Enhance the UK, which, through the Love Lounge, is providing the sort of information I would have loved as a teenager. Change is slow, but it is happening, and we are able to help others to discuss important issues, such as the positions and pain worry I had years ago, through to whether disclosing a disability on an online dating site is a good idea.

Sex education for disabled children and teenagers must be taught in schools as a matter of course, and parents and other family members can play a big part by making it as important for disabled people as for everyone else. More sexually active disabled people in popular culture would also help to change all those perceptions of disabled people, and illustrate that we enjoy sex as much as anyone.

Although being a disabled woman is currently what my work is based on, I’m much more than a girl in a wheelchair. I have the same tatts, tinted hair and love of fashion as many women my age, and I hope that others see that as well as the wheelchair. I am learning that disability and sex are not mutually exclusive and I love the journey that comes with it.

As told to Joan McFadden

Help and guidance on sexual matters for people with disabilities is available at enhancetheuk.org/enhance

Complete Article HERE!

Senior citizens unfairly denied right to intimacy

We must promote a conversation that is sensitive to the sexual needs of our aging population

Elderly-couple

By

Sex therapist Shirley Zussman insists that “in the long run, sexual pleasure is just one part of what men and women want from each other.” Zussman, still practicing, is now over 100 years old. She has worked with William Masters and Virginia Johnson, renowned pioneers in sexuality research, and is the creator of the blog “What’s Age Got To Do With It?” She is one of countless others who emphasize the importance of sex at every age.

The benefits sex normally yields become more imperative as we age. Senior sex promotes cardiovascular health, pain relief and can ward off feelings of depression and isolation that become more prevalent with senescence. However, when a senior citizen enters a nursing home or long-term care facility, they are often discouraged from having a sexual relationship with other residents.

In nursing homes across the country, elders are being denied their natural right to intimacy. Only four states protect the right for unmarried and married couples to have private visits. 18 states address the right to a private visit by married couples, and the remaining 28 states adhere to federal regulation that does not entitle residents to a private room. Most nursing homes lack a clear policy on sex and relationships. To treat consenting adults as asexual, or to ignore their sexuality altogether is cruel and paternalistic.

Affection between elders is sometimes infantilized as cute, or rebuked by juveniles as gross. This promotes ageism and the stereotype that sex is only for young people. Some seniors reflect that sex and intimacy improve with age. Our culture has a significant lack of understanding about how the dynamics of sex and relationships change as people age. We may not like to think of the sex lives of our parents and grandparents, but we must comprehend and protect their needs when they are under scrutiny.

The Hebrew Home in Riverdale, New York, has pioneered a sexual expression policy, in which residents are encouraged to pursue sexual relationships if they so desire them. Residents even relish in the home’s senior prom, which they say makes them feel young again. The progressive approach was introduced not only to promote comfort, but to set a standard for how staff should approach intimacy among residents and to protect other residents from unwanted advances. The home’s staff supports their residents’ autonomy, with one aide constructing a do not disturb sign.

Of course, geriatric sexual expression is not devoid of complications. The issue of consent in patients with Alzheimer’s and dementia has spawned numerous legal battles. In 2014, Henry Rayhons was acquitted of sexually abusing his wife who suffered from Alzheimer’s. The Hebrew Home assesses consent on a case-by-case basis, allowing even residents with cognitive impairment the right to have sex in certain situations.

Because pregnancy is no longer a concern, many seniors don’t feel the need to use condoms, which is partially responsible for the burgeoning growth of STDs in nursing homes. Care facilities have an obligation to address the sexual health of their residents with proper education and an open dialogue. In Australia, former nurse Elaine White discusses the importance of K-Y Jelly, Viagara, sex aids, vibrators and even pillows to support limbs with residents.

As the generation that sparked the sexual revolution begins to enter long-term care facilities, we must promote a conversation that is sensitive to the needs of our aging population and maintains the autonomy and dignity that comes with sexual well-being.

Complete Article HERE!

LGBT Seniors Are Being Pushed Back Into the Closet

By David R. Wheeler

To curb harassment in care facilities, one woman is teaching staff members to respect their elders’ sexual orientations.

** FILE** In this March 3, 2008 file photo, Phyllis Lyon, left, and Del Martin are photographed at home in San Francisco. On Monday, June 16, 2008, San Francisco Mayor Gavin Newsom will marry Martin and Lyon making them the first same sex couple to wed in San Francisco. (AP Photo/Marcio Jose Sanchez)
Phyllis Lyon, left, and Del Martin are photographed at home in San Francisco. They were the first same sex couple to wed in San Francisco.

A few years ago, Rabbi Sara Paasche-Orlow was spending time with, and comforting, a friend who was dying of cancer. Along with all of the usual difficulties and complexities of end-of-life care, there was an additional concern for the friend. Despite being married to her lesbian partner, she didn’t feel like she could be open about it with the hospice worker.

“When hospice came in, I couldn’t stay next to her in the bed,” the friend told Paasche-Orlow, “I had to separate myself. I had to pretend I was something I wasn’t.”

Although Paasche-Orlow never learned the exact reason for the discomfort, her friend’s reluctance to reveal her sexual identity is widespread among non-heterosexual senior citizens in long-term care. A recent national survey of this population by the National Resource Center on LGBT Aging—which provides support and services to lesbian, gay, bisexual, and transgender elders—found that the respondents were frequently mistreated by care-center staff, including cases of verbal and physical harassment, as well as refusal of basic services. Some respondents reported being prayed for and warned they might “go to hell” for their sexual orientation or gender identity.

In Paasche-Orlow’s case, her friend’s statement haunted her so much that she launched a series of programs to help long-term-care residents and staff members deal with the barriers to care for LGBT seniors—and the health disparities that may result. Her aim is to guard these seniors from being forced back into the closet as they age.

“I couldn’t go back and change it for my friend, but we could start thinking much more proactively about this,” Paasche-Orlow said.

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With gay marriage legal nationwide and organizations such as The LGBT Aging Project, a nonprofit that advocates for equal access to life-prolonging services, in operation for more than a decade, Americans should theoretically be living in a golden age for LGBT seniors. Yet the LGBT Aging Center’s survey found that only 22 percent of respondents felt they could be open about their sexual identities with health-care staff. Almost 90 percent predicted that staff members would discriminate based on their sexual orientations or gender identities. And 43 percent reported instances of mistreatment. Meanwhile, few elder-care providers have services directly targeted at helping them.

To deal with this problem, Paasche-Orlow decided to integrate LGBT-focused programs into her work as the director of Religious and Chaplaincy Services at Hebrew SeniorLife, a Harvard-affiliated organization that provides health care to more than 3,000 Boston-area elders. Paasche-Orlow’s programs range from sensitivity training to bringing in LGBT youth from local high schools to spend time with residents.

Although the residents are grateful for the programs, community members such as Mimi Katz acknowledge there’s still a long way to go. Katz, who came out as a lesbian in 1968, lives in a Hebrew SeniorLife facility in Brookline, Massachusetts. She says that one of the major problems today’s elders must contend with is unspoken homophobia. “In the more liberal Brookline kind of setting, nobody is going to be overtly homophobic,” she said. “It’s the same thing as racism. Nobody wants to think of themselves as a racist, but then somebody will say, of one of the black aides, ‘Oh, she’s so well-spoken.’ That kind of thing. Or somebody will say to me, about a woman whose child is gay, ‘Oh, the heartache she goes through.’”

Katz can’t help but be exasperated when these moments occur. “It’s like, ‘Hello!’” she said.

In terms of concrete activities offered by Hebrew SeniorLife, Katz was especially appreciative of her community’s screening of the 2010 documentary Gen Silent, which follows the stories of six LGBT senior citizens who must navigate the intricacies of a long-term care system that is unsupportive of LGBT individuals. But Katz believes what will ultimately benefit LGBT elders the most is staff training. “The only way to deal with it is by example,” Katz said.

According to Paasche-Orlow, most care providers and staff members would never knowingly discriminate against someone because of their sexual identity. But that doesn’t mean LGBT seniors feel like they can be themselves. There’s a difference, Paasche-Orlow acknowledged, between wanting to provide a safe environment and actually providing one. “What we know about the whole field of cultural competency is that, unless I really understand the person I’m serving, I’m going to provide them with what I personally would like, or what I think they need.”

For example, a well-meaning staff member might accidentally make an LGBT elder uncomfortable by asking certain questions—about spouses, children, or grandchildren—that assume the resident is heterosexual. “Instead, we encourage people to ask, ‘Who are the important people in your life?’” Paasche-Orlow said.

Paasche-Orlow’s work does seem to be influencing the Hebrew SeniorLife staff. “The series of LGBT trainings that we went through opened my eyes to the experiences and needs of the transgender community,” said Marie Albert Parent Daniel, a nurse at Boston’s Hebrew Rehabilitation Center who now considers herself an LGBT advocate. “The trainings also gave me language and terminology to help support and educate staff members who may be struggling with how to best care for LGBT residents. … It hurts my heart to see that there are elderly people who are afraid to share their stories and live openly.”

Although an increasing number of long-term care facilities throughout the country are doing more to reach out to LGBT seniors, significant progress is needed before this becomes a widespread practice, said Tari Hanneman, director of the Health Equality Project at the HRC Foundation. “Unfortunately, because so many LGBTQ elders are not comfortable being out, aging service providers often do not realize that they are serving this population and do not recognize that they may need to change their policies and practices to become more LGBTQ-inclusive.”

Complete Article HERE!

Assisted-living facilities limit older adults’ rights to sexual freedom, study finds

Georgia State University

senior intimacy

ATLANTA — Older adults in assisted-living facilities experience limits to their rights to sexual freedom because of a lack of policies regarding the issue and the actions of staff and administrators at these facilities, according to research conducted by the Gerontology Institute at Georgia State University.

Though assisted-living facilities emphasize independence and autonomy, this study found staff and administrators behave in ways that create an environment of surveillance. The findings, published in the Journals of Gerontology: Social Sciences, indicate conflict between autonomy and the protection of residents in regard to sexual freedom in assisted-living facilities.

Nearly one million Americans live in assisted-living facilities, a number expected to increase as adults continue to live longer. Regulations at these facilities may vary, but they share a mission of providing a homelike environment that emphasizes consumer choice, autonomy, privacy and control. Despite this philosophy, the autonomy of residents may be significantly restricted, including their sexuality and intimacy choices.

Sexual activity does not necessarily decrease as people age. The frequency of sexual activity in older adults is lower than in younger adults, but the majority maintain interest in sexual and intimate behavior. Engaging in sexual relationships, which is associated with psychological and physical wellbeing, requires autonomous decision-making.

While assisted-living facilities have many rules, they typically lack systematic policies about how to manage sexual behavior among residents, which falls under residents’ rights, said Elisabeth Burgess, an author of the study and director of the Gerontology Institute.

“Residents of assisted-living facilities have the right to certain things when they’re in institutional care, but there’s not an explicit right to sexuality,” Burgess said. “There’s oversight and responsibility for the health and wellbeing of people who live there, but that does not mean denying people the right to make choices. If you have a policy, you can say to the family when someone moves in, here are our policies and this is how issues are dealt with. In the absence of a policy, it becomes a case-by-case situation, and you don’t have consistency in terms of what you do.”

The researchers collected data at six assisted-living facilities in the metropolitan Atlanta area that varied in size, location, price, ownership type and resident demographics. The data collection involved participant observation and semi-structured interviews with administrative and care staff, residents and family members, as well as focus groups with staff.

The study found that staff and administrators affirmed that residents had rights to sexual and intimate behavior, but they provided justifications for exceptions and engaged in strategies that created an environment of surveillance, which discouraged and prevented sexual and intimate behavior.

The administrators and staff gave several overlapping reasons for steering residents away from each other and denying rights to sexual and intimate behavior. Administrators emphasized their responsibility for the residents’ health and safety, which often took precedence over other concerns.

Family members’ wishes played a role. Family members usually choose the home and manage the residents’ financial affairs. In some instances, they transport family members to doctor’s appointments, volunteer at the facility and help pay for the facility, which is not covered by Medicaid. They are often very protective of their parents and grandparents and are uncomfortable with new romantic or intimate partnerships, according to staff. Administrators often deferred to family wishes in order to reduce potential conflict.

Staff and administrators expressed concern about consent and cognitive impairment. More than two-thirds of residents in assisted-living facilities have some level of cognitive impairment, which can range from mild cognitive impairment to Alzheimer’s Disease or other forms of dementia. They felt responsible for protecting residents and guarding against sexual abuse, even if a person wasn’t officially diagnosed.

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Co-authors of the study, Georgia State alumni, include Christina Barmon of Central Connecticut State University, Alexis Bender of Ripple Effect Communications in Rockville, Md., and James Moorhead Jr. of the Georgia Department of Human Services’ Division of Aging Services.

The study was supported by a grant from the National Institute on Aging at the National Institutes of Health.

Read the study HERE!

Complete Article HERE!

LEROY BLAST BLACK RECEIVES DUEL OBITUARIES FROM WIFE AND GIRLFRIEND

Leroy Blast Black was a loved man, that we can boldly affirm. We did not know Leroy blast Black, dubbed “Blast,” gone too soon at the tender age of 55, but obviously he was well surrounded during his illness.
Leroy Blast Black was a loved man, that we can boldly affirm. We did not know Leroy blast Black, dubbed “Blast,” gone too soon at the tender age of 55, but obviously he was well surrounded during his illness.

By 

Mr. Black died Tuesday at his family home in Atlantic City as the result of lung cancer “due to exposure to fiberglass.”

However, the most intriguing fact about the death of Mr Leroy Blast Black is the fact that two obituaries were printed in today’s Press of Atlantic City.

Indeed, it might have looked like a mistake on the obituary page this morning when two identical-looking (at first glance) listings appeared on top of one another, but the two different, but similar, obituaries were placed by his wife and girlfriend, respectively.

The one from the wife reads:

Black, Leroy Bill – 55, of Egg Harbor Township died August 2, 2016, at home surrounded by his family. He was born September 30, 1960 to Ethlyn and Wilfred Black. He is survived by his loving wife, Bearetta Harrison Black and his son, Jazz Black. He was also a father to Malcolm and Josiah Harrison Fitzpatrick…

The one from the girlfriend follows:

Black, Leroy “Blast” – 55 of Egg Harbor Township passed away at home on August 2, 2016 from cancer of the lungs due to fiberglass exposure. He is survived by: Jazz Black; siblings, Donald, Faye “Cherry,” Janet “Vilma,” Lorna “Clover,” Audrey “Marcia,” Sandra “RoseMarie” and a host of other family, friends and neighbors, and his long-tome (sic) girlfriend, Princess Hall…

Our colleagues at Philly Voice called the Greenidge Funeral Home, and the person that answered clarified: “The obituaries were placed separately because “the wife wanted it one way, and the girlfriend wanted it another way.” But he did not anticipate any problems because everybody knew it was happening.”

NBC News tried to reach the wife and the girlfriend but without any success.

Joseph Greenidge Jr., the funeral director at Greenidge Funeral Homes, told KYW Newsradio in Philadelphia it isn’t unheard of for there to be multiple obituaries written from different perspectives. But, he said, they took direction from Leroy’s wife regarding the funeral arrangements.

Complete Article HERE!

A few weeks ago, I was diagnosed with cancer at the age of 20 – I didn’t expect being gay to make it harder

I was told that one side effect of my treatment would be infertility – but when I went to freeze my sperm, the embryologist was genuinely shocked to find out I wasn’t straight

By Dean Eastmond

cancer
‘Finding out you have cancer is the cliche you imagine it to be’

As I type this, I’m recovering from my second round of chemotherapy for an aggressive rare cancer growing off a rib in my chest, with 12 more cycles to go until I hopefully get better. Hair loss, weight loss and the perpetual white/green tint to my skin has reduced me to somebody I don’t recognise when I stare back at myself in the mirror. But temporary side effects will heal, grow and get better. It is my fertility that will not.

In late May I noticed that one of my ribs was protruding far more than it should be after months of on and off pain. I got myself an Uber to A&E thinking it was the result of a typical student night out or me just sleeping funny, but after a few scans, I was told it was a tumour. Life became a bit of a turbulent water ride from then. More scans and biopsies revealed it was a rare and aggressive form of soft tissue cancer found in adolescents called Ewing’s Sarcoma.

Finding out you have cancer is the cliché you imagine it to be, complete with tearful parents and uncomfortable doctors explaining to you how hard you’ll find it all. Before you know it, there’s a tube tunnelling into your chest with drugs you still struggle to pronounce properly being pumped into you in hopes of making you better.

My date of diagnosis fell in the same week the world was mourning LGBT people murdered at Pulse Nightclub in Orlando and I found the only way to numb the news of my cancer was to integrate myself in my community at a vigil held in Birmingham. Being side by side with other LGBT people in such a scenario allowed me to channel my anger, confusion and upset into something full of change and the notion that everything is temporary.

A few days later, I found myself in hospital to bank a sperm sample due to the likelihood of my treatment causing me to become infertile. The process is lengthy, full of awkward questions and signing dotted lines with an embryologist and it wasn’t until I dropped a hint about being gay that she stopped and said, “Oh. These rules tend to follow the assumption that you’re straight.”

During the process, I was told that if I died or became mentally incapable of having children, a same-sex partner would not be entitled access to my sperm sample, a rule that did not apply to heterosexual counterparts. This was then confirmed by the Human Fertilisation and Embryology Authority through an FOI request. It wasn’t until further action was made by myself that the HFEA issued me an official apology, claimed they provided the wrong information and rectified it.

As a 20-year-old, I haven’t thought too much about my desires to have children just yet. I still have a degree to finish, life to find in a big city and career to grow into. So to be told you’re going to become infertile is a little unsettling on top of cancer.

I’ve understood that I’ll never procreate in a typical heterosexual narrative. It was always going to be complicated surrogacy or adoption if I ever wanted children. Growing up as a gay child, I’ve heard the same tired rhetoric that gay men shouldn’t father children rooted in an ideology that I’m not worthy to have children, time and time again. To now have that right, but a dysfunctional body denying me it, makes you feel like less of a person, somewhat incomplete.

But it’s not about me; it’s about choice, and the wants and needs of other LGBT people in the same position in the UK.

Being told “These rules don’t apply to you” is another door closed in your face for being the person you are. Gay people are being denied access to drugs that prevent HIV, being denied the honour of donating our blood, and have only had equal access to surrogacy for six years. The discrimination out there is rooted in everything, especially healthcare. Experiencing that barrier was like coming up to a sign that: “Stop here – you’re different, and so you don’t belong in this system.”

To imagine that the same people who lit candles with me, stood in solidarity against hate and make the world a little warmer would ever be put in a position of not only losing their loved one to cancer, but being denied access to their sperm purely based on their gender, is a crisis that needs to be addressed. The laws on fertility for LGBT are confusing and stressful, and it is the duty of the HFEA to accommodate equal services to every creed of family. Cancer is hard enough; it shouldn’t be made harder just because you’re gay.

 Complete Article HERE!